Good evening everyone. Some of you would have read my post on Not Dignosised yet. Today I got the results from my Core Needle Biopsy. All is clear I have not had cancer before. I have a strong family history. Om my mums side my grandmother and 2 Aunts one of the Aunts had breast and Ovarian Cancer. On my dads side my grandmother and 2 Aunts also breast cancer. My dad also has non hodgkin lymphoma not sure if tgat makes a difference. I am heading to a specialist as soon as my GP makes an appointment probably within the next week. I with the support of my husband and my GP am going to ask for Preventative Mastectomy. My results today said fibrocystic non cancer lumps. Am I over thinking this? I am so anxious about getting breast cancer in the future. I am 50 and have alot of plans for the future. Sorry for all my posts but I am at a loss of what to think. Cheers.

No I don't think you are overthinking it but as the urgency is gone I would definetly have genetic counselling. Knowing you have a positive gene might mean the need for additional surgery or not. Also if you do carry a gene it's important for your offspring. Because of family history and my Dad being gone...and the sample was held in Scotland, all 3 of my Dads kids were mapped and tested. So we can be sure he never carried it. They even sent out an original sample and retested mine against it again to be certain. They were so sure I had the gene because of age and the age they developed it.I had an Aunt who had bilateral breast and ovarian cancer (and 2 others had ovarian) but don't have her known faulty gene. At this stage they believe I'm just the average unlucky 1 in 8. Talking it over with a counsellor really helped me feel more comfortable. I had the mastectomies and reconstruction. I don't regret it. But I really miss the sensation of my breasts and it does impact on intimacy. We have a breast reconstruction group you can request to join. Many have included their photo stories. If you would like reconstruction you can plan this as same time as mastectomy.

@Pahill, you've probably given us the best news we could hope for, on your behalf. As @primek said, talk to a genetic counsellor about genetic testing, but at the endof the day, the decision to have preventative mastectomies is yours to make. I didn't have a mastectomy but I believe there is a closed faceboook group, called Reclaim Your Curves,that could be worth looking into. AnAustralian website you may be interested in is Pink Hope, to look at pros and consof preventative mastectomies Take care, & stay in touch

@pahill I also wish I trusted my guts the year before diagnosis when they found the fibroadenonoma which I’d never had previously and I wanted to get the mastectomies then but was told “it’s not necessary”. Don’t let My circumstances influence your decision but don’t ignore your gut instinct either love. Whatever you decide you will have ongoing support here with the gang on here. Margie. Xx

Hi everyone I hope you are all having a good day. I am sorry again to ask what may seem like a silly question after my results were ok from recent Core Needle Biopsy. If any of you are free could you send me a message so that I can ask for your help. Hope that is ok. I seem more stressed today than I was before this begun. Or I can chat here if its easier just don't want to be a burden on any of you as you are all going through alot more than me at this time. Thank you for listening. Cheers

Non Cancer Lumps Found | BCNA Online Network

24 Replies

Zoffiel
Member
8 years ago
Before you go down the preventative mastectomy road, I genuinely feel that requesting those lumps are surgically removed is wise.
I had a lump on my boob that was mammogrammed, ultrasounded, core and needle biopsied and dismissed. I had spent a couple of months on this process before I finally cracked it and demanded the lump was taken out. I was treated rather shabbily and told I was overacting, until the lump that wasn't a problem was a 5.5cm lobular tumour. Sometimes I would rather be wrong.
Fast forward 10 years and I had to go through a similar process with a lump in my armpit. You'd think--given my history--that the bells that were ringing in my head would be audible to someone else, but no. That time it took nearly two years, probably 5 ultrasounds and as many needle biopsies before someone--my new GP--hit the panic button. By that time I had skin presentation of the same cancer. Lobular BC is a sneaky disease which does not present like DCIS. Once again, I'd have preferred to have been wrong.
As Margie has said, other peoples experiences should not drive yours, but if you are not comfortable, get that chunk of whatever removed. Marg xx
Pahill
Member
8 years ago
Thank you Rosie. My appointment went well the surgeon was great to talk to. He is referringme to gentic Testing people that could take a few months to get to see them. I discussed preventative Mastectomy he would be happy to do it if I choose to go down that path.. i am steering towards that after todays talk bit will wait to see what the gentic people say first..hope you are feeling ok today with your journey. Cheers
Rosie_BCNA
Member
8 years ago
Good luck with your appointment today @Pahill. Hope all goes well and you come away with a clear plan in place.
Pahill
Member
8 years ago
Morning everyone hope you are all feeling ok today. I am off to see a spealicst today about preventative Mastectomy hopefully he will be able to steer me in the right direction. Although I have not been diagnosed with breast cancer I and with my husband support believe that this would be a good thing to look at doing. Due to the high family history. I understand that family history does not mean that I will get cancer but a risk is a risk to me...Anyway have great day and take care of yourself.
Rosie_BCNA
Member
8 years ago
Hi @Pahill, Im going to send you a private mesage now. Rosie
iserbrown
Member
8 years ago
https://www.bcna.org.au/news/2017/02/breast-cancer-network-australia-extends-phone-helpline-hours/
iserbrown
Member
8 years ago
The BCNA phoneline would probably help you as they are nurses.

https://www.bcna.org.au
Pahill
Member
8 years ago
Hi everyone I hope you are all having a good day. I am sorry again to ask what may seem like a silly question after my results were ok from recent Core Needle Biopsy. If any of you are free could you send me a message so that I can ask for your help. Hope that is ok. I seem more stressed today than I was before this begun. Or I can chat here if its easier just don't want to be a burden on any of you as you are all going through alot more than me at this time. Thank you for listening. Cheers
Sister
Member
8 years ago
Good luck, @Pahill
Pahill
Member
8 years ago
Thank you once again everyone. I have been quite upset about all of this. However hearing that I dodged a bullet this time was awesome news. I am waiting for an appointment with a spealicst and I will take it from there. But both my husband and I think having a Preventative Mastectomy is something we should seriously consider. Think I have already Decided just need to chat with them and see how that goes....Thanks so much for all your help. Cheers