Best Of
Re: Newly diagnosed .. Glad I've found a safe place
@Hils,
It's a common thing to try and find a "reason" that it happened to you. What you did to yourself to get it so to speak. All the scientists and medico's still don't know so please don't beat your self up. There is no room for guilt in this little trip. This thing does not discriminate. I work in a hospital on the surgical ward. I have seen everything from a 16 yo old girl to a 92 year old man deal with breast cancer.
You did nothing wrong lovely.
It's a common thing to try and find a "reason" that it happened to you. What you did to yourself to get it so to speak. All the scientists and medico's still don't know so please don't beat your self up. There is no room for guilt in this little trip. This thing does not discriminate. I work in a hospital on the surgical ward. I have seen everything from a 16 yo old girl to a 92 year old man deal with breast cancer.
You did nothing wrong lovely.
kezmusc
4
thank you for my birthday wishes
Hi ladies,
to all of you who sent me birthday wishes for October 25th,I say a very big thank you, you know who you are!. I havent been very active on the bcna online forum, in fact I havent been very active at all!Life has been very quiet, chemo three weeks out of 4, and as its a 4 hour round trip and then factor in the chemo infusion it makes for a very long day,however, you do what you have to do,my hair is growing back all white and curly, at 64, not sure about the white, however I will take whatever comes.It has been 4 months since I have been on abraxane and whilst in the beginning it had very little side effects,it seems to be catching up with me,however its a lot better than the vinoralbine that I was on before.
Its a beautiful spring day and I have just been outside and picked some of my glorious roses,they are my pride and joy and the best I have had so far,to all of you I wish you well and hope that you are all chugging along okay, or as best you can.Its been 6 and a half years since my original diagnosis of metastatic breast cancer and I would like to think that I will still be writing to you in another 6 and a half years, this was not how I had planned my retirement, however its all a matter of how the cards fall.
I am so very fortunate that I have the most caring,loving and supportive partner, who at 75 I am sure did not plan on looking after me,
but he has taken on the job and is simply a champion.
I had a phone call from my oncologist this morning and he is trying to get me on to a access program for a combination of drugs, so things are looking up, I will not know all the details until Nov.16th but certainly is something to look forward to.
So with the sun shining and a blue sky outside, things are looking up!!!.
Once again, thankyou, your ongoing encouragement and support is very special, and at times is simply what gets me through the day.
Wendy55
to all of you who sent me birthday wishes for October 25th,I say a very big thank you, you know who you are!. I havent been very active on the bcna online forum, in fact I havent been very active at all!Life has been very quiet, chemo three weeks out of 4, and as its a 4 hour round trip and then factor in the chemo infusion it makes for a very long day,however, you do what you have to do,my hair is growing back all white and curly, at 64, not sure about the white, however I will take whatever comes.It has been 4 months since I have been on abraxane and whilst in the beginning it had very little side effects,it seems to be catching up with me,however its a lot better than the vinoralbine that I was on before.
Its a beautiful spring day and I have just been outside and picked some of my glorious roses,they are my pride and joy and the best I have had so far,to all of you I wish you well and hope that you are all chugging along okay, or as best you can.Its been 6 and a half years since my original diagnosis of metastatic breast cancer and I would like to think that I will still be writing to you in another 6 and a half years, this was not how I had planned my retirement, however its all a matter of how the cards fall.
I am so very fortunate that I have the most caring,loving and supportive partner, who at 75 I am sure did not plan on looking after me,
but he has taken on the job and is simply a champion.
I had a phone call from my oncologist this morning and he is trying to get me on to a access program for a combination of drugs, so things are looking up, I will not know all the details until Nov.16th but certainly is something to look forward to.
So with the sun shining and a blue sky outside, things are looking up!!!.
Once again, thankyou, your ongoing encouragement and support is very special, and at times is simply what gets me through the day.
Wendy55
wendy55
5
Re: Cancer Australia and Metastatic BC
We so need a 'shitbags/oh bugger/gargh response button @Patti J . Confidence is all, particularly if you think that your team is up on what is happening in your space.
I've worked for Cancer Oz as a grant reviewer for over a decade and to see them actively change focus from not just early detection and treatment of identified disease to dealing with what we currently see as incurable stages could inject millions of dollars a year into new research. Bring it on.
I've worked for Cancer Oz as a grant reviewer for over a decade and to see them actively change focus from not just early detection and treatment of identified disease to dealing with what we currently see as incurable stages could inject millions of dollars a year into new research. Bring it on.
Zoffiel
5
Re: What are your easiest, tastiest meals - quick to prepare when you can't think of anything!!
One of my family's fave dinners and easy as, is my super easy meatballs!
1kg mince (I use beef), add shredded zucchini if you have the energy (got to get hidden veges into them somehow), 2 eggs, about a cup of breadcrumbs (or almond meal if you're avoiding the carbs), half a cup of tomato paste, and squirt of Tabasco or Worcestershire or a bit of chili if you want to give it a kick - can adjust the dry/wet ingredients a bit....
Stick a pot on the stove and bring to the boil 2 x bottles of your favourite tomato passata or puree ( I use the 700g ones) + an equal amount of water. (ie empty the bottle of passata into the pot then fill the same bottle with water and add the water in).
When the passata is boiling, roll the mince mixture into small balls with wet hands, and throw them in.
Boil over medium heat until the sauce reduces and thickens - takes about 40 mins - leave the cover off and it will reduce quicker just make sure the mince is cooked through.
So yummy with pasta or mash or veges or cauliflower mash!
Make enough to freeze
1kg mince (I use beef), add shredded zucchini if you have the energy (got to get hidden veges into them somehow), 2 eggs, about a cup of breadcrumbs (or almond meal if you're avoiding the carbs), half a cup of tomato paste, and squirt of Tabasco or Worcestershire or a bit of chili if you want to give it a kick - can adjust the dry/wet ingredients a bit....
Stick a pot on the stove and bring to the boil 2 x bottles of your favourite tomato passata or puree ( I use the 700g ones) + an equal amount of water. (ie empty the bottle of passata into the pot then fill the same bottle with water and add the water in).
When the passata is boiling, roll the mince mixture into small balls with wet hands, and throw them in.
Boil over medium heat until the sauce reduces and thickens - takes about 40 mins - leave the cover off and it will reduce quicker just make sure the mince is cooked through.
So yummy with pasta or mash or veges or cauliflower mash!
Make enough to freeze
Eastmum
5
Re: Back off please
"I love you dearly and I truly appreciate your interest, but right now I really don't want to talk about it. I hope you don't mind."
or
"Do you mind if we don't talk about it anymore? I just want to focus on other things for a bit."
It's very challenging isn't it? I hope you can get your friend to back off. K xox
or
"Do you mind if we don't talk about it anymore? I just want to focus on other things for a bit."
It's very challenging isn't it? I hope you can get your friend to back off. K xox
kmakm
6
Re: I’m back
Great news from your scans @TripleTea
I too have had a localised recurrence of Triple Negative and know and feel exactly what you're going through.
I had to have another round (5 months) chemo, but a different regimen to the first time. I hated every bit off it, but knew if this was going to beat the retched thing, then I had to do it !! Then radiotherapy again as well.
I'm now nearly three year post the recurrence and heading down the path of reconstruction at the moment.
Sending you bunches of hugs and just know that you can do this.
I too have had a localised recurrence of Triple Negative and know and feel exactly what you're going through.
I had to have another round (5 months) chemo, but a different regimen to the first time. I hated every bit off it, but knew if this was going to beat the retched thing, then I had to do it !! Then radiotherapy again as well.
I'm now nearly three year post the recurrence and heading down the path of reconstruction at the moment.
Sending you bunches of hugs and just know that you can do this.
Re: I would like to connect with other carers....
Hi @Bridget1
It's true that there is not a huge support network for partners.
I have found a number of people through work, but to be honest most of the meaningful support I have found on here. Some of the (mostly) women here have been incredibly supportive and patient.
Its a funny place to be, as a healthy partner of a Cancer patient. And when I say funny I mean shit. There are some dark places your mind goes and personally I found guilt to be a big one, but fear has been the worst.
Please don't let yourself be alone, though. There are some resources you should definitely use.
I'll PM you.
It's true that there is not a huge support network for partners.
I have found a number of people through work, but to be honest most of the meaningful support I have found on here. Some of the (mostly) women here have been incredibly supportive and patient.
Its a funny place to be, as a healthy partner of a Cancer patient. And when I say funny I mean shit. There are some dark places your mind goes and personally I found guilt to be a big one, but fear has been the worst.
Please don't let yourself be alone, though. There are some resources you should definitely use.
I'll PM you.
Re: Haiku challenge. Your day in three lines 7-5-7
Water still can't get it right
No soft welcome falls
Stinging stones and bitter sleet
No soft welcome falls
Stinging stones and bitter sleet
Zoffiel
6
Re: What a time to find out you're not covered by HBF! And can I save my nipple?
@KylieG
My treatment and followup care has been as a public patient. I do not have private health insurance.
May I suggest that you see your usual GP and ask for an urgent referral to the Breast Clinic at Fiona Stanley Hospital.
My diagnosis and treatment was complicated by the fact that I live remotely in the Kimberley, however the clinic staff at Fiona Stanley worked with me for the best possible outcome.
I wish you the very best of outcomes. Warm Kimberley wishes to you.
Annie
My treatment and followup care has been as a public patient. I do not have private health insurance.
May I suggest that you see your usual GP and ask for an urgent referral to the Breast Clinic at Fiona Stanley Hospital.
My diagnosis and treatment was complicated by the fact that I live remotely in the Kimberley, however the clinic staff at Fiona Stanley worked with me for the best possible outcome.
I wish you the very best of outcomes. Warm Kimberley wishes to you.
Annie
Annie C
5