Neuropathy in feet - any advice? TNBC
Hi everyone I've TNBC and am 6 treatments down with the first Carbo/Taxel/immunotherapy regime. For part of my infusions, they put cold gloves on my hands to reduce the risk of neuropathy there, but didn't offer anything for the feet. They suggested I go online and purchase my own cold socks to wear during treatment. Last week my toes started feeling numb and then yesterday my heels started feeling sore when I walked. I walked a bit at the shops this morning and my feet felt odd the whole time. I'm assuming this is all related to neuropathy and I must admit I'm a little freaked out. I've purchased some cold socks now online and will start wearing them during treatment, but I'm worried what damage has been done already. Be interested to hear what experiences others have had with this, what they've done about it and whether it has resolved after treatment finishes. (NB I'm putting this in the general discussion arena as I thought it may not be simply TNBC related?) Kathy
Chemo Tablets?
Hi all. I was diagnosed Triple Negative in late Nov 2023. Went straight on to Chemotherapy with lots of negative reactions, including anaphylaxis. Then had Surgery to remove lump and one lymph node which was all clear. Just finished 4 weeks of Radiation. Now my Medical Oncologist wants to put me on Capecitabine tablets for 6 months. I can't seem to get a straight answer as to why I need this as well as everything else. I was just starting to feel a bit more 'normal' and looking forward to life again. Has anyone else used these tablets that can give me an honest opinion. Thank you.
Constipation
most of the threads I can find about constipation are quite old so thought I would start a new one . Having just spent a very uncomfortable Friday / night at home, followed by fun Saturday in emergency, and a Saturday night in the short stay unit with the worst constipation ever am looking for some tips advice on how others have managed this going forward Generally I am a good popper , once a day (give or take) and have a faulty good diet. But this round of chemo that went in Monday had upset my whole system So love to hear how others have coped what food to eat / not to eat , drink , drugs etc
Side effects and work
New to the group (TNBC) and have had my first round of Keytruda, paclitaxel and carboplatin. It seemed to go as ok as I can expect. I am very very hungry all the time though - is this the steroids or the treatment? Also do the side effects kind of stay the same each round or do they get progressively worse? I imagine I'll get more and more tired but if I don't have nausea right now, is that for example something I might luckily miss?
Red devil
Hello I’ve just completed 12 rounds of chemotherapy Paclitaxel weekly with carboplatin combined every four weeks i have coped really well but am now about to start 2 drugs every 2 weeks for four treatments one of them being Doxorubicin. I have been doing some research because I have been told to go for a agated blood pool scan on my heart And I have to say the side effects have me frightened. Im 47 and have a grade 3 triple Negative early stage breast tumour
Itchy Hands and Feet
Hi all, I finished Chemo (FEC-D for TNBC) early January followed by 15 rounds of radiation which I finished late February. About 2 months ago I developed itchy hands and feet. Some days they really flare up, my hands and feet often feel swollen. It subsides and then it’s back again. I often get hive like spots, occasionally on random parts of my body as well as my hands and feet. At one stage a could barely walk and the strength in my hands seems weak at times. I’ve been prescribed creams and antihistamines, which ease it but not cure it. My GP and Oncologist can’t decide whether it’s chemo related or not. Has anyone else experienced these symptoms.Itchy scalp, sunblock
I was hoping one of you lovely ladies would know where I can look for information on products and remedies that are safe to use during chemo therapy. I had my first FEC dose on Monday, came out in a red rash through my scalp, chest and breast (has improved heaps) but my scalp is seriously itchy. I had itchy scalp issues before chemo and do expect it to get worse, wondering if there was anything I can use for temporary relief that doesn’t cause more problems. Also, I have sensitive skin, I need a sunblock that won’t irritate. Is there a ‘recommended go to’ site out there that might answer my questions, without trolling google and coming across avoidable information. Thanks in advance xxx
Vent & AC Side effects...
So this is my second year in the trenches. Was diagnosed with a sarcoma in my saliva gland last year, had surgery & radiation & pretty much got through it on my own. Went back for a one year post scan & that’s when they picked up the triple negative lump. Tried to still work through the first cycle of chemo but am running out of steam. Started my first dose of AC today & am headachey, dizzy & nauseous. I’m very sensitive to medication (generally try to take as little as possible, had to skip 2 doses in my first cycle & ended up only taking 1/2 of the carbo) But I feel so crap/over it atm that I want to take all the anti side effects meds (panadol, Zantac, maxolon) Ive not taken maxolon yet, the handout suggests I take it the day after...has anyone taken this? Thoughts?
Prickly sensation over body post treatment
Hi there I was diagnosed with stage 1 TNBC April 2017. Completed surgery, followed by 4 cycles AC and 12 cycles Taxol and Carbo + 5 weeks radiation in February this year. However, in late February, I started getting this horrible prickly sensation all over my body whenever I got hot - sun, shower, gym. As soon as I'm out of the heat, it goes away. Has anyone else experienced this? Any solutions? It can be quite unbearable. Thanks in advance :smile: