Neuropathy in feet - any advice? TNBC
Hi everyone I've TNBC and am 6 treatments down with the first Carbo/Taxel/immunotherapy regime. For part of my infusions, they put cold gloves on my hands to reduce the risk of neuropathy there, but didn't offer anything for the feet. They suggested I go online and purchase my own cold socks to wear during treatment. Last week my toes started feeling numb and then yesterday my heels started feeling sore when I walked. I walked a bit at the shops this morning and my feet felt odd the whole time. I'm assuming this is all related to neuropathy and I must admit I'm a little freaked out. I've purchased some cold socks now online and will start wearing them during treatment, but I'm worried what damage has been done already. Be interested to hear what experiences others have had with this, what they've done about it and whether it has resolved after treatment finishes. (NB I'm putting this in the general discussion arena as I thought it may not be simply TNBC related?) Kathy
Triple negative breast cancer
I was diagnosed with triple negative breast cancer last year and had a lumpectomy, chemo and radiation. My cancer was PALB2 positive and I had a oophorectomy 6 weeks ago to reduce risk of ovarian cancer. I was post menopausal before oophorectomy but am now experiencing significant menopausal symptoms. Anyone else experienced this and what helps?
Chemo Tablets?
Hi all. I was diagnosed Triple Negative in late Nov 2023. Went straight on to Chemotherapy with lots of negative reactions, including anaphylaxis. Then had Surgery to remove lump and one lymph node which was all clear. Just finished 4 weeks of Radiation. Now my Medical Oncologist wants to put me on Capecitabine tablets for 6 months. I can't seem to get a straight answer as to why I need this as well as everything else. I was just starting to feel a bit more 'normal' and looking forward to life again. Has anyone else used these tablets that can give me an honest opinion. Thank you.
Constipation
most of the threads I can find about constipation are quite old so thought I would start a new one . Having just spent a very uncomfortable Friday / night at home, followed by fun Saturday in emergency, and a Saturday night in the short stay unit with the worst constipation ever am looking for some tips advice on how others have managed this going forward Generally I am a good popper , once a day (give or take) and have a faulty good diet. But this round of chemo that went in Monday had upset my whole system So love to hear how others have coped what food to eat / not to eat , drink , drugs etc
Triple Negative Vaccine hopes to eliminate the disease - we need these trials in Australia NOW!
This is in the UK newspaper today - hopefully these trials will be in Australia SOON .... Maybe Ask your Onc about this ..... the sooner it starts here, the better. Triple Negative Breast cancer vaccine 'could eliminate disease by 2030' : 15 women who survived aggressive tumours are still in remission up to five years later after receiving experimental shot — now doctors believe a cure is in sight https://www.dailymail.co.uk/health/article-12140391/Breast-cancer-vaccine-eliminate-form-disease-seven-YEARS.html and another report from Dec 2022 https://www.dailymail.co.uk/health/article-11400715/Three-cancer-patients-cured-experimental-vaccine-100x-cheaper-rival-shots.html
Side effects and work
New to the group (TNBC) and have had my first round of Keytruda, paclitaxel and carboplatin. It seemed to go as ok as I can expect. I am very very hungry all the time though - is this the steroids or the treatment? Also do the side effects kind of stay the same each round or do they get progressively worse? I imagine I'll get more and more tired but if I don't have nausea right now, is that for example something I might luckily miss?The Breast - scientific papers on all types of BC & conditions .... a great resource
I have found these Very recent publications re breast cancer & related topics .... there are many topics covered. ALL Volumes (about 6 articles in each volume), and about 6 'volumes' a year .... https://www.sciencedirect.com/journal/the-breast/issues The Aims & Scope of the Website: You can put any subject in the 'search' area - I put in Invasive lobular & these results came up .... recent scientific papers. https://www.sciencedirect.com/search?qs=invasive lobular
UK trial
A trial is being conducted in the UK using aspirin as part of treatment for triple negative breast cancer. The article emphasises the trial and methodology is still at an early stage and people should NOT start using aspirin themselves! Trial lead Dr Anne Armstrong said: "Not all breast cancers respond well to immunotherapy. "Trialling the use of a drug like aspirin is exciting because it is so widely available and inexpensive to produce. "We hope our trial will show that, when combined with immunotherapy, aspirin can enhance its effects and may ultimately provide a safe new way to treat breast cancer." Co-researcher Dr Rebecca Lee said their lab findings suggested that aspirin can make certain types of immunotherapy more effective by preventing the cancer from making substances that weaken the immune response. "We hope aspirin can dampen down bad inflammation so the immune system can get on with the job of killing cancer cells," she said.
