Scar Tissue
Hello Members, I am new here. I had bc in my left breast in 2018. After 18 rounds of radiation I was all clear. I am just wondering whether anyone else here has pain that radiates from under their ribs up to under their breast. This started for me about 8 months after radiation with just a stabbing pain in my upper belly under my ribs if I deep laughed. It has now progressed and when I get the pain it moves from the upper belly up to the breast. I have had X-ray, ultrasound which were all clear and the GP thinks it is scar tissue. Has anyone else had treatment for this? Your feed back/thoughts would be appreciated.
Abemaciclib and hair loss/thinning
Hi lovely ladies I have metastatic BC (adenocarcinomas in chest wall) and have recently switched from Pablociclib (as my immunity was being significantly impacted and ended up with cellulitis and sepsis as a result) to now Abemaciclib with the monthly Fulvestrant injection. I have only been on abemaciclib now for 4-5 weeks and my hair has thinned significantly all of a sudden...after losing my hair twice with two lots of chemo in 10 years I am now quite fond of the hair I have grown since my last chemo. Sounds silly but with everything else I don't want to lose my hair again. My beautiful BC nurse advised this would likely happen but everything you read suggests it will only stop thinning/disappearing when you stop the abemaciclib..potentially that won't happen. Can anyone share what has happened to them please in this regard - much appreciated thank you :)
It’s been awhile . Lobular and scans
I just wanted to touch base and say hello. I was diagnosed 2018 Denovo ILC to GI tract. First line of treatment Ribociclib/ Letrozole was on this for just over 5 years . Well tolerated until I could not handle the constant nausea. I am now on monthly Fulvestrant injections , on and off for a year or so . I did 10 weeks in Europe last year and had a break . Other than site soreness and constant nausea I’m doing ok . Unfortunately my Lobular does not scan well and tumour markers are useless , so symptoms are my way of knowing things are changing . Anyone else with Lobular have scanning issues ?👣 CanSTEP Study – Share Your Views! (Sydney/Brisbane/Adelaide Residents)
Are you a cancer survivor living with tingling, numbness, or burning pain after chemotherapy? Researchers want to know: Can fun stepping games help reduce these symptoms and improve your quality of life? Join the CanSTEP study – a 6-month research project by Prince of Wales Hospital and Neuroscience Research Australia. What’s involved? ✔ Home-based step training using a wireless mat (just 80–120 mins/week for 16 weeks) ✔ Questionnaires & assessments on symptoms, balance, and cognition ✔ Random allocation to training or usual care (with option for training later) Who can join? ✅ 18+ years old ✅ Living in Sydney, Brisbane, or Adelaide ✅ Finished chemo at least 6 months ago ✅ Experiencing neuropathy symptoms affecting walking ✅ Able to walk 10m without an aid ✅ Have internet access 📞 Call +61 433 260 799 📧 Email braden.mitchell@flinders.edu.au or katia.ferrar@flinders.edu.au Or contact A/Prof Jasmine Menant at (02) 9399 1267 or j.menant@neura.edu.au Approved by South Eastern Sydney Local Health District Human Research Ethics Committee. 👉 Interested? Comment below or reach out today!👣 CanSTEP Study – Share Your Views! (Sydney/Brisbane/Adelaide Residents)
Are you a cancer survivor living with tingling, numbness, or burning pain after chemotherapy? Researchers want to know: Can fun stepping games help reduce these symptoms and improve your quality of life? Join the CanSTEP study – a 6-month research project by Prince of Wales Hospital and Neuroscience Research Australia. What’s involved? ✔ Home-based step training using a wireless mat (just 80–120 mins/week for 16 weeks) ✔ Questionnaires & assessments on symptoms, balance, and cognition ✔ Random allocation to training or usual care (with option for training later) Who can join? ✅ 18+ years old ✅ Living in Sydney, Brisbane, or Adelaide ✅ Finished chemo at least 6 months ago ✅ Experiencing neuropathy symptoms affecting walking ✅ Able to walk 10m without an aid ✅ Have internet access 📞 Call +61 433 260 799 📧 Email braden.mitchell@flinders.edu.au or katia.ferrar@flinders.edu.au Or contact A/Prof Jasmine Menant at (02) 9399 1267 or j.menant@neura.edu.au Approved by South Eastern Sydney Local Health District Human Research Ethics Committee. 👉 Interested? Comment below or reach out today!
