It’s been awhile . Lobular and scans
I just wanted to touch base and say hello. I was diagnosed 2018 Denovo ILC to GI tract. First line of treatment Ribociclib/ Letrozole was on this for just over 5 years . Well tolerated until I could not handle the constant nausea. I am now on monthly Fulvestrant injections , on and off for a year or so . I did 10 weeks in Europe last year and had a break . Other than site soreness and constant nausea I’m doing ok . Unfortunately my Lobular does not scan well and tumour markers are useless , so symptoms are my way of knowing things are changing . Anyone else with Lobular have scanning issues ?
Abemaciclib and hair loss/thinning
Hi lovely ladies I have metastatic BC (adenocarcinomas in chest wall) and have recently switched from Pablociclib (as my immunity was being significantly impacted and ended up with cellulitis and sepsis as a result) to now Abemaciclib with the monthly Fulvestrant injection. I have only been on abemaciclib now for 4-5 weeks and my hair has thinned significantly all of a sudden...after losing my hair twice with two lots of chemo in 10 years I am now quite fond of the hair I have grown since my last chemo. Sounds silly but with everything else I don't want to lose my hair again. My beautiful BC nurse advised this would likely happen but everything you read suggests it will only stop thinning/disappearing when you stop the abemaciclib..potentially that won't happen. Can anyone share what has happened to them please in this regard - much appreciated thank you :)