Long term Herceptin
Hi was just wondering how long people have been on Herceptin and how they are doing? I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying would much rather be flat. So far everything is stable and the Herceptin is what they call maintenance dose to keep me stable. hope everyone is coping as well as they can ❤️❤️
Extreme weakness!
Ladies please tell me this won't last ,, im only a week into my first cycle and im struggling to be on my feet for more than a minute or two. Thursday I could barely lift my head to drink. Is it the Docetaxel, Cisplatin and Herceptin? My Oncologist must think im a super hero.. No nausea as yet, but mild belly pain and thank goodness for Gastro stop 😁 mild to ouchy bone pain and muscle aches,, and thismorning my toes are a bit tingly lol these I can handle, its the feeling of exhaustion after a trip from lounge to loo thats getting me down.. I'm incapable of doing anything for myself.. I was not prepared for this!! I know you ladies won't look at this post as a winge, I just wanted to share my experience and possibly help other ladies who are about to start chemo.. I've been used to pushing through, mentally and physically for a long time (depression) im not a woman who let's small things get me down.. I didn't think chemo would be easy but OMG !! Please share with me if your struggling like me..
On herceptin and perjeta , stage 4 , itchy skin and now itchy scalp -anyone treated itch sucessfully
I’ve been on H&P for over 12 months -experiencing itchy skin for last 4 months or so. Mostly red spots on chest and shoulders/back Told oncologist and am using cortisone cream on chest and shoulders; also getting DEX with each three weekly H&P infusions . NOW have developed itchy scalp - last night I ended up getting a freezer block and putting it on my head in bed ,which whilst seeming to,help is tricky in that the freezer block does melt so end up with wet pillow. Freezer block square so doesn’t mould onto scalp properly I’ve tried taking antihistamine tabs as well , itch on back/chest better although hasn’t gone im seeing dr again this week so will ask her what I can do , but thought I’d ask if anyone here had same issues and what did you do to help ?
Preparing for Taxol/Paclitaxel
I am starting my TH regime on the 22nd of August. 12 weeks of weekly Taxol/Paclitaxel. Looking for any tips or recommendations to make this part of my journey as least unpleasant as possible. Feeling very anxious about it especially the prospect of developing neuropathy. The cancer centre has cold caps and cold gloves… are they worth the discomfort? Any other things I need to get now in preparation? Also during treatment what has made life easier for you? Skincare, shampoo, foods etc etc?Tips and recommendations during Taxol
I am starting my TH regime on the 22nd of August. I am looking for any tips or recommendations to make this part of my journey as less unpleasant as possible. Cancer centre has cold caps and cold gloves… do they actually help or are they worth the discomfort? Please hit me with your top tips. Anything from shampoos, skincare, foods to what to take with me to the infusion centre… anything to make it easier please! I am really feeling quite anxious about starting chemo. I have already had a nipple sacrificing double mastectomy with immediate implant reconstruction almost 4 weeks ago. Thank you 💕
TDM1 - what to expect
Hi, Am post neoadjjuvant therapy, mastectomy and ALND for 2 separate tumours, one HER2+ and the other HER2-, both estrogen and progesterone positive. 1 lymph node positive. I had near complete response to treatment (<1%) and a tiny mass still in the lymph node. Recommendation is to switch from Herceptin to TDM1. I see the oncologist on Monday for further information and to start this new drug. Any experience with side effects and what to expect would be appreciated. Although I know they do this for any residual disease, there was so little that you do start to question the need. So would appreciate both good and bad view just to get myself prepared. On another note, my breast surgeon discussed CTK4/6 with an AI. This was not even on my radar. I will find out more on Monday but very curious and like to have knowledge to make the best choices. Love to hear from anyone who has experience in these treatments. Best wishes to you all.
26 & in complete shock
I never thought I would hear the words.. let alone at 26. I have been recently diagnosed with Stage 2 Triple Postive beast cancer after finding a 3.5cm lump in my left breast & lymph node spread after further testing. Although I have family history, my Aunty & grandma were diagnosed with estrogen Postive breast cancer. I guess I wanted to reach out & see if anyone has been diagnosed under 30 with a HER2+ with little family history… I just feel so alone, I’m the youngest person at the cancer clinic. I am two chemotherapy sessions in & I feel like I’ve been in survival mode since I heard the words. So much to wrap my head around - losing my hair, not working, being so sick, seeing my family so upset.. willing to take any suggestions on processing my new normal!
I think I am reading too much :(
Morning everyone. I am reasonably new to this cancer world and still in the overwhelmed stage. I had a right breast mastectomy on NYE and the pathology report showed nothing in lymph nodes, but small invasive cancer in breast tissue. I am oestrogen and HER2 positive. I had first of 12 weekly paclitaxel chemo treatments on Wednesday. I started Herceptin last week (every 3 weds for 12 months) and will start goserelin (zoladex) next week (every 4 weeks for 5 years). I have been reading so much from this site and others and have delved into various posts on this forum and what I'm reading is making me feel quite low. The side effects that you are all experiencing on the hormone suppressant drugs read like a horror movie. It makes me wonder if it is worth it before I've even begun. I am 46 and until BC hit I was playing competitive sport 3 times a week, walking 5km a day and teaching full time. With all my reading I now fear that in a few months I'll have the body and mind of an 80 yr old and I'm not coping with that. I know it is different for everyone, but I've not heard anyone say that that the side effects aren't bad or that they have been able to continue their lives as before. I'm already grieving for the life I used to have and I'm struggling. I am usually so positive. I'm definitely not doom and gloom, but today is not a good one for me. Not sure what I am expecting people to say, I just needed to get it out. Thanks for listening x
