On herceptin and perjeta , stage 4 , itchy skin and now itchy scalp -anyone treated itch sucessfully

Only on Herceptin, and no side effects at all, sorry. I do hope you find a solution soon, best wishes. 

Yes I think it’s the perjeta causing the issue -when only on herceptin before stage 4 diagnosis , I didn’t have these issues 

@noosa_blue150 I have the same thing but not on my head. My Onco told me it wasn't related to  the herceptin/perjeta and to go see my GP. My GP told me it was related to the herceptin/perjeta. The nurses in Oncology day ward told me it was common and to just continue with the twice daily antihistamines and urea cream. I also have a bath once a week with coconut and argan oils. The bath seems to help the most giving one or two days relief. If you find an answer I would love to hear it. I start at my new Onco this week so maybe she can illuminate further. I have been on the herceptin/perjeta mix for nine months this time around. I was on herceptin in 2018/19 for twelve months and got an itchy torso but it only lasted for a couple days after each treatment back then. This time it sticks around permanently.

Update - saw the oncologist today .she said that perjeta sites don’t report itchy skin issues as side effects BUT she’s now hearing from various patients about it . Nurse practioner friend mentioned to,me a topical corticosteroid lotion called Novasone , so oncologist wrote out a prescription for me to,try .suggested applying nightly ( will probably mean I’ll,have to wash hair daily again but …..) . She suggested stopping use if itchiness stops . I’ll report back in a few weeks 

Sorry to hear about the itchy skin @noosa_blue150 and @Blossom1961 .... when my husband's chemo caused the same, we actually used CORNFLOUR on him & it really helped take the edge off it!!   

I'd stand him in the bath or shower & would sprinkle it all over the affected areas & gently rub it in  (which was most of him!) then after he put his clothes back on, I'd just run the water & rinse it off the bath/shower - as it sort of dissolves quite easily!   Definitely worth a try ...  

A bit trickier for your scalp tho :(   You could try it ..... 

I hope it works for you @noosa_blue150. I am unable to use steroids but will give the cornflour a try @arpie.

@noosa_blue150 How is it going? Does the cream work. My head has now started itching. 

Last night: Scalp itches. Don't scratch, don't scratch' don't scratch, arrrrgh, scratch scratch scratch. ETC, ETC, ETC. Finally I gritted my teeth and stopped scratching. Fifteen minutes later the itch subsided enough to get drowsy and sleep. That was a hard fifteen minutes.

@arpie I tried the cornflour on my body and it helped although I did have to explain to the nurse why I had all these white bits on me lol. 

I just read that applying apple cider vinegar helps so I will try that before bed tonight. Will let you know how I go.

Why does this targetted therapy have ongoing side effects? During chemo the side effects would last a week then continue to subside until the next treatment. These side effects just keep on giving for the full three weeks between treatments.

I used it for several days and scalp itching has stopped.fingers crossed . Skin on shoulders still itchy on occasion, I’m going to try taking antihistamine daily in am and see how that goes 

I have just pickled my head. Results tomorrow.

Interesting. No itch last night. Will try again tonight. In meantime, I am going to pickle my ankles and arms. Pity hubby doesn't like vinegar