Forum Discussion
noosa_blue150
3 years agoMember
On herceptin and perjeta , stage 4 , itchy skin and now itchy scalp -anyone treated itch sucessfully
I’ve been on H&P for over 12 months -experiencing itchy skin for last 4 months or so. Mostly red spots on chest and shoulders/back
Told oncologist and am using cortisone cream on chest and shoulders; also getting DEX with each three weekly H&P infusions . NOW have developed itchy scalp - last night I ended up getting a freezer block and putting it on my head in bed ,which whilst seeming to,help is tricky in that the freezer block does melt so end up with wet pillow. Freezer block square so doesn’t mould onto scalp properly
I’ve tried taking antihistamine tabs as well , itch on back/chest better although hasn’t gone
im seeing dr again this week so will ask her what I can do , but thought I’d ask if anyone here had same issues and what did you do to help ?
Told oncologist and am using cortisone cream on chest and shoulders; also getting DEX with each three weekly H&P infusions . NOW have developed itchy scalp - last night I ended up getting a freezer block and putting it on my head in bed ,which whilst seeming to,help is tricky in that the freezer block does melt so end up with wet pillow. Freezer block square so doesn’t mould onto scalp properly
I’ve tried taking antihistamine tabs as well , itch on back/chest better although hasn’t gone
im seeing dr again this week so will ask her what I can do , but thought I’d ask if anyone here had same issues and what did you do to help ?
31 Replies
- Blossom1961MemberGreat news @noosa_blue150. QV eczema wash and lotion is stopping me from going more loopy than I already am (not sure if that is possible 🤪). I use the QV flare up cream for the individual break outs. My skin is now extremely dry and splitting so I make sure I load that lotion on twice daily. Around my fingernails and my feet are the worst so I also use heel balm and hemp hand moisturiser.
- noosa_blue150MemberJust an update fter being reviewed by dermatologist . I did have a bit of dandruff , and apparently that yeast can cause seborrhoic dermatitis . Dermatologist has me on good anti dandruff shampoo ( nizoral 1%) daily for 7 days, then every couple of days. When foaming, spread foam over back and arms where the scaly bits are . They have definitely improved . I still have novasone lotion which I’ve used when itchy on neck and elbows (oddly, no scaly bits there and that’s where I itch the most now ). Itchiness has improved. She also said to use QV wash , and she recommended La Roche Posay cicaplast baume B5 moisturiser .Learnt a lot about dandruff ! It’s a yeast , opportunistic skin issue .
anyhow my skins better -I’ll stay with Dex on day of H&P infusions , and hopefully things will improve - cranky_grannyMember@Blossom1961 great news. Beside the anti histamine i use my grandsons eczema cream and wash. Its alway good when you finally find something that works. Now I don’t looked quite so much like a snake shedding its skin and red areas are completely gone.
- arpieMemberThat's wonderful!!!
I hope it keeps working for you, @Blossom1961 - as the itch is just so horrible & almost impossible not to rub or scratch, often to bleeding :(
Take care xx - Blossom1961MemberRelief! The EGO QV Eczema body wash and body lotion is working. I do the shower wash each morning followed by the body lotion all over. In the evening I smother the body lotion all over me again. Time consuming but so worth it. I had the occasional itch yesterday but not bad enough for me to need to scratch it. I can visually see the improvement in my rashes. They are shrinking and not as inflamed. I am hopeful it will last.
- D_Tizzle53Member@Blossom1961 it sure is horrible. I'm surprised your Doc said what they did as it is documented in the literature that it is a side effect. I have just contacted the oncology unit and the after hours number for my Oncologist. If i find out anything more I will let you know. Take care, Danni
- Blossom1961Member@D_Tizzle53 It is horrible and something that we are not told about prior to treatment. I have actually been told it wasn't the treatment and to go see my GP. Pfffft. I wish I could help but am in the same boat. I had a EGO QV Flare up bath yesterday, followed by the QV eczema lotion. I got five hours relief which was lovely. Then itch started again. I had a shower this morning using the QV wash, followed by the QV lotion again and at the moment I only have one itch on my belly. I tried all those things you are on with no success. I have increased my water intake and today I am going to up my probiotics as that is supposed to help. I will definitely let you know if I find success. Once again, for me, aloe vera gel is a reasonable short term solution. Sending big hugs. One other interesting thing, I thought my sheepskin boots would flare up my ankles, but it seems to relieve them ????????
- D_Tizzle53MemberI finished Herceptin & Perjeta on 1st March & was told the itch should start to subside - it has worsened significantly. I take 2 antihistamines, dexmethasone. Apply novasone, moo goo msm cream & ice packs. I'm waiting to hear from oncologist or breast care nurse as nothing is controlling it & i am scratching until I bleed. It's horrible
- Blossom1961MemberApparently .15% of people on Herceptin get eczema. "Lucky" me.
- Blossom1961MemberMy itches are now eczema. Nothing works 100%. Aloe vera gel helps, needs to be reapplied every hour or so. Currently trying out EGO Eczema wash and lotion. So far it seems okay. Need to reapply a couple times then it lasts for a few hours. I have stopped the Perjeta but the eczema continues. Looks like I am stuck with it. I am on Herceptin long term. Let me know how you go.