Forum Discussion
TDM1 - what to expect
Hi,
Am post neoadjjuvant therapy, mastectomy and ALND for 2 separate tumours, one HER2+ and the other HER2-, both estrogen and progesterone positive. 1 lymph node positive.
I had near complete response to treatment (<1%) and a tiny mass still in the lymph node.
Recommendation is to switch from Herceptin to TDM1. I see the oncologist on Monday for further information and to start this new drug.
Any experience with side effects and what to expect would be appreciated. Although I know they do this for any residual disease, there was so little that you do start to question the need. So would appreciate both good and bad view just to get myself prepared.
On another note, my breast surgeon discussed CTK4/6 with an AI. This was not even on my radar. I will find out more on Monday but very curious and like to have knowledge to make the best choices.
Love to hear from anyone who has experience in these treatments.
Best wishes to you all.
Am post neoadjjuvant therapy, mastectomy and ALND for 2 separate tumours, one HER2+ and the other HER2-, both estrogen and progesterone positive. 1 lymph node positive.
I had near complete response to treatment (<1%) and a tiny mass still in the lymph node.
Recommendation is to switch from Herceptin to TDM1. I see the oncologist on Monday for further information and to start this new drug.
Any experience with side effects and what to expect would be appreciated. Although I know they do this for any residual disease, there was so little that you do start to question the need. So would appreciate both good and bad view just to get myself prepared.
On another note, my breast surgeon discussed CTK4/6 with an AI. This was not even on my radar. I will find out more on Monday but very curious and like to have knowledge to make the best choices.
Love to hear from anyone who has experience in these treatments.
Best wishes to you all.
2 Replies
- So sorry to see that you've joined our select little group, @SXC1947 ... but you are in the right place for support and information from those who've been thru it already.
Mine was pretty straight forward, lumpectomy, rads & AIs .... and haven't had any of your treatments, so sorry, can't help you there xx. I am sure others will jump on shortly who can help xx
In the meantime - check out this post - there is a lot of info on different areas of the forum that may be of interest to you xx We compare gardens, pets, art & craft & even manage to have a laugh now & then too
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latestd
take care & all the best with your ongoing treatment - Hi @SXC1947, thankyou for recently joining the Online Network. While we wait for responses from other member's own experiences; you may find the below information from My Journey useful:
Targeted therapies for early breast cancer
