Just need to talk to someone
I’m 59yo and newly diagnosed with breast cancer. I’m really not sure I get what is going on either because I’m just slow or it’s just not all clear yet so I feel confused, in total panic and that I’m drowning and there is nobody to save me 😢 I am waiting for an mri this Thursday. I have a 10cm Not Special Type Grade 1 something positive to do with hormones and her2 1+. The surgeon says mastectomy is the only choice because of the size. There isn’t anything clear about what happens after that… is that how it’s meant to be? I just feel very lost appreciate any words of wisdom for these circumstances? susan
Triple negative recurrence
Hi I was diagnosed with Triple Neg last March 2024 and finished chemo and radiation end Sept. I got through it all fine-not too many side effects bar the usual and I was exercising, eating well, and feeling positive about it not returning but then in November I felt a lump but wasn't too concerned I thought is was just fibrous tissue post radiation but it has returned and not only that I now have a small oestrogen postive one in the other breast. In a week and a half i have gone from ultrasound, PET scan biopsy and starting chemo last week and had 2nd one today. As well as immunotherapy and a double masectomy when chemo has finished. I'm just finding it quite hard to cope with this time (even though) the PET scan shows it hasn't spread anywhere. I was so strong last time but this time I feel like the rug has been pulled out from under me and I'm finding it hard to stay positive. I sat and just had tears running down my face for a lot of the chemo today. I didn't really feel the need to use BCNA much last time but this time I think I need some extra support. Thanks for listening, just nice to know there are people out there who can empathise with how I'm feeling. Take care.
Working while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told I’d be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still don’t have a date for surgery (I should find out tomorrow hopefully). My question is about how you’ve all kept sane during this ‘limbo’ period. My emotions and anxiety are all over the place, I can’t really focus or concentrate so I’ve taken a fair few days off work. I’m lucky enough that I can work from home (when I’m up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. I’m conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.
Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you xNew diagnosis metastatic breast cancer
Hi, I'm all very new to this being diagnosed only 7 wks ago with stage 4 metastatic breast cancer (triple positive) which has spread to my bones. I am 51 with 2 children. I had only had my first mammogram 18 mths previous which was clear. I felt unwell at work & went to hospital and they found it looking for something else. It has been such an overwhelming process. My family & friends have been amazing but am feeling so very alone.Returning to work and finding the new normal
Hi all, I was diagnosed with stage 2 IDC, ER and PR positive in January last year (2025). I had 2 lumpectomies followed by a mastectomy, then chemo and radiation. Radiation finished in October and now I'm on Tamoxifen. I've been off work since right before my mastectomy (thanks income protection insurance!), and I'm planning to return to work in a month's time. By that time I will have been away from work for just about 12 months. I'll be doing a phased return to work, I work for a large organisation and my employer is very supportive. I'm really nervous about returning to work. My job is pretty mentally demanding and can be stressful with pressure and tight deadlines. I'm really worried that my brain fog won't allow me to do my job effectively. I know I'm not going to be able to multitask at all. I don't feel like the same person I was a year ago and I'm concerned I won't be able to cope, that I'll embarrass myself and damage my reputation. Has anyone else had a similar experience with a positive outcome to give me some hope? Or any advice about managing brain fog and a demanding job? TIA Bec :xSo confused, scared and teary
Hi all, I was just diagnosed yesterday with DCIS intermediate grade 2 and told to get off my HRT patches immediately. I have 3 areas in the one breast so I think i will need a masectomy. I have been contacted by Peter Mac in Melbourne regarding my referral and just waiting on confirmation of my appointment date. My brain is saying if I had to have cancer this is the one to get but my emotions are being ridiculous, so teary inside but cool and calm on the outside trying to support everyone else. If I do need a masectomy i want to have reconstruction surgery on the same day with a small implant but Im so worried as 6 months ago I was let go at work due to business downsizing and ive really struggled to find another job, my mum has just passed away and any savings I had have helped with the funeral etc so basically I am seriously going through hardship and only just paying my rent on my job seeker payment. I am so scared that I will find out going through this process there are some unexpected charges that arent included, all the sites say peter mac is free and I am bulk billing but Im so scared that my health is going to held back due to financial stress. Has anyone had this process done at peter mac, chose the medicare bulk billing option and was their reconstruction covered? Sorry Im really rambling here but its so much easier to type this to a stranger than someone I know. xxxxx
Preparing for DMX and DIEP Flap reconstruction
Hello and first of all I’m sorry that any of us are on this forum and going through the Sh-t Show…. I have surgery end of Jan 2026. I’m going to hire a recliner chair, I’ll purchase button up pjs and shirts. What else can I do? Does anyone have handy tips? High protein recipes that help with recovery? If you have a website of recipes that you can recommend that would be much appreciated. Is there any exercise I should be doing? With a month to go I’d like to do anything I can. Thank you all and with my kindest regards.Christmas emotions
This was my first Christmas with cancer and it definitely felt different. I have been pretty good lately about not worrying about the future but I was quite emotional Christmas morning. I kept thinking how many more Christmas's do i have left & will I ever get to be a grandma watching my grandchildren open their presents?? And I also kept thinking about this time last year, I was thinking life was good, but I had cancer & didn't even know it. Just a mixed bag of emotions.
