Member: Karenp23 | BCNA Online Network

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Re: Post chemo hair ....everywhere!!
@Ddon this has happened to me also 😒 I'm not normally a hairy person but my face, ears, for head have white downy hair. My eyebrows grew out of control and now I'm losing some on the ends so I have half brows ATM really weird!
6 years ago Place Side effects
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Neuropathy feet and fingers
As of tomorrow this will be my last dose of paclitaxel 👏👏 although I have had neuropathy in my feet and fingers, has anyone experience swelling with theirs? My fingers ankles and toes swell up usually by the end of the day you they are worse and one of my finger nails is really sore I bump it and holy cow its like when you have squashed it in a door.
6 years ago Place Side effects
nails
pain
peripheral-neuropathy
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Chemo brain
Hi everyone, just need to let some thing off my chest. I'm starting to feel my chemo brain is taking over in a lot if things especially at work.I feel so dumb some days are OK others not so. I kinda want to hide under a rock coz I messed up something or cannot piece a sentence together on a email. 😭 so frustrated
6 years ago Place Side effects
chemotherapy-side-effects
cognitive-impairment
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Chemo Brain
Just a rant to get it off my chest. I'm suffering from chemo brain, I was almost in tears today at work as one of my colleagues was getting frustrated with me because , I was fumbling words and not giving her information she needed quick enough and I forgot that we needed 4 water bottles replaced I told delivery guy we only need 2 as that's how many empty bottles we had in the office. I knew she was angry with me and made things quite awkward as she was the going to everyone else for assistance so she didn't have to ask me. Hoping tomorrow will be a better day.
6 years ago Place General
chemotherapy-side-effects
coping
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Re: Final round ac has sucked the life out of me
Thanks everyone, so I ended up in hospital for two days last weekend with neutropenic colitis, and I have now discovered I have high blood sugar also and superficial blood clots in my arm. Im thinking this contributed to me feeling so drained from last round. Touch wood I dont get neutropenia again
6 years ago Place Side effects
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Re: Miracle Fruit
The fruit they are talking about is actually called "miracle berry," (Synsepalum dulcificum) . It's little red berry fruit that changes your taste receptors temporarily like for an hour or so. What ever you eat will have a sweeter taste to it, especially if sour or bitter. My work colleague had this tree in his yard and gave me some to try as my taste changed during chemo had that bitter metallic taste to most things. I tried this berry before eating and just gave a sweeter tinge to what I ate. So it's not a "miracle" cure as such for cancer patients something to help make food more tolerable to eat and variety not limited to certain foods while you on chemo.
6 years ago Place Living with breast cancer
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Re: Final round ac has sucked the life out of me
Thank you. This last one has really beaten me up. I look at any red liquid stuff now and it makes me ill just seeing it :(
6 years ago Place Side effects
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0likes
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Final round ac has sucked the life out of me
Rant only. I survived the first 2 round A C without much side effects but holy dooly the final two have really knocked me for a six! Lethargic AF and getting tingling numb feeling in my left hand fingers tips dry eyes and mouth thrush coming in at at angles. And as for eating nothing tastes good anymore ☹ and super super thirsty all the time. Getting frustrated at life in general plus have to start the paclitaxel soon which not looking forward after this episode. Cancer is crappy 🤯🤯🤯
6 years ago Place Side effects
chemotherapy
chemotherapy-side-effects
side-effects
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First AC treatment day 1
I have just had my first AC treatment today. I'm feeling ok at the moment but I guess I feel bit tired now its 6.30pm was out of clinic at 1.30pm. I feel a bit gassy though in my stomach dont feel sick tho just burping alot although could maybe contributed with the Hungry Jack cheeseburger I ate after I finished? I guess will have to see how I am on day 2 I'm hoping that it will be similar today as I have tolerated ok so far.
6 years ago Place Side effects
chemotherapy
side-effects
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0likes
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Re: I'm not hideously disfigured...
@jamavon I had a left side masectomy and like you I didn't want to look at it straight away even when the doctor came to check I turned my head away. Then l next day really need to shower so I closed my eyes first before I under dressed when I opened and looked in the mirror I was actually okay with one missing breast. And almost 6 weeks post op it I'm used it now and with the breast insert you could not tell if I had surgery or not.
6 years ago Place General
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Work and breast cancer
PUBLIC GROUP - This is a space to connect around the challenges and questions that come with managing work and breast cancer. Whether you're navigating time off, returning to work, dealing with workplace conversations, or exploring your rights and options, you're welcome here. This group is open to the public (not just members of our online network) to help broaden access to important information, practical advice, and peer support.
25 days ago17 Posts
Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.

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Karenp23

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