Teeth and jaw pain
Hello everyone, I had grade 3 stage 2b IDC, 2 lymph nodes involved and DCIS that was removed but margins involved. Left side mastectomy and axillary clearance. 4 rounds of chemo (had to stop early- toxicity) and 25 radiation, finishing end of May. I have been on Letrazole for 9 weeks and have many of the usual side effects. one that has just started and is quite sore is pain in my upper and lower left jaws. This is new and not something that I have ever had before. It gets worse when I eat hot or cold food and takes a while to settle after, then it is just like a low constant ache. Has anyone else experienced this? I send my love and best wishes to you all xoxo
Recovery lumpectomy
Hi Lovely People At the end of November I had a lumpectomy for 5 invasive carcinomas and or as I refer to them, the bloody mongrels. It was not the NST kind and they were ER++ PR++ HER2--. The combined tumours were approximately 196g so I have a long and deep scar from nipple to my underarm and I completed radiation a couple of weeks to go. So far my recovery has been “as advertised” and I still moisturising, massaging and exercising. I also got migraines due to the change in weight. This week or so though, I have experienced significant increase in pain. I’m assuming it’s the dreaded nerve pain I’ve heard about and my lymph nodes were tricky to remove. It’s just seems that the pain is everywhere in the breast not just the surgery site and arm. I’ve returned to regular paracetamol and ibuprofen routine but can’t stand the thought of a cool compress. Are there any things other people have tried for nerve pain? I would love to start hormone therapy with better health so I can monitor its side effects. Thanks for your help.
Radiation Itch
Hello wise ones, I’m 9 treatments down and of course at the start of the weekend I’ve developed an itch and my breast is starting to get tiny red dots on it. I’m using StrataXRT twice a day as recommended but I’m wondering if there is anything else I can put on it to ease the itch. Thank you in advance DebBone and join pain side effects of chemotherapy
Hi, I’m new to this group and have only just started chemotherapy. I’m experiencing strong bone and joint pain from the chemo and wondering if anyone could suggest ways to minimise this. I’m taking Panadol but it doesn’t cut through. Im also doing the scalp cooling treatment. I’ve been advised to wash my hair only once a week. Does anyone have any suggestions on how to keep it looking fresh? It looks very greasy and bedraggled.
Pain meds post mastectomy
Hi everyone, I’m 2 weeks post mastectomy and wondering how long you needed your pain meds for? I’m still taking 2 Panadol & 1 Neurofen every 8 hours & still getting pain/tightness in arm/chest is this normal or should the pain be easing off now? I have my follow up appointment with surgeon tomorrow
Drain pain
Hi all I am two weeks post left nipple saving mastectomy on left with implant reconstruction. Pathology after surgery found cancer in lymph nodes so I had a lymph clearance one week ago. I have found the recovery from the lymph surgery so much more painful and my drain site seems to be where the pain is coming from. The tube continually looks blocked with clots. The breast care nurse tried “milking” the drain today but it was so painful. Just looking to hear whether this is a common experience or whether I should be trying to get the tubes changed? Thanks all
Victoria is doing an Inquiry into women & pain - feel free to participate!
If you live in Victoria you may like to take part in this survey if you have/do experience pain of any sort - whether from your BC or anything else. .... The survey is open until 31st July 2024 ... The government wants to know what your experiences are with pain and accessing care for your pain condition. Understanding your experiences and concerns will help to inform the Inquiry into Women’s Pain and make recommendations to improve care that meets the needs of Victorian girls and women over 12 years of age. We want to hear about: the experiences of Victorian girls and women with pain. This includes all pain and is not limited to pelvic pain. the experiences Victorian girls and women have in accessing Victorian health services to manage their pain, including strengths, challenges, and opportunities for improvement. the experience of healthcare workers who work with women and girls with pain. You can fill out the survey on this page. The survey will close at 5:00pm, Wednesday 31 July 2024. If you would like to write a longer contribution to the Inquiry into Women’s Pain, please see the submissions page: Inquiry into Women's Pain submissions (health.vic.gov.au) For more information about the program of work the Department of Health is leading to change the way women's health issues are treated, please see: Women's Health and Wellbeing Program To do the actual survey - click on this link below: https://engage.vic.gov.au/project/inquiry-into-womens-pain-survey/participate
Are you experiencing pain following treatment?
Register for the Persistent pain, addressing quality of life webcast on Wednesday 7 February, 7pm - 8.15pm AEDT. Register now (and if you miss it, we will email you the recording) This webcast will address types of persistent pain associated with early breast cancer treatments, strategies to manage pain and further resources and support that may be available to you. We will be joined by three experts on the night, Professor Paul Glare, Pain Medicine Specialist, Dr Charlotte Tottman, Clinical Psychologist and Naveena Nekkalapudi, BCNA Consumer Representative. Naveena will be sharing her experiences of persistent body pain and why quality of life is paramount to her. You will have the opportunity to put forward your questions when you register or during the event. For more information about the webcast and speakers, and to register, please visit https://www.bcna.org.au/event-directory/webcasts/persistent-pain-after-breast-cancer/ Please feel free to pop any questions below in the comments or get in touch with the events team via events@bcna.org.au. We look forward to seeing you there!Pain after breast cancer
I am almost 2 years post breast cancer diagnosis and omg the bone pain is horrendous. I’m currently on Letrozole, Gabapentine, vitamin D and calcium my pain is 24/7 from my feet to my head and I’ve had a continuous pain in the middle of my back. I have an appointment to see a rheumatologist this week… but omg I just need some relief from it….I have looked in to medicinal cannabis what are everyone’s thoughts please
