Bone and join pain side effects of chemotherapy
Hi, I’m new to this group and have only just started chemotherapy. I’m experiencing strong bone and joint pain from the chemo and wondering if anyone could suggest ways to minimise this. I’m taking Panadol but it doesn’t cut through. Im also doing the scalp cooling treatment. I’ve been advised to wash my hair only once a week. Does anyone have any suggestions on how to keep it looking fresh? It looks very greasy and bedraggled.
Pain meds post mastectomy
Hi everyone, I’m 2 weeks post mastectomy and wondering how long you needed your pain meds for? I’m still taking 2 Panadol & 1 Neurofen every 8 hours & still getting pain/tightness in arm/chest is this normal or should the pain be easing off now? I have my follow up appointment with surgeon tomorrow
Drain pain
Hi all I am two weeks post left nipple saving mastectomy on left with implant reconstruction. Pathology after surgery found cancer in lymph nodes so I had a lymph clearance one week ago. I have found the recovery from the lymph surgery so much more painful and my drain site seems to be where the pain is coming from. The tube continually looks blocked with clots. The breast care nurse tried “milking” the drain today but it was so painful. Just looking to hear whether this is a common experience or whether I should be trying to get the tubes changed? Thanks all
Victoria is doing an Inquiry into women & pain - feel free to participate!
If you live in Victoria you may like to take part in this survey if you have/do experience pain of any sort - whether from your BC or anything else. .... The survey is open until 31st July 2024 ... The government wants to know what your experiences are with pain and accessing care for your pain condition. Understanding your experiences and concerns will help to inform the Inquiry into Women’s Pain and make recommendations to improve care that meets the needs of Victorian girls and women over 12 years of age. We want to hear about: the experiences of Victorian girls and women with pain. This includes all pain and is not limited to pelvic pain. the experiences Victorian girls and women have in accessing Victorian health services to manage their pain, including strengths, challenges, and opportunities for improvement. the experience of healthcare workers who work with women and girls with pain. You can fill out the survey on this page. The survey will close at 5:00pm, Wednesday 31 July 2024. If you would like to write a longer contribution to the Inquiry into Women’s Pain, please see the submissions page: Inquiry into Women's Pain submissions (health.vic.gov.au) For more information about the program of work the Department of Health is leading to change the way women's health issues are treated, please see: Women's Health and Wellbeing Program To do the actual survey - click on this link below: https://engage.vic.gov.au/project/inquiry-into-womens-pain-survey/participate
Are you experiencing pain following treatment?
Register for the Persistent pain, addressing quality of life webcast on Wednesday 7 February, 7pm - 8.15pm AEDT. Register now (and if you miss it, we will email you the recording) This webcast will address types of persistent pain associated with early breast cancer treatments, strategies to manage pain and further resources and support that may be available to you. We will be joined by three experts on the night, Professor Paul Glare, Pain Medicine Specialist, Dr Charlotte Tottman, Clinical Psychologist and Naveena Nekkalapudi, BCNA Consumer Representative. Naveena will be sharing her experiences of persistent body pain and why quality of life is paramount to her. You will have the opportunity to put forward your questions when you register or during the event. For more information about the webcast and speakers, and to register, please visit https://www.bcna.org.au/event-directory/webcasts/persistent-pain-after-breast-cancer/ Please feel free to pop any questions below in the comments or get in touch with the events team via events@bcna.org.au. We look forward to seeing you there!Pain after breast cancer
I am almost 2 years post breast cancer diagnosis and omg the bone pain is horrendous. I’m currently on Letrozole, Gabapentine, vitamin D and calcium my pain is 24/7 from my feet to my head and I’ve had a continuous pain in the middle of my back. I have an appointment to see a rheumatologist this week… but omg I just need some relief from it….I have looked in to medicinal cannabis what are everyone’s thoughts please
Recon with expanders wk 7
Hi warriors just wanted to ask if anyone had pains post 6 wk mark with expanders? I’m at wk 7 now and fully expanded and for the past 4-5 days have been experiencing dull but almost constant pain under my R boob (foob) not sure if I’ve been over doing it with my stretches or lifting heavy stuff and maybe pulled something. It’s in one spot and doesn’t move. No changes in the look of the breast. Having to take Panadol and ibuprofen a couple times each a day. Any ideas or advice welcome. I don’t see my PS for a couple weeks. x
Reacting to prescribed painkillers: Alternatives?
I am struggling with pain management during my B/C treatment. Yesterday I went to day surgery for port insertion and the procedure was fine. To manage post op pain, they sent me home with Palexia (Tapentadol) which is an opioid. In the past, I have taken Endone (Oxycodone), Tramadol, and Panadeine Forte, and all of them have made me vomit a la The Exorcist. I was told that Palexia was similar to Endone but it is less likely to cause vomiting or nausea. However, two hours after I took the tablet I vomited four times and was very dizzy :( I was told to take Olanzapine beforehand for nausea and vomiting. It stopped the vomiting but I had to lie down for two hours because the room was spinning and I felt waves of nausea. My experience does not bode well for my surgery (lumpectomy, lymph node removal, and partial reconstruction: seeing my surgeon again in October) in November. Does anyone else find they react badly to these types of drugs? If so, how does your team manage severe pain?
Recovery from Bilateral Mastectomy no recon. With Seromas. When does the pain end???
Hello. I am 53, and got diagnosed with dcis in October in right breast. We elected for a bilateral mastectomy and on pathology the right was 5x3.5x2.5 cm and the left surprise surprise had 2 patches of DCIS which didn’t show on Mammogram. I have been told I don’t need any further treatment - which I accept is ‘fortunate’. But I’m not Pollyanna, and I have lost my breasts, and I am so incredibly sore nearly 3 weeks down the track. Beginning to wonder if I will ever be pain free again?? Neurofen irritates my Crohn’s disease, and panadol doesn’t really do anything. Ive been taking Endone before bed, but still feel like I have bonfires in my chest, and its very tight. I also have MS, so that is not helping either. I accept this all happens, and its not easy for anyone. All I really want to know is, does this pain go away eventually? Is there anything that is not a tablet that has eased anyone’s discomfort ? I cannot bear wearing tight clothing. I’m having about 95ml taken off each side each week, and it feels like it fills up before I get home after the appointment. We have a holiday which has been planned for over a year, in 4 weeks, and I feel like we are just not going to get there. Its a bit of a pressure.
