Neuropathy in feet - any advice? TNBC
Hi everyone I've TNBC and am 6 treatments down with the first Carbo/Taxel/immunotherapy regime. For part of my infusions, they put cold gloves on my hands to reduce the risk of neuropathy there, but didn't offer anything for the feet. They suggested I go online and purchase my own cold socks to wear during treatment. Last week my toes started feeling numb and then yesterday my heels started feeling sore when I walked. I walked a bit at the shops this morning and my feet felt odd the whole time. I'm assuming this is all related to neuropathy and I must admit I'm a little freaked out. I've purchased some cold socks now online and will start wearing them during treatment, but I'm worried what damage has been done already. Be interested to hear what experiences others have had with this, what they've done about it and whether it has resolved after treatment finishes. (NB I'm putting this in the general discussion arena as I thought it may not be simply TNBC related?) Kathy
Starting chemo this week: Doxorubicin, Cyclophosphamide and Pegfilgrastim then Paclitaxel
Hello everyone, this week I start chemo. As I understand it, 4 cycles of Doxorubicin, Cyclophosphamide and Pegfilgrastim then 12 cycles of Paclitaxel. I am looking for any advice and tips on how to get through it. We all know that experience and side effects are all different and individual but it would help to know how others have coped. I haven't had my introduction session with the oncology nurse yet and the fact sheet is a bit scary. I am in Melbourne and will be treated at St Vincent's private in East Melbourne as that is where my medical oncologist works. For the time being I am remaining a private patient as insurance covers it. I am choosing to try the 'cold cap' to see if it will help with not losing hair but as I have fine hair and already experiencing age related hair loss, it may not work. I know it will add about 2 hours to treatment and am willing to give it a go. My plan is to take audiobooks and colouring books with me to pass the time during treatment. I'm aiming to keep busy but not taxing myself too much. At this stage I do not plan to work on treatment days but do plan to work from home other days. A friend has suggested a probiotic as a precaution as a relation and her mother used one during their chemo and found it helpful. Has anyone else found this? With the second treatment and Paclitaxel I am concerned about the possibility of peripheral neuropathy side effects due to a previous condition. I read in another post that some ladies have tried cold gloves and socks - has that worked? I will have to look into it further but am curious and want to be prepared. Thank you all for reading and any advice and tips :heart:
Paclitaxol and neuropathy - decision to stop
Hi there, What are people’s experience with weekly taxol treatment and neuropathy? I’m currently having weekly taxol + Herceptin for a recurrence of HER2+ BC. I’ve manage to do 8 taxol infusions but the neuropathy is getting tough. I’ve already had a 2 week break and steriods but the pain keeps coming back. My symptoms aren’t only in my hands and feet, I also feel like I’m being stung all over my body at times. Pressure and drying off after a shower can set it off too. My oncologist is talking about stopping the taxol and I’m meeting with her next week to discuss. Just wondering if anyone a had any experience stopping taxol early (I’m supposed to have 12) and how you felt about weighing it all up? I’m exhausted by the side effects but also want to have the best chance that this doesn’t come back a third time! Thanks!
Pacletaxil & Peripheral Neuropathy
Hello ladies, I'm wondering if anyone had peripheral neuropathy (PN) whilst having weekly pacletaxil where it became so bad you stopped early? I've completed 4 x AC fortnightly & started weekly pacletaxil on 20/12/23 planned for 12 weeks, post lumpectomy & axillary clearance for PgR & ER+ BC with 4/30 positive lymph nodes. However last Wednesday which should have been no 10 my oncologist graded my PN as a 3 & has paused tx for a week to see if it improves. My nurse coordinator discussed stopping chemo as I also developed a jugular DVT from my PICC, which I had removed. I'm now torn between finishing the last 3 chemo sessions, stopping due to the PN & the potential of some of this being permanent verses what if I don't complete the 12! Obviously I will discuss this with my oncologist & thought someone on this site may have a similar experience. Thank you for reading & happy Sunday to all the pink ladies out there 🩷
?peripheral neuropathy or something else?
I have had 5 out of 12 weeks of paclitaxel & I have a developed a burning itch particularly in my fingers (not finger tips), palms, wrists and feet. It seems to be worse with vibration/friction and will eventually settle when I sit or lie still for at least 20-30mins. Friction/vibration seems to aggravate it to the extreme, such as drying myself on a towel, driving/holding the steering wheel etc. creams don’t help as I dont have any red rash or welts or anything on my skin. Also, the friction of rubbing my skin makes it much worse. I am taking antihistamines which don’t seem to be helping at all. I have tried a couple of doctors ones. Does anyone have a similar experience with any recommendations of what helps?
Peripheral Neuropathy - Ice Packs
Moderator moved @tinypott post from activity section to 'Newly Diagnosed' tinypott Hi I’ve started my treatment now with AC sense dose which will be followed by Paclitaxel 12 doses weekly apart. Was wondering if anyone has tried the ice packs for feet and hands and if you found it successful for peripheral neuropathy. Thanks for any input November 25
What does peripheral neuropathy of the feet feel like?
I am 15 months on from my Chemo EC and Paclitaxol. My feet have felt odd, ever since. I haven't complained much about it to the Onc. I'm sure it is not a big problem for me. They feel quite normal when standing/weight bearing. But when I elevate my feet, the soles feel weird. Just not right. Almost like they are separate. But normal when standing. Does this sound like PN? There is no pain.
My peripheral neuropathy is back with a vengeance
Hello folks, I've been away a long time, trying to get on with life and deal with other health issues. I thought others may be interested in this issue that has arisen for me lately. Three years yesterday since the end of chemo, it seems that my peripheral neuropathy is back. I've had a residual numbness in the front of my feet - particularly my left foot - for some time, but put that down to worsening arthritis. The toes have gradually become more misshapen. Also increasing arthritic pain in my hands. But about six months ago, I started having burning sensations on the skin of my feet - toes, instep, ankles, and some parts of my hands. My GP ordered a range of blood tests and - other than a wobble in my thyroid levels and B12 deficiency - she said there was nothing to indicate anything other than to infer that it was a return and increase of the PN. My podiatrist said the same. I'd seen my medical oncologist for my annual a couple of months ago and hadn't mentioned it to her at that time because I hadn't thought it was related to the cancer. I was blaming arthritis. Interesting. Nothing to do except keep walking. A masseuse last week did intense foot massage and did toothpick pricking around my nails. I now do that myself most nights. She also suggested epsom salts (magnesium) foot baths. On my next shopping list. Greetings to anyone still on here that I used to "know". Cheers, Fran
Neuropathy with Taxol
Hi, I was diagnosed with 3cm Hormone positive, Her2 negative, ki67 of 40% breast tumour with no nodal involvement in June. Because of size and my wish to avoid mastectomy I went with neoadjuvant chemotherapy. First I joined a trial for palbocyclib and letrozole but after 1 month, though tumour didn’t grow, 3rd biopsy showed I was in the control as Ki67 was still the same, so my oncologist swapped me to AC-Taxol. 2 weeks into AC, my hair fell out and nails started to change colour. The latter is unusual according to specialist. I got plantar fasciitis week 4 and had to stop walking for 2 weeks : a huge blow - but the rest helped. By the end of AC my toes were so sore! Then I started weekly Taxol. I could barely walk because of my sore toes and residual PF. I keep both finger and toenails very short and finally (when shops opened again) bought a bigger pair of runners! Lovely. With the neuropathy I feel like I’m walking on crushed glass even when I’m lying down, toes numb, toenails very sore, fingernails and fingertips v sore, but the brown cuticle appears to be growing out. Other side effects: anaemia - Haemoglobin of 78 instead of 110-160 (was given blood transfusion last week), wheezy cough, tight chest (ecg and X-ray clear), muscle aches and pains, fatigue. I was so tired after yesterday’s treatment (Taxol week 7) I conked out after dinner, but the wheeze was getting to me so I went for a walk on the beach... and felt better! 😅 I’m worrying about how much of the neuropathy and wheeze is too much? How do I know if the Taxol is causing permanent damage? Yesterday the oncologist says it is my call about how much more Taxol I want to submit to given my side effects, but I’ve no idea how to judge my neuropathy symptoms and wheeze, and am worried about changing to CMF for the 5 remaining weeks.