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Well, there's that then, meta-what?
Self diagnosed lump, x-ray, mammograms, ultrasound, infiltrating mass, biopsy, estrogen +ve, progesterone +ve, HER2 -ve with follow up labs, chest pain, enlarged nodes left arm, CT scan, bone scan, biopsy 2, marker uptake in sternum and liver. Liver ultrasound tomorrow with view to biopsy, if unable, then biopsy sternum.…
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Exciting research showing possible 'on/off' switch for Mets
Exciting research being done on an 'on/off' switch for BC Mets - let's hope this one makes it thru the trial stages. Given this study has produced results from a mouse model, the timeline for introduction at the clinical level for *successfully* approved drugs and testing is closer to 12-15 years. It should be noted that…
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Brain Mets
It’s a long time since I posted here. Herceptin has been doing a great job as scans 6 months ago came back NED! In July I had a nasty fall and needed skin graft on right knee area, 3 weeks in public hospital, then another 3 in private hospital for wound care and rehab. All good until scan 14 Feb. new spots on a rib and…
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Hair loss / extreme thinning with bone Mets medication
Hello, I would really value some advice on if it is possible to overcome the hair loss side effects of medication. My hair has really thinned out in the scalp region. I have been taking both Verzenio and Letrozole for a year to manage the bone Mets. I am now starting to feel self conscious at work. I can feel the…
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Mum recently diagnosed
Hey all, I've joined this forum in the hopes of connecting with others. My mum is 69, diagnosed with breast cancer 2 months ago and now has been diagnosed with metastatic BC in spine and possibly lungs (they arent 100% sure on the lungs) as the spots are so small. Shes started oral chemo and hormone therapy today and will…
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Spinal,radiation
Hi there -seems I have joined the club that none wants to join when we get that diagnosis of breast cancer Initially it was early breast cancer diagnosed by mammogram , then chemo/lumpectomy/radiation and further kadcycla /TDM1chemoFirst post here after being diagnosed this week with bone metastases in L3 and 7th ribs. I…
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Newly diagnosed - Just need some positivity and hope
Hi Everyone. This is my first post. I am trying to navigate this network, because I know I need help. I was diagnosed with metastatic breast cancer only 5 days ago. I have many tests coming up, and treatment options. But for now, I can't seem to find the strength. I just need to hear some positive stories, some good…
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Fragility
I just wanted to share with you all that today is a sad day for my family. We have learnt that cousin, not too much older than I, has lost her battle. Primary was Breast cancer but in time her body rebelled; the duodenum was where it was detected.She is now at peace. Just a reminder how fragile we all are. Today is a…
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Anyone else on Herceptin & Perjeta indefinately???
Hi Ladies Hope everyone is doing well, it has been ages since I last visited. I was wondering if there are many out there who are undergoing herceptin and perjeta treatment every 3 weeks with no end date like myself. I have now been doing it since about April 2016 and while my side effects are fairly minimal; I have…
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I am new to the network and have metastasis
Posted on behalf of JLea Hello everyone, I am new to the network. I was diagnosed with metastatic breast cancer in 2016. I had a double mastectomy and axillary clearance and chemo. Six months ago I was found to have mets in my bones. Including skull, spine down to T10, scapulae, ribs, sternum, pelvis and femoral head. So…