-
Brain Mets
It’s a long time since I posted here. Herceptin has been doing a great job as scans 6 months ago came back NED! In July I had a nasty fall and needed skin graft on right knee area, 3 weeks in public hospital, then another 3 in private hospital for wound care and rehab. All good until scan 14 Feb. new spots on a rib and…
-
Hair loss / extreme thinning with bone Mets medication
Hello, I would really value some advice on if it is possible to overcome the hair loss side effects of medication. My hair has really thinned out in the scalp region. I have been taking both Verzenio and Letrozole for a year to manage the bone Mets. I am now starting to feel self conscious at work. I can feel the…
-
Mum recently diagnosed
Hey all, I've joined this forum in the hopes of connecting with others. My mum is 69, diagnosed with breast cancer 2 months ago and now has been diagnosed with metastatic BC in spine and possibly lungs (they arent 100% sure on the lungs) as the spots are so small. Shes started oral chemo and hormone therapy today and will…
-
Spinal,radiation
Hi there -seems I have joined the club that none wants to join when we get that diagnosis of breast cancer Initially it was early breast cancer diagnosed by mammogram , then chemo/lumpectomy/radiation and further kadcycla /TDM1chemoFirst post here after being diagnosed this week with bone metastases in L3 and 7th ribs. I…
-
Newly diagnosed - Just need some positivity and hope
Hi Everyone. This is my first post. I am trying to navigate this network, because I know I need help. I was diagnosed with metastatic breast cancer only 5 days ago. I have many tests coming up, and treatment options. But for now, I can't seem to find the strength. I just need to hear some positive stories, some good…
-
Fragility
I just wanted to share with you all that today is a sad day for my family. We have learnt that cousin, not too much older than I, has lost her battle. Primary was Breast cancer but in time her body rebelled; the duodenum was where it was detected.She is now at peace. Just a reminder how fragile we all are. Today is a…
-
Anyone else on Herceptin & Perjeta indefinately???
Hi Ladies Hope everyone is doing well, it has been ages since I last visited. I was wondering if there are many out there who are undergoing herceptin and perjeta treatment every 3 weeks with no end date like myself. I have now been doing it since about April 2016 and while my side effects are fairly minimal; I have…
-
I am new to the network and have metastasis
Posted on behalf of JLea Hello everyone, I am new to the network. I was diagnosed with metastatic breast cancer in 2016. I had a double mastectomy and axillary clearance and chemo. Six months ago I was found to have mets in my bones. Including skull, spine down to T10, scapulae, ribs, sternum, pelvis and femoral head. So…
-
New USA Drug Trial at preventing cancer cells going to bones
I've put this in the Mets Discussion area as well as general discussion - so that everyone can follow it. This could be a really important development for EVERYONE with BC to follow. This new trial sounds REALLY promising .... how good if this works & can be fast tracked all round the world. This trial comes from a…
-
Trials of new Mets Drug at Duke Cancer Institute - Bone Mets
This sounds promising .... This trial comes from a leukemia background and is now being tested on BC patients with HR+ Mets - hopefully even preventing cancer cells getting into bone marrow on patients who are currently NED (but may still have cancer cells circulating in the body.) Up to 30% of NED patients may go on to…
