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Friday Update!
Hello and welcome to the first Friday update on our new platform! Community Highlights We have 35 new members. Please welcome Poppi, LittleBird, quicknumber11, bubbleeblonde and all our new members. This week we had 37 posts and 332 comments. BCNA News & Events MammaPrint test may help some women safely avoid chemotherapy,…
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Feeling scared and uncertain
3 years ago I was diagnosed with stage 3 breast cancer and underwent a right mastectomy, chemo radiotherapy and then started on tamoxifen. Whilst always living in the shadow of it returning, I got on with life, saw my stepson marry, my son become a father and my daughter is just completing year 12. I thought I was ok. Then…
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Trials
Hello there lovely Triple Negative Sisters. Has anyone here been involved in clinical trials during their treatment ? There seems to be a lot of press about PARP inhibitors and I wonder what your knowledge of them are. I live on the Gold Coast, how many others live in SE Queensland? Who would you recommend to see about new…
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Proper Introduction
It occurred to me I hadn't done a proper introduction on here yet so here goes. I'm the mother of soon to be two year old Amelia and the wife of my very own Magic Mike ( not a stripper of course but magical for all the very right reasons). We started on this detour late August after I had some lumps we discovered…
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Shades of Grey
Now I haven't actually read shades of grey but I am sure my past week, while a feel a week in shades of grey was not as "riveting". Once of the things that stands out to me since I began this journey on 22nd February 2011 is how grey everything in Breast Cancer is. I expected medicine, science to be black and white. You…
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TDM1
I started the Th3resa clinical trial on Thursday - I was randomised to receive the study drug (thank GOD) which is TDM1. This is a drug for Her2 Positive women - currently it is mainly being researched in women with ABC but I believe there are some adjuvant trials happening in the US. It is being put up for FDA approval…
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Stable - schmable...
Hi pink ladies, Clinic today - basically the disease is stable - schmable. I'm pretty down about it. I have had all of my hopes pinned on remission. It is unlikely that this will happen. So I have to get my head in the space that stable is a good result. The CT cannot tell what is active and what is scar tissue but…
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the plan to get over the hurdle
Hi wonderful ladies Firstly let me thank you all so much for your messages of support. I haven't been able to reply individually but know they are gold to me. Devastated, shell shocked, angry, frightened, sad, desperate, hopeful, empty, bereft... there are so many words to describe the gamut of emotions I have been through…