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Struggling through Chemo
Hi all, My nurse has just introduced me to this group. I’m hoping to connect and share my story and hopefully somehow feel better. After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it! Ive got another 2 months of chemo…
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Chemo tips / hacks?
Hi, lovely ladies is update from me I done my pet scan and have good results and I got a call from my day oncologist today and they already set my treatment dates.Starting next week with paclitaxel weekly for 12 around and carboplatin. Pertuzumab,trastuzumab three weekly so 4 round Is there anything I have to bring during…
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BYO Cold Cap?
Hi all, I have just found out that my hospital (Monash) doesn’t offer the cold cap for chemo. The breast care nurse I spoke to was very disparaging of them, saying there was no evidence they worked, which surprises me as they seem relatively common in better hospitals. She said the only option was to BYO frozen caps in an…
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Questions to ask 'Post Surgery' of yourself - to your Specialists - Tick Sheets - Self assessment
I know that after my own surgery, I didn't always quite know what questions to ask of my surgeon and 'the team' that we all see regularly for the first 5 years following our treatment - so I set about looking for 'tick sheets' that would help me, as these appointments approached! I came across some really interesting…
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Update
Hi all, It's been a while since I post something. A lot has occurred since the last time I post something. Unfortunately, I was not doing well with the weekly chemo and Immunotherapy treatment. Spend all Easter break in hospital due to infection, I became hypersensitive to needles and got a PICC Line inserted which lasted…
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First 4 cycles of AC/DC done. One step at the time makes me feel like a Winner.
Hi All, Hope everyone is doing great here and managing the side effects well. I completed my 4 cycles of the AC/Dc combo package and will start with the 12 cycles of weekly taxol from mid September. Luckily for me the red devil was not too bad apart from I have lost complete taste Nd my hair is gone . The nausea and minor…
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Best skin repair products for chemo and radiotherapy
A friend of mine bought me some Rich Glen Olive balm as part of a lovely Chemo care pack. My hands and nails held up so well during AC does dense and 12 rounds of taxol chemotherapy. I also used this undergoing radiotherapy to both breasts along with Moo Goo Soothing cream and my care team were amazed even with double dose…