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Spirit-Harmony's avatar
Spirit-Harmony
Member
7 years ago

Weeping Breast

Hello Ladies, I hoping someone can help me.. I finished my Radiation treatment 2 weeks ago today.. I knew to expect that the burns would probably get worse before they got better and that was fine, But I have now developed a horrible rash which has gone over the tio of my burns, all over my breast, and now spread to my other Breast.
 I saw my Breast care nurse yesterday and she is at a loss as to what is causeing it, we changed from Jelonet to something else and stopped the sorbeline (which I don't like anyway), to see if I was having a reaction to that... 
She spoke to my rad onco, he said to try Phenergon and just use solugel, and cortisone cream on the areas that are not broken.
I had an appointment to go back tomorrow but after not sleeping much at all,  and waking with my dressings, nightie, and sheets wet with fluid, then taking 2 phenergons at 6am, changing all my dressings, and finally falling a sleep, I woke again with dressins soaked.. 
I have spoken to my nurse she wants me to come back in this afternoon, but my Onco is in a meeting so have to wait.
My nurse to photos yesterday and says that yes my breast is swollen also.
I cannot stand anything touching me, apart from it weeping and soaking through everything, it feeles like little needles.
I don't know if you can get lymphoedema in your breast can you? 
Has anyone expereinced anything like this?
 I am so tired from not sleeping and starting to feel very nauseas
I hope this all makes sense 


depression
lymphoedema
side-effects
treatment
  • Suzi_S61's avatar
    Suzi_S61
    Member
    7 years ago
    @Spirit-Harmony hi sorry to hear you are having such a difficult time atm. You can get a seroma which is fluid build up in your chest wall. They can drain it if that's the cause of the weeping. They will get to the bottom of it. It's sometimes a process of elimination. No comfort for you trying to find an answer. I suffer from quite a lot of allergies so I have been through all sorts of attempts to control outbreaks or reactions to treatments. I haven't had radiotherapy yet. I am sure they will be able to offer something to help. A last resort for me is prednisolone ( cortisone ) which usually knocks any reaction on the head very quickly. I am not a Doctor and don't know your particular problem but hope this gives you some comfort to know they will get it sorted soon. Take care xx
  • kmakm's avatar
    kmakm
    Member
    7 years ago
    Gawd, you poor thing! That sounds horrible. I hope the new strategy works and that you get a decent night's sleep. Everything's easier when we're rested. K xox
  • Spirit-Harmony's avatar
    Spirit-Harmony
    Member
    7 years ago
    kezmusc said:
    Oh dear.  That sounds nasty you poor thing.

    Antihistamine sounds like a good idea. Does sound a bit like an allergy huh?

     Mine was a little weepy right at the end and for a few days after but not to that extent. I had up and down swelling for a few weeks after as well and sometimes it would feel really hot.  Have you tried the Flamazene?  This worked really well maybe just ask your onc about it.
    xoxoxo
    Hi @kezmusc have just got back from onco and breast nurse.. they have stopped all the creams, and to just to keep it dressed and wet wirh Saline as they can't pin point what it is.. script for endone to help with pain and to hopefully let me sleep
  • kezmusc's avatar
    kezmusc
    Member
    7 years ago
    Oh dear.  That sounds nasty you poor thing.

    Antihistamine sounds like a good idea. Does sound a bit like an allergy huh?

     Mine was a little weepy right at the end and for a few days after but not to that extent. I had up and down swelling for a few weeks after as well and sometimes it would feel really hot.  Have you tried the Flamazene?  This worked really well maybe just ask your onc about it.
    xoxoxo