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I finished my Radiation treatment 2 weeks ago today.. I knew to expect that the burns would probably get worse before they got better and that was fine, Bu...","body@stringLength":"1579","rawBody":"Hello Ladies, I hoping someone can help me.. I finished my Radiation treatment 2 weeks ago today.. I knew to expect that the burns would probably get worse before they got better and that was fine, But I have now developed a horrible rash which has gone over the tio of my burns, all over my breast, and now spread to my other Breast. I saw my Breast care nurse yesterday and she is at a loss as to what is causeing it, we changed from Jelonet to something else and stopped the sorbeline (which I don't like anyway), to see if I was having a reaction to that... She spoke to my rad onco, he said to try Phenergon and just use solugel, and cortisone cream on the areas that are not broken. I had an appointment to go back tomorrow but after not sleeping much at all, and waking with my dressings, nightie, and sheets wet with fluid, then taking 2 phenergons at 6am, changing all my dressings, and finally falling a sleep, I woke again with dressins soaked.. I have spoken to my nurse she wants me to come back in this afternoon, but my Onco is in a meeting so have to wait. My nurse to photos yesterday and says that yes my breast is swollen also. I cannot stand anything touching me, apart from it weeping and soaking through everything, it feeles like little needles. I don't know if you can get lymphoedema in your breast can you? Has anyone expereinced anything like this? I am so tired from not sleeping and starting to feel very nauseas I hope this all makes sense
","kudosSumWeight":0,"postTime":"2018-10-02T19:26:57.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:depression","text":"depression","time":"2025-03-25T05:01:50.372-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:lymphoedema","text":"lymphoedema","time":"2025-03-25T05:01:55.402-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:side-effects","text":"side-effects","time":"2025-03-25T05:01:42.742-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDQ","node":{"__typename":"Tag","id":"tag:treatment","text":"treatment","time":"2025-03-25T05:02:03.081-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:110350_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":132},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hello Ladies, I hoping someone can help me.. I finished my Radiation treatment 2 weeks ago today.. I knew to expect that the burns would probably get worse before they got better and that was fine, But I have now developed a horrible rash which has gone over the tio of my burns, all over my breast, and now spread to my other Breast. I saw my Breast care nurse yesterday and she is at a loss as to what is causeing it, we changed from Jelonet to something else and stopped the sorbeline (which I don't like anyway), to see if I was having a reaction to that... She spoke to my rad onco, he said to try Phenergon and just use solugel, and cortisone cream on the areas that are not broken. I had an appointment to go back tomorrow but after not sleeping much at all, and waking with my dressings, nightie, and sheets wet with fluid, then taking 2 phenergons at 6am, changing all my dressings, and finally falling a sleep, I woke again with dressins soaked.. I have spoken to my nurse she wants me to come back in this afternoon, but my Onco is in a meeting so have to wait. My nurse to photos yesterday and says that yes my breast is swollen also. I cannot stand anything touching me, apart from it weeping and soaking through everything, it feeles like little needles. I don't know if you can get lymphoedema in your breast can you? Has anyone expereinced anything like this? I am so tired from not sleeping and starting to feel very nauseas I hope this all makes sense
"},"Conversation:conversation:110350":{"__typename":"Conversation","id":"conversation:110350","solved":false,"topic":{"__ref":"ForumTopicMessage:message:110350"},"lastPostingActivityTime":"2018-10-03T23:44:37.000-07:00","lastPostTime":"2018-10-03T23:44:37.000-07:00","unreadReplyCount":14,"isSubscribed":false},"ModerationData:moderation_data:110350":{"__typename":"ModerationData","id":"moderation_data:110350","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:110350_1":{"__typename":"Revision","id":"revision:110350_1","lastEditTime":"2018-10-02T19:26:57.000-07:00"},"ForumReplyMessage:message:110354":{"__typename":"ForumReplyMessage","id":"message:110354","conversation":{"__ref":"Conversation:conversation:110350"},"author":{"__ref":"User:user:21336"},"revisionNum":1,"uid":110354,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:side-effects"},"subject":"Re: Weeping Breast","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:110354"},"parent":{"__ref":"ForumTopicMessage:message:110350"},"body":"@Spirit-Harmony hi sorry to hear you are having such a difficult time atm. You can get a seroma which is fluid build up in your chest wall. They can drain it if that's the cause of the weeping. They will get to the bottom of it. It's sometimes a process of elimination. No comfort for you trying to find an answer. I suffer from quite a lot of allergies so I have been through all sorts of attempts to control outbreaks or reactions to treatments. I haven't had radiotherapy yet. I am sure they will be able to offer something to help. A last resort for me is prednisolone ( cortisone ) which usually knocks any reaction on the head very quickly. I am not a Doctor and don't know your particular problem but hope this gives you some comfort to know they will get it sorted soon. Take care xx","body@stringLength":"791","rawBody":"@Spirit-Harmony hi sorry to hear you are having such a difficult time atm. You can get a seroma which is fluid build up in your chest wall. They can drain it if that's the cause of the weeping. They will get to the bottom of it. It's sometimes a process of elimination. No comfort for you trying to find an answer. I suffer from quite a lot of allergies so I have been through all sorts of attempts to control outbreaks or reactions to treatments. I haven't had radiotherapy yet. I am sure they will be able to offer something to help. A last resort for me is prednisolone ( cortisone ) which usually knocks any reaction on the head very quickly. I am not a Doctor and don't know your particular problem but hope this gives you some comfort to know they will get it sorted soon. Take care 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icon"},"localOverride":false},"ForumReplyMessage:message:137924":{"__typename":"ForumReplyMessage","id":"message:137924","customFields":[],"author":{"__ref":"User:user:9632"},"revisionNum":1,"uid":137924,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general"},"conversation":{"__ref":"Conversation:conversation:137914"},"subject":"Re: Completely Rubbish.","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:137924"},"body":"Marg, @Zoffiel you have every right to whinge moan and have a temper tantrum......
I love the idea of the dunny with cactus that would be good symbolic gesture.....
could you try say a few drops of essential oil blended with say almond oil on your upper lip prior to cooking or eating to remove the smell....
hugs and energy and tissues if you want to cry.... Alice xox
","body@stringLength":"449","rawBody":"Marg, @Zoffiel you have every right to whinge moan and have a temper tantrum......
I love the idea of the dunny with cactus that would be good symbolic gesture.....
could you try say a few drops of essential oil blended with say almond oil on your upper lip prior to cooking or eating to remove the smell....
hugs and energy and tissues if you want to cry.... Alice xox
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