Forum Discussion
Myjourney
9 years agoMember
THERMAL DISCOMFORT
Hello
First time on line, so hello to everyone.
I've had breast cancer diagnosed over last Christmas, had lumpectomy with removal of four lymp nodes, I was lucky Stage two, just completed radiation treatment. Half way through I became really hot. I would wipe the sweat of my forehead.
I'm experiencing extreme thermal discomfort, it's like I'm standing next to a bonfire with searing heat oozing out of my body equally throughout the body, then a couple of minutes later I'm cold. Like sunstroke, when the fan blows over you. So I'm not sleeping as the bedsheet is too cold then I put the blanket over me then have to remove it.
The experts say it is not to do with the radiation. I don't believe it, has anyone else experienced this and will it go away and what can I do?
Thankyou...
First time on line, so hello to everyone.
I've had breast cancer diagnosed over last Christmas, had lumpectomy with removal of four lymp nodes, I was lucky Stage two, just completed radiation treatment. Half way through I became really hot. I would wipe the sweat of my forehead.
I'm experiencing extreme thermal discomfort, it's like I'm standing next to a bonfire with searing heat oozing out of my body equally throughout the body, then a couple of minutes later I'm cold. Like sunstroke, when the fan blows over you. So I'm not sleeping as the bedsheet is too cold then I put the blanket over me then have to remove it.
The experts say it is not to do with the radiation. I don't believe it, has anyone else experienced this and will it go away and what can I do?
Thankyou...
43 Replies
- primekMemberSounds weird but I found my hot flushes improved once I stopped panadol osteo. Paracetamol has an antipyretic effect...as in lowers fever...but for some it just does it without fever. You could trial nurofen for pain instead and see if it improves (I'm allergic to it sadly). I still get them but things that also make them much worse are caffeine, spicy foods and alcohol. If you smoke or use patches or nicorette gum etc also would make them worse. Just ideas that may reduce frequency a bit. I haven't found the aramatose inhibitor made my hot flushes post menopause any worse. (They were shocking during peri menopause though but lessened over 18 months). So yes...layering of clothing so you can strip down and rug up and carrying a fan is a must I think.
I understand the % given by your specialist of the benefit of aramatose inhibitor is very small. Quite different results to what most of us are given for stats improvement. (And it wouldn't be on pbs with stats that low for most). You could always try and see how you go. You might not feel any different.
Kath x - nikkidMemberI don't know @Myjourney! This is what tamoxifen does to me...but it's manageable. Sometimes I actually like feeling so hot in the middle of the night, throwing off the sheets and doona and lying there cooling down...I feel like every skin cell is alive. :/
- MyjourneyMemberOmg I am laughing so hard, that means I'm not mad, even now I'm putting the ceiling fan on for five minutes until I'm cold then I've got the hot water bottle but that really is to ease pain, then like you I just strip off lucky I live alone. But you write exactly how I'm feeling too.
Are these symptoms ever going to finish. And what can we do to alleviate them not to cause any more cancer? - nikkidMemberSounds like my hot flushes...they come on powerfully and dissipate just as quickly. I can get very hot ankles (wtf?!) and neck....it's like a furnace being fed inside me. There are times I have to just whip off what I'm wearing (when at home...) and stand naked. I've been known to stand outside in the winter cold with just a cammy on. Crazy....annoying...but I am learning to live with it. Some days are worse than others, no idea why xxxx
- MyjourneyMemberAll you beautiful people I've had two trips to Japan and back. And I did a great job, I was a little tentative and ended up telling the people I was working with so I could feel normal. I took a lot of photos of that journey, return to work and usually I look ok average, but I got two beautiful photos because the angle of the sun through the flight deck window made me look great ha..... Very exhausting work though, but pain issues have to be dealt with as you can read in my HORMONE BLOCKER discussion.
- melclarityMemberGood luck with your first flight! Its the only way you will know how you will be back at work, trial and error. So be confident and be kind to you!!
@"Hopes and Dreams" am laughing about the Hot Flushes...Im currently on a trial off Arimidex and my symptoms have changed dramatically being off it!!! but it has had no bearing on Hot Flushes...uuugh!!! I still get them thats how I know for me no medication causes mine LOL, purely menopause! xo Hugs Melinda - Hi Myjourney, Same story here. I had an early menopause and wasn't sleeping due to hot flushes. Three years of feeling fantastic on an esotrogen/progesterone
troche then cold turkey with BC diagnosis last July. I didn't need chemo or radiation after my mastectomy but am on Arimidex. So welcome back to the hot flushes. Mine are face and neck only and always come at the worst moment. Usually when I am delivering some important information to a client so it looks like I am lying or embarrassed! I think I am lucky in not having too many flushes during the day, just 1 or 2, but I feel it at night. I'm constantly kicking the quilt off, pulling it up and flipping my pillow. I can't wait for winter. Without the HRT I would have had these symptoms anyway but I long for those pre-BC days of innocent oblivion! Good luck with your first flight, we will all be with you in spirit! Jane xx - MyjourneyMemberAlready submitted an official letter saying I won't be wearing my jacket as part of my uniform. Got to wear support stockings.
Three years on HRT same same, I try not to think what I've done to myself with the HRT...
I'll investigate on line for the cooling ideas.
Have to make decision Saturday with GP if I'm right to go to work Monday - scary...
I wish everyone on here was on my first flight I'd feel so much better xx - UnicornkissesMemberHot flush ideas.
Chillo pillows work for some.
Rice in a plastic bag in the freezer, put inside your pillowcase, not as sudden a cold as an ice pack and very reusable.
Google Ice vests. There is a company that make a lot of cooling products including bandannas, head wraps and vests for long distance runners etc, might have something there to help.
My hot flushes only involve my upper body and mostly my face and head, make me feel sick and anxious before passing.
I was on Premia HRT before diagnosis, 3 years of feeling wonderful before going cold turkey off them, like you, not the 5 years they say were the danger periods. A couple of weeks off the HRT and the menopause fog descended along with the hot flushes.
I feel ripped off and thoroughly pissed by it all too, so you are not alone in feeling like complaining. - MyjourneyMemberFull blood tests continually done, no thyroid problem, pretty sure it's the hormones.
Dr Hollowoway is a hormone specialist and women all over Australia have phone consults with him. I just happened to have my blood done for hormones just before the vertigo attack and found a massive drop in hormones.