AllyJay said:Hi again @Wren20 , no I didn't take anything for the neuropathy...I have three other autoimmune diseases, along with this bastardly BC and so take and inject enough as it is. The chemo also helped my scleroderma whilst taking it, but now is back to what it was before, and even a bit worse, I'd say. Methotrexate is often used for scleroderma anyway, and this is a chemotherapy drug, although I'm not on it. I knit a lot of babywear, as well as for toddlers and also adult items. Whatever takes my fancy, really. Basically...if I'm sitting...I'm knitting...I see, so no meds then ! At least not for neuropathy.....I will just have to continue on then with olive leaf, vitamin B complex, keep moving etc.. Yes! Me too...sitting = knitting, or painting, or jigsaw, or sewing, or reading....it's raining here right now...hooray !! It has been SO dry. Cheers, AllyJay, have a good day.
AllyJay said:Hi there @Wren20 ...I also have had severe peripheral neuropathy in feet and hands. Finished taxol a year ago, and I have learned to live with it. I told my onco I'd rather go into my coffin later with velcro, rather than earlier with buttons and stuck it through. I'm an avid knitter, and although I have severely swollen and stiff jointed fingers due to an autoimmune disease, as well as the numbness from the neuropathy, I still enjoy my knitting. Get through about ten 100g balls of yarn a month. Hi AllyJay....so did you take any meds to alleviate neuropathy? I do have Rheumatoid Arthritis, at least I did have prior to BC diagnosis....the BC drugs seemed to be masking or alleviating RA. Indeed, when all this numbness began, I couldn't tell if were Ra or neuro .... , what type of things do you knit with your 100g 10 balls a month ? I am now doing a vest. Have a good day, thanks for your message.
kmakm said:I am going OK thank you. Like most of us I have good days and bad days. It's the rollercoaster! It's 15 days to my bilateral mastectomy and reconstruction so I'm feeling nervous. Well done on the buttons! And the knitting. Incredible to think you could do that with numb fingers. Hope you sleep well. K xox Good morning kmakm. Thanks for your comments. This numbness stuff has just been for the last week and a half, so had all the jacket knitted, but yes ! , quite an effort to get those buttons on last night. For you, the next 15 days wait will be anxious and hard....try to keep calm, busy (as I know you would be with all you have going on with your family and yourself), distract yourself by going to a movie, a walk, dinner out with a good friend. Eat well & healthy too to help your recovery. Keep in touch. Have a great day today.
