Painful/stiff hands and feet post chemo

I am So sorry to hear your son's diagnosis & treatment @Trussy .... how heart breaking for you and the family  :(    I hope that the tumours remain slow growing & hopefully successful treatment further down the track.

Have you considered contacting Charlie Teo?  He often goes where others fear to tread with Brain surgery?  

Take care, all the best for your boy & your family xx

Easier to crack than codeine these days @Sister

So sorry to hear about your son @Trussy. Big hugs to you both. K xox (a fellow picker!)

Tell 'em to give you codeine and be done with it - it actually works unlike the other things (but take it with caution).

So sorry to hear about your son.

When they gave me the pages and pages of side effects of what the chemo could cause i remember feeling frightened and horrified...i never really gave it a thought that some of these symptoms may expand over years following 😱 stupid or what..
People think that now my chemo is over I'm good again!!
@Zoffiel that is a bloody fantastic analagy, and so true 😂
@DebbieMc you must be "a picker" like me i can never leave a scab or spot alone, big hugs to you, you sound like you've been through a lot. My son who's 23 had a craniotomy just 8wks ago, he has primary Brain cancer, unfortunately they can't remove all of his tumors but they are slow growing at the moment. Xx

I just want to hug you @DebbieMc 💜

@Trussy Hello, I had chemo in 2014 but only 4 lots & my feet were stinging & the skin went really hard so of course I pulled it off despite the pain & made it worse. :o It was hard to get shoes on & off it was so painful, after chemo finished my legs were so sore when walking & I was put on new medication to stop the cancer coming back. Well the first lot did nothing for the pain so after a year I was changed onto another new one which was no better, so for 2 years post chemo I was in a lot of pain trying to walk. Then I was put on the old Tamoxifen which stopped all the pain but couldn't stop the cancer spreading to the brain, strange as the chemo was precautionary in case there were cancer cells left yet somehow they managed to stay & move upwards. :s
Now I'm back on the new medication since a brain tumour was removed in October and another is growing and it's possibly one I took after chemo. It's not brought back the leg pain so I often wonder if it was given too close to chemo & didn't allow me to heal well enough before trying it.
I hope they can sort out the pain for you, it takes a long time for pain from chemo to go even after finishing (well it did for me) but seek help if it gets too much as it seems you already have. All the very best. x

@Zoffiel, you are hilarious.  That just about sums it all up  <3

Ya know, if chemo was a car and it was put on the market advertised solely on it's possible ability to, for example, climb a hill without providing any information about all the other stuff that can happen while you are in the vehicle, there would be an outrage.
Oh, it can also expose you to a variety of life threatening conditions and has very limited safety features. But you don't need to know about that because you bought it to climb hills.
Years of pain and mystery misery? Nah, we don't need to tell you about that. It's all about the hill climb.
Maintenance and service costs? Phhfft. We don't talk about that, and for fucks sake don't even think about warranty claims. It's all at your expense. Just remember that hill. 
Random oil leaks, brake failures and exploding air bags? Why would we tell you all about that? Not our problem because it might, just possibly, get you up the hill.

@Trussy Nope. No tests. After seeing four different doctors and numerous onco nurses about the excruciating pain without any answers, I ended up taking Ibuprofen which was a big no no. But it worked. My Oncologist then amazingly fitted me in when I explained to the medical staff that I would continue taking Ibuprofen until I could see her, no problems. I was serious, I was happy to continue on the banned Ibuprofen for as long as it took. The Oncologist then listened to my symptoms and said “that is peripheral neuropathy” That was it. Then she put me on Endone. Pfft. Didn’t work.