@Jenv asked:Does anyone feel weird, or felt weird pre chemo?....since w'end have felt just really strange like body wants to go to shut down mode...waiting one more week to start chemo. Its like when you get low blood sugar and you feel like you going to drop. Anxiety maybe, exacerbated by the breathlessness...fine if I'm just sitting (lucky i like knitting, reading and crosswords) soon as move and get active struggle to breath...but the weird stuff..ummm don't know. Light headed, cant cough, cannot bring up phlegm (yuck anyway, told thats normal for someone with mets in lung (cloudy/fluffy lung), metallic taste in mouth, coated tongue...tnought i coul eve taste pus...maybe an infection...actually took cold n flu tabs yesterday and felt heaps better.Eating, drinking and going to toilet as normal.Maybe i should ring oncologist and see what he says

JenvWhen you first get diagnoed, its like, oh, ok well we'll deal with whatever, do what necessary and that yep feeling, done it , beat it....breast care nurse, nup don't need you, wont need you.....with this recurrance she has ben my go to person, the one stable in my life who supports and guides and lets me vent....never underestimate the work these wonderful people do. Flag · Like 1Awesome LOLApril 30Commentiserbrown@Jenv I can see your posts here in the wee hours! Don't know how I can cheer you up, maybe a dumb joke! nup! You are so right in this post here the wonderful people that are our Breast Care nurses. I do hope you're a little better by the time the 10th comes around for chemo. If you're up for it post in the forum area and others will come on and talk you through and share. http://onlinenetwork.bcna.org.au/discussions Take careApril 30JenvThanks for reply...having trouble sleeping, so get up, have cup of tea and fiddle around...no one around to bother me if im on this site.Am new to this how do i post in forum area..where go to..i think i fluked it earlier.....duh, its ok just saw the link in your post

JenvI M 56 years old, my husband, Nic, and i are parents/careres to a mentally, autistic son 36 years old...the worry of him znd then the worry that i will be gone and hubby is left with it all...no guarantees in life for sure.....i am usually an upbeat get on with it type of girl but yhis recent tur in events is knocking me....HATE IT...dont do sick very well let alone dying added to that.. Flag · Like Awesome LOLApril 30CommentJenvI find it hard dealling with my family....its that over emotional involvement and soppy sentiment that i find difficult to deal with...now that my cancer has cranked up a notch its like..."how do we treat her, how do we do around her...for fuck sake, i'm not dead yet, treat me like normal...i find family, whilst they want to be there, are the biggest obstacles to contend with. Flag · Like Awesome LOLApril 30CommentJenvAfter 15 years of i guess remission, reccurrence diagnosis in May 2015 with mets in spine...plodded along nicely just on femera with monthly injection of xgeva...has now kicked up a gear where having severe breathing issues...cloudy/fluffy lung (left) ....awaiting to start chemo, 10th May, but the way i feel, i reckon i wont make it.......I'm fine just sitting and doing light stuff but any form of physical exertion, well lets just say i struggle....I'm starting to think just let me die....should i pbone incologist and tell him how i am with a view to getting the chemo started now or bide may time and just put it down to being anxious?.....this fucking thing is so deceptive, as i look fine and well on the outside...sitting here at 3.30 am as cannot sleep.

@Jenv thinking of you. I would probably suggest ring oncologist if not then breast care nurse for help. You would not be normal if you were not anxious. If you cant sleep get up get a warm drink read etc then try sleeping. just a suggestion. I love computer games even playing solitaire calms me sometimes. No quick fix your situation is hard.

Hi Jenv if breathing continues to be poor please see gp even hospital for fluid build up this does need to be drainedAll best B

Hi, recent ct scan shows no fluid build up...breathing issue seems to be from a possible met and hence why i will be starting chemo next week.....my panic and rant previously was apparently from a strong dose of dexamethesone my oncologist has put me on til i start the chemo and i just reacted badly with, much better now dose is lowered.....i was a fair bitch to everyone around me...thanks everyone for your concern xx

from the activity board... Jenv feeling weird....

11 Replies

socoda
Member
9 years ago
Hi @Jenv, like iserbrown says inner and outer circle. You never know maybe there will be some interchange of positions from one to the other with your brother in law. If not it can be disappointing and hurtful but you're better off doing your cull and keeping the positive peeps around. Big hug cause it's certainly not easy. Xx Cath
iserbrown
Member
9 years ago

@Jenv - brother-in-law can't handle it! That's fine he belongs in the outer circle not the inner circle. Discard for now and concentrate on positive people only. If that's not so easy then remember to come on here and vent away; we can smile and nod and encourage you back to some sense of normality - good dummy spit is sometimes needed!
Jenv
Member
9 years ago
You get me! You are saying everything that I'm feeling and saying to myself....i know there is going be ups and downs, but just treat like normal...I've got one brother in law who i am very close too..i mean we can just talk about anything ...but he wont come near me cos he has me 6 feet under in the ground already....well, you know what if thats ur attitude, get stuffed...need positivity.
Thankyou
melclarity
Member
9 years ago
@Jenv Glad you sorted out what it was, I think the best thing you could do is keep talking to your Oncologist, tell him exactly how youre feeling about everything! I know when I had my recurrence in 2015 I was mentally RS and for me its still a journey back so I can only imagine how you feel. As you say family are so difficult to contend with...because what you need the most is normality, to be treated normal. I Found I just withdrew from people because they dont get it and I lost tolerance for ignorance. didnt want pity just to be treated normal. Mentally and emotionally I find a much bigger battle than the physical at times. Its hard to keep going and face the next thing. I know when I did chemo I wanted to curl up and end it..the most soul destroying thing Ive ever been through in my life. Great thing Ive found about coming here, is we all just get it...and its so damn supportive....so big hugs to you for sharing! glad youve got your balance again. Melinda xo
Hopes_and_Dream
Member
9 years ago
@Jenv, this is a great place to come and rant because we competely get it! Jane x
primek
Member
9 years ago
@Jenv that's what we are here for.
Jenv
Member
9 years ago
Hi, recent ct scan shows no fluid build up...breathing issue seems to be from a possible met and hence why i will be starting chemo next week.....my panic and rant previously was apparently from a strong dose of dexamethesone my oncologist has put me on til i start the chemo and i just reacted badly with, much better now dose is lowered.....i was a fair bitch to everyone around me...thanks everyone for your concern xx
brightspace
Member
9 years ago
Hi Jenv if breathing continues to be poor please see gp even hospital for fluid build up this does need to be drained
All best B
fairydust
Member
9 years ago
@Jenv thinking of you. I would probably suggest ring oncologist if not then breast care nurse for help. You would not be normal if you were not anxious. If you cant sleep get up get a warm drink read etc then try sleeping. just a suggestion.
I love computer games even playing solitaire calms me sometimes. No quick fix your situation is hard.
SoldierCrab
Member
9 years ago
Jenv
I M 56 years old, my husband, Nic, and i are parents/careres to a mentally, autistic son 36 years old...the worry of him znd then the worry that i will be gone and hubby is left with it all...no guarantees in life for sure.....i am usually an upbeat get on with it type of girl but yhis recent tur in events is knocking me....HATE IT...dont do sick very well let alone dying added to that..
Flag · Like Awesome LOL
April 30Comment
Jenv
I find it hard dealling with my family....its that over emotional involvement and soppy sentiment that i find difficult to deal with...now that my cancer has cranked up a notch its like..."how do we treat her, how do we do around her...for fuck sake, i'm not dead yet, treat me like normal...i find family, whilst they want to be there, are the biggest obstacles to contend with.
Flag · Like Awesome LOL
April 30Comment
Jenv
After 15 years of i guess remission, reccurrence diagnosis in May 2015 with mets in spine...plodded along nicely just on femera with monthly injection of xgeva...has now kicked up a gear where having severe breathing issues...cloudy/fluffy lung (left) ....awaiting to start chemo, 10th May, but the way i feel, i reckon i wont make it.......I'm fine just sitting and doing light stuff but any form of physical exertion, well lets just say i struggle....I'm starting to think just let me die....should i pbone incologist and tell him how i am with a view to getting the chemo started now or bide may time and just put it down to being anxious?.....this fucking thing is so deceptive, as i look fine and well on the outside...sitting here at 3.30 am as cannot sleep.