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Jenv
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Joined 11 years ago
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Re: Side effects of taxol
I have had no 2 of cycle 2 of taxol and yes was told it would be easier on my body than AC....NO it just different, so that ever present neuropathy effecting feet, hands, mouth. Weekness in legs, can't do much exercising, breathlessness requiring oxygen therapy, then the meds take one to alleviate this and the another to combat that and so on...its a chore thats for sure.39ViewsSign in to react to this post0CommentsRe: Waiting for tests and results
Hi, the waiting for results etc seems to take forever..i found keeping every bit of info helpful, writing things down, asking questions and better still take someone with you for support and questions you dont ask...another pair of ears if you forget something that was said. It certainly is a journey, we are on this treadmill that we can't get off.....take care, once you get a treatment plan you'll go from there and know whats going on.ViewsSign in to react to this postComments- ViewsSign in to react to this postComments
Re: Paclitaxel
I have just had 3 taxol out of 18 (1 cycle down) after 4 lots of AC....had lots of issues with AC, neuropathy, burnt hands, restless. Now on taxol still neuropathy, diarrhoea, week legs , breathing issues. My onco said that this would be kinder to my body...don't know bout that...also neuropathy around mouth, sensitive teeth, mouth ulcers....god, is it worth it, honestly!ViewsSign in to react to this postCommentsRe: Newly Diagnosed
Hi Shann welcome to the forum, hope you get good results and if not then take each day as it comes and be guided by your GP, oncologist and or breast care nurse. We on this forum are at various stages of this cancer journey and everyone is friendly and has helpful advice.ViewsSign in to react to this postCommentsRe: Tethering means breast cancer too
I had a small sausage shaped lump towards my underarm on the left breast when i was 38, went to a surgeon and he made me strip off and he checked me over umming and ahhing just to tell me that it was fatty tissue, now, we are guided by doctors etc and i thought okay. Fast forward another two years, i have a hole forming in my skin where the lump was and yep on my 40th birthday in 2000 got the diagnosis that it was stage 3 DCIS....mastectomy, radiation and 5 years of tamoxifen. That was 17 years ago. I have since had a recurrance from 2015 with mets in spine, liver and possibly left lung. I have never worried how i look so have been happy with a prosthetic. I didn't want to have more operations.ViewsSign in to react to this postCommentsRe: Not good results
Thanks girls, i feel comforted in that we are all on this metastatc journey together and everyone is at a different stage or been there done that. (although it sucks to be on this journey Primek, i hope you right about taxol that it will be easier. I know everyone handles chemo differently....i could cope better if i could just get rid of the breathlessness...i just want to start feeling well again.ViewsSign in to react to this postCommentsNot good results
After havig a CT scan my oncologist rang me the next day to tell me that the chemo wasnt working ( have had four rounds of Adriamycin, was working, now not) onco told me that the cancer is active, i have breathing issues, very tight in chest and just breathless all the time. Am to have bloods tomorrow and then start on taxol for however many weeks. I feel like I'm on my last legs. I'm hoping its just the chemo taking its toll, am down to 53kgs as it is a real effort to eat....hubby is doing everything in the house and doesn't seem to mind. I'm concerned about taxol and whether I'm strong enough to handle it. Yes I know most of you ladies out there will say discuss with onco and i will ..... i am physically weak and can barely shower myself let alone do anything else. Anyone got some moral boosting opinions? Or am I putting the cart before the horseViewsSign in to react to this postCommentsFlat as a tack
Round 4 of chemo and feeling flat as a tack...chemo last wednesday and was feeling good but 5 days later feel like crap...no ooomph. I know the chemo is working but geez its taking its toll...I've had hand issues with burning, neuropathy of feet, skin issues...I've gone from 76kgs two years ago down to 54kgs today. It better be worth it cos I'm over it. 2 chemos to go. Sometimes i just wanna piss everybody off and say 'go away' and just deal with myself....everyone is so well meaning but they not going thru it...i know life goes on but just eff off...living this hermit like existence. CT scan on thursday and i have to drink that iodine crap...JOY!....just doesn't end.... Sorry had to rant as taking its toll!ViewsSign in to react to this postComments
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.Let's talk: vaginas, menopause & me
PRIVATE GROUP. This group is a safe, supportive space to talk about sexual health and emotional wellbeing during and after breast cancer. We discuss topics like menopause, vaginal dryness, pain during sex, UTIs, and changes in libido, and share ideas and products that may help. Whether you're navigating intimacy with a partner or reconnecting with yourself, you're not alone here. This is a place for open, respectful conversations and shared understanding.
