Forum Discussion
What wld you like health professionals to understand re emotional/ psychological fallout from BC?
On another thread, people have been sharing thoughts about the lack of knowledge/understanding among some breast health professionals about our emotions and psychological state, issues such as sleep disruption, the need for information about support groups such as BCNA and others. Generally, the critical gaps in the services that are offered to us. Of course we're grateful for what we receive, but the gaps are vital. Please share, and perhaps the information may be collated and go somewhere productive.
49 Replies
- Hold that thought @Flaneuse and @kmakm - we all need to think about drawing attention collaboratively to these issues.In a way we are lucky in that we have access to the blog to share and support each other - am not sure that this type of vehicle is available to those with other cancers .Though I do wonder how many bc people know of it as you basically need to find it yourself.
- @Flaneuse Ah!
- @kmakm Make a submission to the mental Health Royal Commission.
- OMG @Romla...
"Routine distress screening throughout the cancer process (e.g., diagnosis, treatment, survivorship) is crucial to identifying individuals who are already struggling with symptoms of depression or anxiety or for identifying those at risk for psychological issues related to cancer. Historically, communication about psychological adjustment was lacking between patients and providers regarding topics related to adjustment to diagnosis, living with cancer, living cancer-free in survivorship, or transitioning to end of life care." (Wikipedia)
I do not think "routine distress screening throughout the cancer process" has made it to the BC world...
One of my oldest and dearest friends is a professor of psycho-oncology. She's a world leader in the field. - Do what @Flaneuse?!
- Romla - thanks for the reference. I'm of the opinion that this topic could be a focus for Beacon - particularly information on psycho-oncology, in 'easy speak' language.
- @kmakm You're in the ideal place and headspace to do it ! xox
- Here’s some information about psycho - oncology for those newly in the know like me.
https://en.wikipedia.org/wiki/Psycho-oncology - Ian Olver is interested in psychoncology so here’s hoping.
- Great idea @Romla.
