The other thread was:
https://onlinenetwork.bcna.org.au/discussion/19231/early-days-on-letrozole/p27Reading from pages 25-27 covered a LOT of information pertaining to this 'new' thread .... and covers a LOT of ground - so give it a read too!!
You always hear about the BC Nurses .... either from McGrath Foundation or elsewhere ...... I didn't see one! My surgeon's nurse (unfortunately) rarely returned my phone calls and the local Taree BC Nurse had just resigned & hadn't been replaced after I had my surgery early this year. I've gained most of my help, support and info from this forum & rate it very highly in helping me thru this bloody mess that is BC.
Professionals need to listen to what their patients are telling them - NOT tell them that they are having 'extreme' reactions - cos it appears that we all have similar outcomes, when it gets to the nitty gritty. They need to fully inform patients of what is about to happen to them.
Emotionally - we are screwed as it really mucks with your brain (and I didn't have chemo!) Concentration, memory, even skills are impacted. Yet many are expected to return to work and be the same person they were before the diagnosis ........
Physically - we are screwed because the medication (some might call it poison) they put us on mucks with many of our body parts - particularly the limbs - aches, pains, downright excruciating at times - and SLEEP .... Well, that's a thing from the past!
I could go on .......
@"Patti J" - I am SO sorry that there is so little support out there for those with Mets BC ... and only hope that you are tolerating your treatment as well as you can & continue getting out & exercising & doing what you love doing! xx
