The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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pc thoughts","id":"message:206478","revisionNum":1,"repliesCount":108,"author":{"__ref":"User:user:22796"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"conversation":{"__ref":"Conversation:conversation:206478"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:206478"},"body@stripHtml({\"truncateLength\":200})":"So im writing this just to get it out. I dont really expect a solution. Apologise in advance if the un pc nature of this is not nice. I am getting a counsellor soon. Ive been aware all along that ...","body@stringLength":"2706","rawBody":"So im writing this just to get it out. I dont really expect a solution. Apologise in advance if the un pc nature of this is not nice. I am getting a counsellor soon.
Ive been aware all along that im somehow responsible for how others feel about my cancer but lately I've felt something doesn't quite work for me and I'm struggling to find any way to express it without crossing some taboo.
I get the impression im supposed to be selfless but the way people behave is not without consequences to me. In short .. here comes the un pc part, some people are emotionally retarded.
I have barely seen my brother since my diagnosis 3 months ago. Last year when he ruptured his Achilles and had 6 weeks off work I visited him 4 or 5 times despite being busy myself. I listened ( with my medical phobias) to his descriptions of what happened when he took the boot off. I know that he cares but somewhere outside of my understanding about his discomfort im a bit hurt that he can't move through it and make some effort. I saw him yesterday at my mums bday lunch and despite barely speaking to me at the end he said its good to see you. I thought really? At what point will it register that he could have helped me in some small way?
I had coffee with a more self aware person yesterday and she confessed that she was afraid I might look unhealthy. She said my eyes were bright and I looked good. I do not look good. I had made an effort and wore make-up a nice dress. I thought I looked alright. Photos after told me im deluded.
My hubby said as I was getting ready for coffee \" so you will dress up for her but not me\". On the weekend he asked if I could wear my scarf differently. I said I wasn't born with the knowledge of how to tie scarfs and I was struggling with my appearance. My hubby has always praised me for not wearing a lot of make-up. Do I have to wear make-up at home now to make him feel better? This is not something that requires an answer.
My sister was having a rough day. We chatted. At the end she said but its trivial in comparison to what you are dealing with I shouldn't complain. I said of course you should. Just because im unwell doesn't mean your life is less trivial. How many people are shutting me out of their life because I have cancer and their world is too trivial now? How many people are avoiding me because I look unwell?
These are difficult things. Sometimes I want things to be the same but sometimes I want some acknowledgement. I want people to understand a bit without all the social expectations. I dont want to have to protect people all the time and be understanding. ","kudosSumWeight":6,"postTime":"2020-10-19T08:27:13.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:coping","text":"coping","time":"2025-03-25T05:01:39.590-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:emotions","text":"emotions","time":"2025-03-25T05:01:41.462-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:206478_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":2311},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"So im writing this just to get it out. I dont really expect a solution. Apologise in advance if the un pc nature of this is not nice. I am getting a counsellor soon.
Ive been aware all along that im somehow responsible for how others feel about my cancer but lately I've felt something doesn't quite work for me and I'm struggling to find any way to express it without crossing some taboo.
I get the impression im supposed to be selfless but the way people behave is not without consequences to me. In short .. here comes the un pc part, some people are emotionally retarded.
I have barely seen my brother since my diagnosis 3 months ago. Last year when he ruptured his Achilles and had 6 weeks off work I visited him 4 or 5 times despite being busy myself. I listened ( with my medical phobias) to his descriptions of what happened when he took the boot off. I know that he cares but somewhere outside of my understanding about his discomfort im a bit hurt that he can't move through it and make some effort. I saw him yesterday at my mums bday lunch and despite barely speaking to me at the end he said its good to see you. I thought really? At what point will it register that he could have helped me in some small way?
I had coffee with a more self aware person yesterday and she confessed that she was afraid I might look unhealthy. She said my eyes were bright and I looked good. I do not look good. I had made an effort and wore make-up a nice dress. I thought I looked alright. Photos after told me im deluded.
My hubby said as I was getting ready for coffee \" so you will dress up for her but not me\". On the weekend he asked if I could wear my scarf differently. I said I wasn't born with the knowledge of how to tie scarfs and I was struggling with my appearance. My hubby has always praised me for not wearing a lot of make-up. Do I have to wear make-up at home now to make him feel better? This is not something that requires an answer.
My sister was having a rough day. We chatted. At the end she said but its trivial in comparison to what you are dealing with I shouldn't complain. I said of course you should. Just because im unwell doesn't mean your life is less trivial. How many people are shutting me out of their life because I have cancer and their world is too trivial now? How many people are avoiding me because I look unwell?
These are difficult things. Sometimes I want things to be the same but sometimes I want some acknowledgement. I want people to understand a bit without all the social expectations. I dont want to have to protect people all the time and be understanding. ","customFields":[]},"Conversation:conversation:206478":{"__typename":"Conversation","id":"conversation:206478","solved":false,"topic":{"__ref":"ForumTopicMessage:message:206478"},"lastPostingActivityTime":"2020-12-04T22:35:07.000-08:00","lastPostTime":"2020-12-04T22:35:07.000-08:00","unreadReplyCount":108,"isSubscribed":false},"ModerationData:moderation_data:206478":{"__typename":"ModerationData","id":"moderation_data:206478","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:206478_1":{"__typename":"Revision","id":"revision:206478_1","lastEditTime":"2020-10-19T08:27:13.000-07:00"},"ForumReplyMessage:message:206486":{"__typename":"ForumReplyMessage","id":"message:206486","conversation":{"__ref":"Conversation:conversation:206478"},"author":{"__ref":"User:user:22796"},"revisionNum":1,"uid":206486,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"subject":"Re: Un pc thoughts","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:206486"},"parent":{"__ref":"ForumTopicMessage:message:206478"},"body":"Hi @ddon, yes that's not right. Im also not uncomfortable about others seeing my lack of a boob. Today I went and got a bra/pump up prosthetic simply so I can comfortably wear my dangle necklaces (I had rhs mastectomy only). I am concerned about maintaining my relationship with spouse but this is my new normal and he might just have to adapt. I do understand that the whole bald, Port, boobless and weight gain might be confronting but im more than my physical appearance. ","body@stringLength":"486","rawBody":"Hi @ddon, yes that's not right. Im also not uncomfortable about others seeing my lack of a boob. Today I went and got a bra/pump up prosthetic simply so I can comfortably wear my dangle necklaces (I had rhs mastectomy only). I am concerned about maintaining my relationship with spouse but this is my new normal and he might just have to adapt. I do understand that the whole bald, Port, boobless and weight gain might be confronting but im more than my physical appearance. 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