Ovary removal.

I have the MHL1 gene also known as lynch syndrome. This gives higher risk of bowel, ovarian and uterine cancer. The recommendation I got was full hysterectomy before 45 as screening wasn’t the best. I was in the process of seeing all the specialists to have the hysterectomy and then BAM I hade breast cancer. To say I was angry was an understatement, I was doing everything I could to prevent the other cancers and then I get BC. I have finished chemo, recovering from double mastectomy operation I had last week and will need radiotherapy after I heal. Then I will be still going ahead with the hysterectomy. My decisions have been to give me the best chance of this not reoccurring and not be in this position again. Life is too short and at 44 I have so much more to do. I have/will loose a lot of my womanhood but my health is more important. I have been advised that it can be done via keyhole so I will hopefully recover quickly.  Good luck and I hope all goes well. 
To cope I look at the genetic testing as a blessing as it’s a warning and I can make a choices to help reduce the risks. A lot of people don’t get a warning.
Renee xx 

I have had both ovaries removed due to large cysts which were benign.  This was done pre BC.
As other ladies have said it was day surgery and pretty easy recovery.  The only big issue for me was it pushed me into instant menopause at 48 and that was pretty yuk. Julie xx

I got rid of mine in December 2016. I did it at the same time I had my port put in, a week or so before chemo. I had    wicked shoulder pain for a couple of hours which is caused by the gas they use to inflate your tummy during the op and  some minor problems with dissolvable stitches a couple of weeks later, but apart from that I was up and about very quickly.
I haven't had any testing done, but as I'd had a recurrence and knew I'd be on AI for years, I figured being rocketed into full menopause (the last step is a doozy) was a small price to pay compared to Zolodex injections and the worry that I'd develop ovarian cancer too.
I've never regretted it. The game plan is to keep my oestrogens to a minimum which was always going to have its own unpleasant set of side effects whether I did it physically or chemically. Mxx

I had tubes and ovaries out just over a year ago.  Keyhole surgery. In one day, home the next, didn't need much in the way of pain relief. I had 2 weeks off work, probably could have gone back a few days sooner. I tired easily for a couple of weeks more.

My skin has been much drier since that surgery,  but I haven't noticed any other real changes. I was already post menopausal,  so no futher changes there.

I did speak to a genetic counsellor but no testing was recommended.  My family history wasn't strong enough for any one cancer. My grandfather had lung cancer after smoking heavily for 60 plus years.  My Dad is one of 5. Of those, only one did not have cancer. , and out of 11 of us in the next generation, 3 have had cancer (all different).

We did discuss the possibility that there could be some genetic predisposition to non specific cancer, but no way of knowing, so.......

Take care xx

Hi @Mic80. You have my sympathy. I have a different gene mutation (CHEK2, and a rare one within that group). My sister died from BC and we discovered last year that my mother and I had the mutation. Your description of being rocked by the news is a good one. It doesn't change anything per se, but your world shifts on its axis a little, and tends to colour your view somewhat.

I had had a double mastectomy a few months earlier, so the discovery of the mutation reinforced my decision in hindsight. It also raises my risk of some other cancers as well. Colonoscopy coming up soon...

We've had quite a few here who've had an oophorectomy so I'm sure someone will be along shortly to assist. My inderstanding is that it's a relatively straightforward procedure with little pain.

Big hug mutation cousin! K xox