I have the MHL1 gene also known as lynch syndrome. This gives higher risk of bowel, ovarian and uterine cancer. The recommendation I got was full hysterectomy before 45 as screening wasn’t the best. I was in the process of seeing all the specialists to have the hysterectomy and then BAM I hade breast cancer. To say I was angry was an understatement, I was doing everything I could to prevent the other cancers and then I get BC. I have finished chemo, recovering from double mastectomy operation I had last week and will need radiotherapy after I heal. Then I will be still going ahead with the hysterectomy. My decisions have been to give me the best chance of this not reoccurring and not be in this position again. Life is too short and at 44 I have so much more to do. I have/will loose a lot of my womanhood but my health is more important. I have been advised that it can be done via keyhole so I will hopefully recover quickly. Good luck and I hope all goes well.
To cope I look at the genetic testing as a blessing as it’s a warning and I can make a choices to help reduce the risks. A lot of people don’t get a warning.
Renee xx