Forum Discussion
Pahill
8 years agoMember
Non Cancer Lumps Found
Good evening everyone. Some of you would have read my post on Not Dignosised yet. Today I got the results from my Core Needle Biopsy. All is clear I have not had cancer before. I have a strong family history. Om my mums side my grandmother and 2 Aunts one of the Aunts had breast and Ovarian Cancer. On my dads side my grandmother and 2 Aunts also breast cancer. My dad also has non hodgkin lymphoma not sure if tgat makes a difference. I am heading to a specialist as soon as my GP makes an appointment probably within the next week. I with the support of my husband and my GP am going to ask for Preventative Mastectomy. My results today said fibrocystic non cancer lumps. Am I over thinking this? I am so anxious about getting breast cancer in the future. I am 50 and have alot of plans for the future. Sorry for all my posts but I am at a loss of what to think. Cheers.
24 Replies
- onemargieMember@pahill I also wish I trusted my guts the year before diagnosis when they found the fibroadenonoma which I’d never had previously and I wanted to get the mastectomies then but was told “it’s not necessary”. Don’t let My circumstances influence your decision but don’t ignore your gut instinct either love. Whatever you decide you will have ongoing support here with the gang on here. Margie. Xx
- kmakmMemberCheck out the Breconda website too. It's a breast reconstruction decision making tool that might be useful.
- onemargieMemberHi there love. I’ll be honest with you if that was me I would not hesitate to get the preventative/recon surgery with that history of yours. I would of felt thst I dodged a bullet for sure. Anyway seek the advice of your surgeon and go from there. Like I told you trust your gut definately not over thinking it love. You’ll know what’s best for you.let us know how you go Margie. Xx
- PahillMemberThank you for your kindness
- lrb_03Member@Pahill, you've probably given us the best news we could hope for, on your behalf. As @primek said, talk to a genetic counsellor about genetic testing, but at the endof the day, the decision to have preventative mastectomies is yours to make. I didn't have a mastectomy but I believe there is a closed faceboook group, called Reclaim Your Curves,that could be worth looking into.
AnAustralian website you may be interested in is Pink Hope, to look at pros and consof preventative mastectomies
Take care, & stay in touch - primekMember@mum2jj could you look out for group request. Thanks.
- PahillMemberThank you I have requested to join
- PahillMemberThank you primek
- primekMemberNo I don't think you are overthinking it but as the urgency is gone I would definetly have genetic counselling. Knowing you have a positive gene might mean the need for additional surgery or not. Also if you do carry a gene it's important for your offspring. Because of family history and my Dad being gone...and the sample was held in Scotland, all 3 of my Dads kids were mapped and tested. So we can be sure he never carried it. They even sent out an original sample and retested mine against it again to be certain. They were so sure I had the gene because of age and the age they developed it.
I had an Aunt who had bilateral breast and ovarian cancer (and 2 others had ovarian) but don't have her known faulty gene. At this stage they believe I'm just the average unlucky 1 in 8.
Talking it over with a counsellor really helped me feel more comfortable. I had the mastectomies and reconstruction. I don't regret it. But I really miss the sensation of my breasts and it does impact on intimacy.
We have a breast reconstruction group you can request to join. Many have included their photo stories. If you would like reconstruction you can plan this as same time as mastectomy.