Forum Discussion
Is that a light at the end of the tunnel??
To me a journey is getting from A to B at a leisurely manner....stopping off for a bit of sight seeing and long lunches.....what I have been through since 28th March has been a fast track nightmare heading for the chasm that has lost the bridge!! Oh I know that sounds melodramatic but I honestly don't know where last 4 months have gone. Started with Breast scan bus and the lovely technician explaining that if there is any problems I will called up for further investigation ( this is while she is holding my hand and patting with the other one - I smiled and said thanks and was thinking uh oh..oh well!! :) ) Further investigations the next week, 100k away, Bilateral lumpectomy followed, then oops DCIS hidden lets go mastectomy on one side...other was fine...just scar tissue from Lumpectomy 25 years ago! daughter and I decided to call breast that was leaving the building "Doris"..texted son post-op and said...Doris has left the building ..he came back...who is Doris?? Oops forgot to tell him her name...lol Last drain out a week following discharge...damn..infection and fluid build up...Iv Antibiotics and who needs needles to draw fluid out...its decided to gush out by itself!! Arm exercises not good enough...get thee to the Physio!! Oh the pain!! I'm sure the Physio degree includes a Unit of Fiendishness 101. :) So next step is Chemo .....and its starts today. I've arrived at the chasm but I'm seeing the bridge over it!! I am surprisingly calm (at the moment) I am not prepared to leave this world without a damn big fight! So lets see where I am after 6 treatments over 3 months! I haven't been alone with support from sisters , mother (shes 88 god love her!) friends and of course husband and my kids. - Even grandkids (4 - 10) know I have a "sore arm" and I get so many more hugs and kisses :) So my purpose in writing all this is I guess I needed to put it out into the universe that I have had pain, tears, fears and felt alone. I think this is my letter to me saying...get going girlfriend the next step has arrived and its time to take it...the bridge is there....trust!!
79 Replies
- Have to share this because I honestly can't believe it happened. Was out and about in a northern NSW country town at McDonalds. Walked out with my toasted cheese sandwich and coffee. Had my turban with a scarf wrapped around it on my naked head, when a "gentleman" roughly 35 - 40 years of age pushed past me and said "F**cking Muslim" By the time I managed to re-balance coffee all I could do was laugh but I did it loudly!! I wasn't quick enough for any intelligent comeback. REALLY mister???? You poor thing to be so bloody ignorant!
- Fingers crossed it's dull as ditchwater this time! K xox
- @Scorpio101 gee what a ride!! I’m loving your positive attitude. Take care & see you on the other side xx
- OMG! That sounds really scary! I hope all goes well from now on!!Take care xxx
- Well Well Well me!!! Following my last post I began to feel a little blah, a little off colour, temp was ok, appetite was ok....and on Sat 11th - bang-Temp went from 37.1 to 38.3 in an hour. Hospital with all the IV's, antibiotics, daily bloods, Xrays, U/S and 6 days in "isolation" - no entry without masks. Bloods were haywire (Neutrophils were zero, WCC down down) But all good now....back to routine. 3rd treatment this morning and I have to give myself a subcutaneous injection tomorrow to counteract last week happening again....fingers crossed!! I laugh at the moment , was bored out of my head last week, what will tomorrow bring? .... oh yeah :D dry mouth and lips, foggy brain and brick walls!! Yay!! :D ;) Hugs all round, see you on the other side XXX
- You've got this @Scorpio101! Well done. I love the sound of really happy things! K xox
- So here I am Day 5 post Second Round. Hasnt been too bad. Instead of Day 3 & 4 hitting brickwalls I had a 24 hour period...started 3 -4 pm Sunday afternoon and on Monday at about 3.30 pm I sat up from a nap on the lounge and went...wow my head is out of a fog...lol Body still lethargic but cant expect everything to be 100 %. Wonder if they can refine it even more??? I do hate brick walls...they hurt! Had an appointment with a lovely lady today...Radiation- Oncologist. She said some things that really made me happy even though I will be having radiation post chemo. So its all hurry up and get going for at least another 3 maybe 4 months. Hope all my sisters out there are doing well. xxxxx
- Awesome, all round! Well done, YOU! xx
- Well done @Scorpio101! Fingers crossed it's smoother sailing this time. K xox
- Thanks once again for continued support. Was a good day. All went well. Got the lecture about just resting and behaving and stop stressing over husband....and that was just from nurse...wont tell you what daughter added...lol And yes Husband saw Orthopaedic surgeon and his entourage today. Fingers going well so that's a positive. With my change in medication regime heres hoping next week will be better than last round. Love and hugs all round and hope all is well with you all as well <3
PS ....LOVE those big girls pants :D
