Hi everyone, I thought I was coping pretty well considering the sucky state of my family's health at the moment. But today I've been thrown yet another curve ball.My surgery is on Friday 24 th and I was scheduled for the lymphoscintogram and needle localisation procedures to be done on the same day - pre my afternoon surgery.Today I get a text reminding me of my appointment in radiology for 23/5/19 - what, that is news to me??I believed it may have been sent to me in error as it usually has my name on it and this one does not. So I rang and no it's for my lymphoscintogram! I have neuropathy and my feet are dodgy at best and the numbness has spread to my right thigh both front and back. Hubby is taking me on Friday as my car is manual and I have been stalling it haha. I cannot gauge how hard Im pressing down on the clutch, safer not to drive at this point.I went into a complete meltdown on the phone, I could not talk. I finally stammered out it's not fair to change it so late in the game and also it means I would have to rope someone in to taking me and wait around till I'm done. I have two family members in hospital at the moment and hubby and I were doing a final visit before my surgery. She is going to "try" to get my original appointments back as she cancelled that one, what should I do? Stick to my guns?Just when I I thought all the frigging me around was over.

Hi Irb_03, it was a very long day and my boob was most uncooperative,probably from anxiety ;) I was so scared of the lymposcintogram procedure that I barely slept the night before. It was not helped by someone ringing the night before my op and passing along her friends comments that it was the most "excrutiating" thing she has ever experienced. >:) IT WAS NOT.By the time I got into the room, I had verbal diahorea about how anxious I was and could I have a valium PLEASE!!The technician (is that the right word?) was beyond brilliant, she explained everything and gradually I started to calm down. She also said everybody is different, some have said it was okay, some a bit uncomfortable but bearable and others said 9 out of 10 pain. She bought in another brilliant girl who held my hand, chatting away and I barely felt the injections, for me just a short sting like a local before biopsy.My boobs however were very uncooperative and they had to put me back in three times as the stuff was not moving, despite massaging, walking laps and lots of time!! So they sent me in for the needle localisation by ultrasound, by this stage I was relaxed and forgot about the valium hahahaThey couldn't find the tumour or the marker by ultrasound, again my stubborn boob. Three had a go and nobody could see either, not even the doctor.So back I went in for image of lymphoscintogram, yay finally it moved and they found my sentinel node etc!Because the ultrasound was a fizzer they did the needle localisation by mammogram, which took longer but was okay. Three girls and me trying to position my uncooperative boob. Not painful just uncomfortable as a mammogram is anyway.The worst thing was having to raise my arms above my head for the three attempted images, sore shoulders.Anyway, I survived and 4 hours later I was transported back for surgery. One good thing about the length of time, I had no time to worry about the operation.They booted me out of hospital less than 24 hours afterwards, I was happy about that because my roomies kept me awake all night.I told you I had verbal diahorea, anyway Im a bit sore mostly under the arm but today Im better than yesterday xx

So, they are messing you around again? I'm really sorry that you have had to deal with this - I don't know which hospital you are dealing with but they are showing a complete disregard for patients. Advise your doctor about what is going on. If you are unable to get the appointment changed back (and it is possible that they may not be able to do that, now), insist on access transport there and back. I'm sure they can find a couple of cabcharge vouchers for this purpose to alleviate the problem caused by their error. You made arrangements around the original appointment and you were not consulted about the change and you have no way of getting in.Big hugs coming.

Hi @Nefertari, just thought I'd pop my head in and ask how Friday went, and how you're feeling?Hope it went smoothly

Hi @Neferari,That just stinks. Do they realise they normally do this the day of surgery for a reason? Jump up and down for sure. There is a two day protocol but depending on the surgeon some prefer day of some don't mind teither way. I would be contacting your surgical team or breast care nurse and see if they are happy with the change. They may have a bit more pull with getting things changed back if that's what everyone prefers. What if you didn't get the text? They should have phoned you as soon as they wanted to change it. Grrrrr assholes. Hugs lovely. xoxoxoxo

Big hugs @Nefertari. Mention dollars and they'll start hopping. Tell them than you don't have medical clearance to drive yourself, and that you had set arrangements for a driver for the date and time as arranged. Advise them that as you no longer have an available driver because of their stuff up, you'll need them to pay a cab voucher both there and back home if they are unable to honour their original arrangements. Watch them very quickly fix their problem. You have enough of your own problems, without having to help them rectify theirs. Ally.

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Blossom1961
Member
6 years ago
Hehehe I didn’t even feel the node biopsy. It was done immediately after the no-anaesthetic breast biopsy so my body was busy convulsing. Maybe there was something positive about that procedure after all!
kitkatb
Member
6 years ago
Ditto @Scaredycat I found excruciating as well. But on a better note @Nefertari so glad you have got through everything although you can put that part behind you now. Here's to a speedy recovery. xo
Sister
Member
6 years ago
I remember the doctor? apologising for hurting me so much but I suspect it was as much due to anxiety as anything else. I try to go into any new procedure with an open mind but it can be difficult when you hear other experiences. Glad it wasn't too bad for you @Nefertari
Scaredycat
Member
6 years ago
I’m glad it all went well for you Nefertari. I found the sentinel node biopsy injection absolutely excruciating ....... I just reacted & dislocated/cracked my man’s thumb ....... he was fine lol. Luckily he was there & able to hold me through it.
I’m also very envious of your experience.
kmakm
Member
6 years ago
@Nefertari Good idea! I've done that at a few points along the way. Literally held up my hand and said "I'm sorry but I have to stop you, I can't listen to that". The bottom line is, you're the boss. When it comes to your BC, everyone else needs to get with your programme!
Nefertari
Member
6 years ago
@kmakm, I am going to stop people mid stream from now on and say I don't want to hear. ;)
Nefertari
Member
6 years ago
@iserbrown, could not agree more.
kmakm
Member
6 years ago
Well done @Nefertari! It's tough at the best of times, but you've had a tough time of it.

The Sentinel Node Biopsy is a minefield! Mine was agony, but others experience it like you (I'm envious). It always reminds me about having a baby. Some are desperately keen to tell you about their horror stories! And it's always best to ignore them because we're all so different. Same goes for BC. So don't listen too much to other people, keep your own counsel.

Take it nice and easy, and be kind to yourself. K xox
iserbrown
Member
6 years ago
Glad you are on the better side of it all!
People mean well but couldn't they just keep quiet and say hey we can compare notes afterwards!

Goodness me!
Take care
Nefertari
Member
6 years ago
Hi Irb_03, it was a very long day and my boob was most uncooperative,probably from anxiety ;)

I was so scared of the lymposcintogram procedure that I barely slept the night before. It was not helped by someone ringing the night before my op and passing along her friends comments that it was the most "excrutiating" thing she has ever experienced. >:) IT WAS NOT.

By the time I got into the room, I had verbal diahorea about how anxious I was and could I have a valium PLEASE!!
The technician (is that the right word?) was beyond brilliant, she explained everything and gradually I started to calm down. She also said everybody is different, some have said it was okay, some a bit uncomfortable but bearable and others said 9 out of 10 pain.

She bought in another brilliant girl who held my hand, chatting away and I barely felt the injections, for me just a short sting like a local before biopsy.

My boobs however were very uncooperative and they had to put me back in three times as the stuff was not moving, despite massaging, walking laps and lots of time!! So they sent me in for the needle localisation by ultrasound, by this stage I was relaxed and forgot about the valium hahaha

They couldn't find the tumour or the marker by ultrasound, again my stubborn boob. Three had a go and nobody could see either, not even the doctor.
So back I went in for image of lymphoscintogram, yay finally it moved and they found my sentinel node etc!

Because the ultrasound was a fizzer they did the needle localisation by mammogram, which took longer but was okay. Three girls and me trying to position my uncooperative boob. Not painful just uncomfortable as a mammogram is anyway.

The worst thing was having to raise my arms above my head for the three attempted images, sore shoulders.

Anyway, I survived and 4 hours later I was transported back for surgery. One good thing about the length of time, I had no time to worry about the operation.

They booted me out of hospital less than 24 hours afterwards, I was happy about that because my roomies kept me awake all night.

I told you I had verbal diahorea, anyway Im a bit sore mostly under the arm but today Im better than yesterday xx