The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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Twelve weekly sessions of chemo (Paclitaxel) plus Trastuzumab (hercepton) every three weeks just completed! Last tuesday was my las...","body@stringLength":"2203","rawBody":"Well it has been three months since I have been online so here goes. Twelve weekly sessions of chemo (Paclitaxel) plus Trastuzumab (hercepton) every three weeks just completed! Last tuesday was my last chemo (Paclitaxel) YAY! I was to start 4 weeks of radiation on 17th Sept. But was notified yesterday it will now start on 2nd October and I will only have 16 days again YAY! It has been the most draining weekly sessions I could ever have imagined, sorry for the complaining but I am exhausted. My body is not mine it looks like some 90 year olds. No hair has taken away my identy, my poor old body is sagging, covered in chemo rash damage, lack of colour, I am so tired all the time, can't concentrate and not much interested in anything that goes on around me! What the hell happened to me in the last three months go? I've been in a timewarp! Where did the fun loveing grandma go, the lady who loved meeting her friends at craft every Thursday & who loved her indoor bowls every Monday with her group. Where did she go? I really didn't have any expectations when I went in to this I just decided to do the very best I could at it & give it my best shot at beating this dam big C. Wow today I feel like laying down & sleeping & just letting mother nature take over. Yep I am depressed I realise I need to seek some help I don't know this person any more who is she? I have about three weeks of only Trastuzumab every three weeks so a break might just give me back some energy to get through the rest of these few months. Hopefully I will be able to visit my craft & indoor bowls groups to say hi to them all again as I have only been able to visit them twice each over the past three months & that was a struggle. As long as I make the effort & keep moving forward I am sure I will get through this but have just hit a brick wall at moment & need to retreat, regroup & reenergise, get positive & move on for the next round. Sorry for the long rant I needed to vent so thought of all you sisters out there. Until next time love & good health to you all may your journey be smooth. Regards Dawn","kudosSumWeight":0,"postTime":"2018-09-07T20:31:45.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:coping","text":"coping","time":"2025-03-25T05:01:39.590-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:side-effects","text":"side-effects","time":"2025-03-25T05:01:42.742-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:treatment","text":"treatment","time":"2025-03-25T05:02:03.081-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:191559_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":1062},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"Well it has been three months since I have been online so here goes. Twelve weekly sessions of chemo (Paclitaxel) plus Trastuzumab (hercepton) every three weeks just completed! Last tuesday was my last chemo (Paclitaxel) YAY! I was to start 4 weeks of radiation on 17th Sept. But was notified yesterday it will now start on 2nd October and I will only have 16 days again YAY! It has been the most draining weekly sessions I could ever have imagined, sorry for the complaining but I am exhausted. My body is not mine it looks like some 90 year olds. No hair has taken away my identy, my poor old body is sagging, covered in chemo rash damage, lack of colour, I am so tired all the time, can't concentrate and not much interested in anything that goes on around me! What the hell happened to me in the last three months go? I've been in a timewarp! Where did the fun loveing grandma go, the lady who loved meeting her friends at craft every Thursday & who loved her indoor bowls every Monday with her group. Where did she go? I really didn't have any expectations when I went in to this I just decided to do the very best I could at it & give it my best shot at beating this dam big C. Wow today I feel like laying down & sleeping & just letting mother nature take over. Yep I am depressed I realise I need to seek some help I don't know this person any more who is she? I have about three weeks of only Trastuzumab every three weeks so a break might just give me back some energy to get through the rest of these few months. Hopefully I will be able to visit my craft & indoor bowls groups to say hi to them all again as I have only been able to visit them twice each over the past three months & that was a struggle. As long as I make the effort & keep moving forward I am sure I will get through this but have just hit a brick wall at moment & need to retreat, regroup & reenergise, get positive & move on for the next round. Sorry for the long rant I needed to vent so thought of all you sisters out there. Until next time love & good health to you all may your journey be smooth. Regards Dawn","customFields":[]},"Conversation:conversation:191559":{"__typename":"Conversation","id":"conversation:191559","solved":false,"topic":{"__ref":"ForumTopicMessage:message:191559"},"lastPostingActivityTime":"2018-12-30T21:11:22.000-08:00","lastPostTime":"2018-12-30T21:11:22.000-08:00","unreadReplyCount":29,"isSubscribed":false},"ModerationData:moderation_data:191559":{"__typename":"ModerationData","id":"moderation_data:191559","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:191559_1":{"__typename":"Revision","id":"revision:191559_1","lastEditTime":"2018-09-07T20:31:45.000-07:00"},"ForumReplyMessage:message:191574":{"__typename":"ForumReplyMessage","id":"message:191574","conversation":{"__ref":"Conversation:conversation:191559"},"author":{"__ref":"User:user:21350"},"revisionNum":1,"uid":191574,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:managing-stress-and-anxiety"},"subject":"Re: Drained- Depressed & Struggling","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:191574"},"parent":{"__ref":"ForumTopicMessage:message:191559"},"body":"\"No matter what happens in your life......you can start over\" I thought this was appropriate. Roots are still strong but branches and foliage a bit tender.","body@stringLength":"514","rawBody":"\"No matter what happens in your life......you can start over\" I thought this was appropriate. Roots are still strong but branches and foliage a bit 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Accept to continue or {url} it directly on the provider's site.","buttonTitle":"Accept","urlText":"watch"},"localOverride":false},"User:user:22796":{"__typename":"User","id":"user:22796","uid":22796,"login":"MicheleR","deleted":false,"avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-3.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2020-07-07T01:38:54.000-07:00"}},"Forum:board:chemotherapy-and-radiotherapy":{"__typename":"Forum","id":"board:chemotherapy-and-radiotherapy","entityType":"FORUM","displayId":"chemotherapy-and-radiotherapy","nodeType":"board","depth":2,"conversationStyle":"FORUM","description":"","title":"Chemotherapy and radiotherapy","shortTitle":"Chemotherapy and radiotherapy","parent":{"__ref":"Category:category:treatment-and-surgery"},"ancestors":{"__typename":"CoreNodeConnection","edges":[{"__typename":"CoreNodeEdge","node":{"__ref":"Community:community:nkyiu94732"}},{"__typename":"CoreNodeEdge","node":{"__ref":"Category:category:treatment-and-surgery"}}]},"userContext":{"__typename":"NodeUserContext","canAddAttachments":false,"canUpdateNode":false,"canPostMessages":false,"isSubscribed":false}},"ForumTopicMessage:message:191685":{"__typename":"ForumTopicMessage","uid":191685,"subject":"Radiation burns how to treat","id":"message:191685","revisionNum":1,"repliesCount":30,"author":{"__ref":"User:user:22796"},"readOnly":false},"Conversation:conversation:191685":{"__typename":"Conversation","id":"conversation:191685","solved":false,"topic":{"__ref":"ForumTopicMessage:message:191685"},"lastPostingActivityTime":"2021-04-04T02:02:36.000-07:00","lastPostTime":"2021-04-04T02:02:36.000-07:00","unreadReplyCount":30,"isSubscribed":false},"ModerationData:moderation_data:191702":{"__typename":"ModerationData","id":"moderation_data:191702","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:191702_1":{"__typename":"Revision","id":"revision:191702_1","lastEditTime":"2021-03-30T14:14:06.000-07:00"},"ForumReplyMessage:message:191702":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22796"},"id":"message:191702","revisionNum":1,"uid":191702,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:chemotherapy-and-radiotherapy"},"conversation":{"__ref":"Conversation:conversation:191685"},"subject":"Re: Radiation burns how to treat","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:191702"},"body":"Hi @lrb_03,
I had a telehealth. Mainly because it hurts to drive. I texted rad onc a photo. He said my side effects were severe. I think i needed reassurance that i was doing the right things and it would end sometime . He said i could arrange as many appts with him as i wanted.
I agree that the nurses are a bit unhelpful. I attended a large organisation that treats public and private patients. Im private but it should not make a difference in the treatment. Pain is pain and care should be given where it is needed. I do wonder if the \"trying to be a profitable business,\" interferes with the caring. Im sure they do their best but empathy should not be in short supply and once your treatment is over you should not be made to feel that they are too busy to care for your \"normal\" experience. Im not a trained health person and trying to decide how to look after wounds whilst in pain has been hard. Luckily my sister, who lives interstate, is a nurse and told me what dressings to buy so things stopped sticking.
Anyhow, im told it will take time to heal.
I have a surgeon appt thursday which will be interesting since he wont be able to touch me. He usually likes to admire his work and check for lumps. I do not know what he will say.
Thanks for asking. It hasnt been pleasant but i think it will get better.
I had a telehealth. Mainly because it hurts to drive. I texted rad onc a photo. He said my side effects were severe. I think i needed reassurance that i was doing the right things and it would end sometime . He said i could arrange as many appts with him as i wanted.
I agree that the nurses are a bit unhelpful. I attended a large organisation that treats public and private patients. Im private but it should not make a difference in the treatment. Pain is pain and care should be given where it is needed. I do wonder if the \"trying to be a profitable business,\" interferes with the caring. Im sure they do their best but empathy should not be in short supply and once your treatment is over you should not be made to feel that they are too busy to care for your \"normal\" experience. Im not a trained health person and trying to decide how to look after wounds whilst in pain has been hard. Luckily my sister, who lives interstate, is a nurse and told me what dressings to buy so things stopped sticking.
Anyhow, im told it will take time to heal.
I have a surgeon appt thursday which will be interesting since he wont be able to touch me. He usually likes to admire his work and check for lumps. I do not know what he will say.
Thanks for asking. It hasnt been pleasant but i think it will get better.
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