Forum Discussion
MoiraC
8 years agoMember
Strategies for those rough days
Hi everyone -Many of you have traveled this path longer than me -I am 10 mths in with no surgery but liver and bone mets and had several chemo rounds and now on Xeloda and coping better side effect wise apart from neuropathy and hot flushes made worse since I now take Exemestane. I am having a ratty couple of days -losing my cool,computer problems, discovered made an appointment at wrong medical practice,paid bills with wrong card, and have spent the last week waking 3 times night drenched in sweat with nightie wet through. The sweat running down into my eyes is what wakes me and the pillow is soaked. I had to change 3 times last night! Feeling incompetent and OUT OF CONTROL! Just love that -ha ha. I have a wonderful supportive partner but I am snappy with her at times. Am doing massage acupuncture exercise etc resting trying to stay in the moment but some days I am really struggling. I am so sure others have had this and am really keen to learn from all you great women what strategies you have tried to get through 'those days' when everything all feels like rubbish! It isn't like we know this process of bc will end soon -if we are lucky in the met group we are in this for sometime. As Professor Fran Boyle says we are now more likely to die with met cancer than from it which is great but... any thoughts?
21 Replies
- kmakmMemberThanks Moira. I'm doing OK though the sides of my foobs are inceasingly sore. Spent the last hour wrestling with the laundry tsunami, now having a rest.
- ZoffielMemberRecycled greyhounds are the go @MoiraC They are not puppies which eliminates so many issues. A bit of exercise and a comfy place to sleep for 20 hours a day and they are happy.
- MoiraCMemberHi @kmakm - thanks for this. I am a bit of a TV addict I have to admit and trying to increase the get up and move! Interesting about the puppies and kittens pictures - we have been talking a lot about getting a puppy of late - I am ambivalent knowing the responsibilities from 15yrs of labradors but keep coming back to thinking about a small little cute cavoodle....meanwhile looking at pictures
I hope you are doing well at home and recovering ok. all the very best - kmakmMemberHi @MoiraC. I don't really have anything to add to the excellent advice here. I'm still trying to work out how to handle my rough days! And they're not in the same league as yours. Just know that I'm thinking of you and wishing you all the best.
For what it's worth I go for distraction (TV), trying to focus on other people's worries more than my own, and sternly reminding myself to stay in the moment as much as I can.
I do know that a study found that looking at pictures of cute puppies and kittens on the internet releases dopamine and oxytocin in our brains. So if all else fails! Big bear hug, K xox - MoiraCMemberThanks so much everyone for all your support and helpful suggestions - I knew you'd have some ideas and I have got some great reminders from you all. Just reaching out and putting it down in words helped a lot and hearing back from this great community gives me energy to keep going and to also get over myself sometimes!! The nightly sweat fest continues but I figure if it is happening I have got a very nice ironed pile of nighties by the bed - 3 last night - oh joy but today I am laughing about it .Wishing you all well Moirac
- MoiraCMemberHi @Uffy - thanks for this. I am on Aramosin and I think it is the cause of the nightly sweat fest - three nighties last night. I agree breaks are good and I have taken them at times. I agree that trips are good - we are heading to Darwin and Kakadu in mid June and I am trying to focus on that. All the best
- MoiraCMemberHi @jennyss - thanks so much for sharing these ideas - they are all great reminders for me to get out of the loop on those days - all the best
- MoiraCMemberHi @wendy55 - you are absolutely right and I too have pyjama days. I think it is when I feel better that it is harder to deal with limitations if that makes any sense - good to remind myself to stay in the day - thanks so much -best wishes
- MoiraCMemberHi @Mira - thanks so much for this suggestion. It is strange to me that I was better at doing meditiation and trying to be more mindful when I felt sicker. It is almost like when I feel well I power on and then hit my limitations and melt down. Glad to hear the music works for you - I will indeed avoid running water! there is enough of it soaking my bed thru sweats everynight. All the best
- MoiraCMemberDear @AllyJay - thanks so much for your hugs - it feels good! indeed you do have a big challenge there. I really admire how you have worked out how to adjust your knitting around those tough spots. You have reminded me to try and find that something that takes me out of my head. Walking and reading seem to help but also travelling and being in the bush - am working on that. Sending you best wishes and happy days with the pointy ones.