Ribociclib/Letrozole Combo - How long have you been on this plse?

Hi Everyone, I've been on Ribo's 200mg, Letrozole and monthly Denosumab needles since Nov 2018. Denovo with bone mets in spine. Scans just before Xmas, still holding everything at bay, next scans in March. So I've had 27 cycles now, still hanging in there! :) Must admit tho, have a little anxiety in the back of my mind as to when I might progress... But for now, I'm continuing to enjoy life and do all the things I like to do :) And I'm still coping ok with working full time, bonus :)

Due to see Oncologist in two weeks. Coping well with treatment, actually even better with giving up work 😃 . Stay positive and enjoy each day xx

Another bone met in my skull came up in scan taken August 2020 - that’s 3 in my skull now, so I was prescribed Tamoxifen alone. Radiation to t11 went ahead and subsequent scan showed met had shrunk a little - so it’s no longer pressing up against my spinal cord - which was the goal.

Hi everyone, wondering how you all doing since last comments? 
 @elisewjk @Louweezer @wokeupthismorning @LucyDee @Deebs @Angelo
Since Nov 2019 on 400mg Ribo and Letrozole too, with monthly injections of Zolodex and every 3mth Xgeva. Mets spine and hip. Last scan show stable. 
 

Hi Everyone , I’m on my 18th cycle / 600mg daily and doing ok. Mets lung . Thinking of you all xxx

Hi everyone 
23 months and stable 600mg mets bones 

Yes me too @elisewjk,  but like @Louweezer, 600mg 3/1. Since June 2018 I had a very itchy arm initially but that didn’t last. Last bone scan showed some progress re bone mets. Radiation of T11 is an option but it could crack the bone so Oncologist is hesitant

Hi, I've been taking Ribo 400mg + letrozole since August 2018. Combo is working great to halt progress of bone and lung mets. Hoping it keeps working... Experiencing some annoying skin problems and painful nerve issues that I will talk to oncologist about at next visit.

Hi @elisewjk I am on the same combo as you but 600mg daily for three weeks/one week off. I was diagnosed in Dec 2018 with de novo stage 4 with spinal mets.  I had a great PET scan result in Jan 2020 so steady as she goes. I feel the same as you, how long can keep this going for. It would be interesting to know when it was first prescribed in Australia and how those ladies are doing today. Are you out there ladies? Please let us know! X