Forum Discussion
sal1979
3 years agoMember
New metastatic diagnosis
I’m new to this group. I’m 43 years old and today I was told I have ER, PR negative, HER2 positive metastatic breast cancer. I have mets in lymph nodes, bones and liver. No symptoms- only had a mammogram as my Mum was diagnosed with breast cancer 2 months ago. I’m married with an 8 year old son and 11 year old daughter. It goes without saying that I’m absolutely devastated. Not only for myself but more so for everyone else this will affect.
I’m starting docetaxel, trastuzumab and pertuzumab on Tuesday. Can anyone provide me with any information on how long this treatment has controlled their cancer for?
I’m starting docetaxel, trastuzumab and pertuzumab on Tuesday. Can anyone provide me with any information on how long this treatment has controlled their cancer for?
Thank you.
21 Replies
- Jenny_KMemberHi sal1979, I was first diagnosed with horman receptive BC in 2011, in 2015 metastatic BC in bones were HR2+, having been on Tamoxifen tabs, Herceptin and Perjeta, three wkly infusions since and doing very well everything is stable. Wishing you all the best.
Cheers Jenny - sal1979MemberThanks @Blossom1961, that really gives me hope
- Blossom1961Member@salbrooks I met a lady who has been on Herceptin for fifteen years and she was doing really well.
- sal1979MemberThanks for sharing your story @Blossom1961. You have given me so much hope which I really need right now.
- sal1979MemberThanks so much @jennyss.
- jennyssMemberDear @salbrooks,
from jennyss in Western NSW - Blossom1961MemberHi @salbrooks I have her2+ and ER/PR negative Mets in lymph nodes and bones. I was treated for this same primary cancer in 2018/19 and it appeared to disappear. It came back in 2022. I am now on Herceptin and Perjeta every three weeks and zometa (bone strengthening) every three months. I have a pet and ct scan every three months. My cancer is currently inactive in all but one lymph node due to this treatment. Our cancer is one of the few that has so many options with targeted therapy. Herceptin is tratzumab and perjeta is pertuzumab, same as what you are having. The doxetaxol is just for the short term to kill off what they can.
- sal1979MemberThanks so much @Julez1958. I’ve put in a request to join the group.
- Julez1958MemberHi @salbrooks
So sorry to hear this news.
Shock is normal - as is denial, grief, anger.
Please consider joining the “living with metastatic breast cancer” private group on here too.
Being in Melbourne you will have access to some excellent care and many ladies live long lives with MBC.
There are many more treatments available now than even 10 years ago .
All the best. - sal1979MemberThank so much for your message @Ktre. I’m still in shock and feel totally numb.Great work re your fundraising.