Metastatic Group

We are thinking of you @LITHGOW1950 in what we kniw is a difficult week. 

Good luck @LITHGOW1950. Crossimg all my bits for you that the results are as good as possible. K xox

@primek. I go back to the oncologist next Tues for all the results. I’ll Have a chest Ct scan this morning. A total week of tests!!!
Thank you for asking. 🌹

Thank you so much for your reply.  It's the first time I have

@LITHGOW1950 how did your appointment go?

Thank you so much for your reply.  It's the first time I have used.  @name!  Hope I did it correctly.
i didn't realise how sore I would be after the nodes were taken out as the lumpectomy was I think fairly pain free.  I'm seeing my surgeon tomorrow although my GP thought all was looking ok. They are checking this biopsy.  But I do remember, three years ago when first diagnosis, they had the same problem and the biopsy had to be checked three times!
i see oncologist next Tues 23 Oct so yes will find out results and plan.
Lucky I'm a really good sleeper.   When I feel anxious it hits my tummy.
once again thank you so much for taking the time to help me with your response..
🌹🌹🌹

@LITHGOW1950 I think 2 weeks is a short time for full recovery of lymph node removal so I'd expect you to still be sore but if you are getting a lot of burning and its very red and /or weepy I'd be getting it checked in case of infection. 

It might be unusual for the cancer to change but it has happened with others and this is why they they rebiopsy all recurrences. Although devastating that a recurrence has occurred (and lets hope  its is just contained to your nodes) if now her2 + it certainly gives you different treatment options. Are they rechecking thus biopsy or your original? I know of someone who was tnbc and ended up with a recurrence of Es+Her2+. 
So you are now back on the waiting game for results and treatment plan. I expect your sleep is shot to pieces. Know we are thinking of you and will support you any way we can. Kath x

@primek. Hope I have entered this correctly.  I was interested in you reply about lymph nodes.  I had 16 removed two weeks ago with 11 containing cancer.  In 2015 I had a lumpectomy and when they checked the sentinel nodes (took five) all was clear.  My diagnosis back in Aug 2015 was tnbc.  Thought I was going well till I found a small lump while  excercising and after a biopsy it showed to contain cancer! And I was doing so well.
a CT scan a few weeks ago showed two small "marks" on my right lung ( same side as I had the lumpectomy) so oncologist has requested another CT this Fri to see if they have grown big enough to biopsy.  Also there is some confusion with my biopsy results.  I was HER2- the first time around but this time it showed HER2 positive which the oncologist is having rechecked as she believes it's not possible to change from negative to positive.
so this week I have appointments every day.
a question .... I with the lymph node removal I am so very sore and uncomfortable especially under the arm. I have started the excises.  Any idea if that is normal? The operation was just over two weeks ago.
thank you 🌹

@iserbrown not even sure what I’m after-just thought metastatic group might have discussion/threads that might help. Don’t have consult with oncologist/respiratory physician until next Thursday so don’t have any real detail. Had biopsy of lymph node/mass (GP was not sure) in neck that came back positive for cancer (she said they did not have all the pathology but enough for positive result.) Also my lungs/breathlessness very bad so expecting similar finding.
Thank you x

@BoraBora 

In the meantime if you wanted to tell us on here or start a new thread on here with a little detail others will come on and support you.  Hopefully the gremlins that make links and things a little off colour will be up and running and then you can natter in private with others similar to you

Take care