Immunotherapy for er+pr+ HER2-

Yes new drug for Hormone positive her2 negative..... See palbociclib post today

Hi Lizzie13. Yes Triple Negative is very aggressive, but my thought was that there are other ways to treat cancer of all kinds, which I saw at Hallwang Clinic.  They even had success with a Triple Negative lady from France who was given up on in France.  Her name is Alice and you can see her on Hallwang Facebook site.  I just think that the Germans are very far ahead of Australia in treating cancer, mainly because they try everything according to what blood and individual tumour testing shows. I do trust the doctors at Hallwang but maybe all their treatments won't work for me, but at Hallwang everyone is treated individually.  Here we all have to take the same medicine to see if it works or not.  It's all very confusing, only thing about Hallwang is that because they have to source experimental drugs from the US it's quite expensive.  I think all drugs should be available for everyone and I understand why Australia is very cautious but maybe here the doctors could be a little more experimental with personalised individual medicine, as it's just blanket treatment for everyone.  Could be good or bad, but I just tried Hallwang, and of course I take my medicines here as well.  It's just that as I said earlier, the GP2 vaccine that I had is shown to work with faslodex which I take, you can google GP2 vaccine, and it can be used if you test positive for HLA, to which you may be positive whether you are Triple Negative or any other combination of character of cancer.    I had my own personal trial along with intense vitamin infusions and I do think it worked as my tumour markers went down and all my bloods were normal when I came home.  Maybe it will last or not.

Hi Giedre, the main reason that most of the trials for immunotherapy world-wide is for Triple Negative is that we have NO targeted treatment at all. Triple Negative is aggressive, fast growing and very destructive and most often attacks the young woman and has a strong correlation to BRCA gene positive therefore research is targeting this group, particularly with immunotherapy because of this. I know that most trials in Australia with immunotherapy at the moment is for Triple Negative BC mets.

You're welcome Giedre. I understand that the policy team won't be back in the office until Jan 3rd (and then may have several queries to deal with), so please don't be concerned if you don't hear back quickly.
Best wishes, Caroline

Thank you Caroline.  There are a few people from Australia on the Hallwang Facebook site, with great testimonials, one is a man from Sydney who was given up on with his bc spread in Australia,  
i agree with you primek, it can't hurt but I am just hopeful the vaccine can keep the bc in my bones.  The only drawback is the long flight to Germany, but my husband came with me and they also have accommodation in house at the Hallwang Clinic.

The vaccine sounds intetesting...I tried to navigate if we were doing clinical trials here but it is difficult to find. Being a her2 grade 3 (plus es+) I am very interested. They way I look at it...it can't hurt.

Hi Cath.  Yes the Hallwang Clinic was good I think, as I have to wait to see the results of their vaccines.  The main doctor there, Dr Nolting is very kind and compassionate and researches cancer and immunotherapies.  The vaccines come from MD Anderson in America and Germany doesn't have the strict rules for medicines that we have here.  I found out about Hallwang as I stumbled across the Inspire website when I was first diagnosed.  I don't go on Inspire much, only lurk a lot.  It was good to go to Hallwang, and they do have good results, they have a Facebook site too and the lady, Elizabeth who is on there now, we met there and I'm very happy that she is in remission as she was very very sick.  Merry Christmas to you too.  Xxxxx. 

Hi Giedre, I hope that you are doing well. I will let our policy team know about your query and see if they have any information to add. Due to Christmas staff leave, it may take a while for the team to get back to you. Very best wishes, Caroline

Hi Giedre, I read your post with a lot of interest and then checked out the Hallwang Clinic on the internet. What a fantastic clinic. Must have been pretty incredible to have gone there. They sound as though they are forerunners in immunotherapy. Totally agree that it would be great if the testing was available here. Thank you for the post and please continue to let us know how you are getting along. Merry Christmas Xx Cath