Forum Discussion
MicheleR
4 years agoMember
Dont follow me Im lost too
Im about a year out of active treatment and I seem to be in a slump. I experienced euphoria and gratefulness for being alive following treatment and some days since Ive felt genuinely happy but more recently a less light feeling is emerging.
I had a coffee with a friend today and found myself saying " when will i get over this?". How long is it reasonable to talk about this experience with friends (those that didnt keave) and the enormity of it to my life? I feel like ive just returned to a slightly different life grind and im struggling to see the wood for the trees.
I work less, see people less and health practitioners more. I exercise 3 or 4 times a week and do crafts things. I have children to look after.
Im thinking of buying a graditude journal to try to pull myself out of the blues.
Is this common? What have other people done? Are there any good books I can read?
I had a coffee with a friend today and found myself saying " when will i get over this?". How long is it reasonable to talk about this experience with friends (those that didnt keave) and the enormity of it to my life? I feel like ive just returned to a slightly different life grind and im struggling to see the wood for the trees.
I work less, see people less and health practitioners more. I exercise 3 or 4 times a week and do crafts things. I have children to look after.
Im thinking of buying a graditude journal to try to pull myself out of the blues.
Is this common? What have other people done? Are there any good books I can read?
28 Replies
- FLCloverMemberOh yes, I do definitely get that this isn’t about you wanting attention. Believe me, I get it. It is about people who are ‘too busy’ or as you said, uncomfortable. Who don’t get that friendship isn’t always roses and rainbows.♥️
- FLCloverMemberIt’s not always a work thing Michele. A lot of the time it’s things outside work. We realise we have been living like robots, as you said with lots of constraints. Lots of obligations. These things have been getting to me too. I feel like they always did, but it’s especially obvious now as I too have a lot less tolerance for things I consider time wasting. And my heart also craves doing things I find joyful, which aren’t always in line with what society and its demands expect of me. But I haven’t exactly always agreed with society. Now even less. There are things I feel are just really nonsensical, and so I refuse to live by them. They agitate me a lot. And this is what I meant when I said I’m not scared to do what I want anymore. I don’t care if others judge me, or feel it’s wrong, or this or that. As long as it doesn’t harm anyone, I will do what I feel is the right way for me. If it means some friends and family won’t be happy about it and will avoid me, so be it. That’s on them. I’m no longer responsible for other people’s happiness, and making myself miserable to satisfy them. I’d much rather be alone and happy, than with lots of people and very unhappy. I find that we’re mostly depressed or unhappy when we don’t listen to ourselves. We all know what we really want, we’re just too afraid to go after it. We’re scared of being shamed and judged. But if the only opinion you care about is yours, and you have a clear conscience when you look in the mirror, then nothing else should matter.Also, please remember, people’s intentions are not always genuine. A lot of people are miserable, and get upset when others have the courage to live like they want and be happy, so they’ll try and drag you down with them. They’ll shame you into giving up what you want, so you’re miserable together, because if you’re brave to get what you want it just makes them feel even more shit that they’re not living according to their happiness. It’s hard to accept this but unfortunately it’s true.You’re not wrong to feel really disappointed that friends didn’t react to your expectations when you had a life threatening illness. You’re not wrong to have expectations either. The truth is, people are just scared little kids inside. They have no idea how to deal with these situations. They should try and learn if they don’t, and ask you for what kind of help you’d like, but they were never taught that. No one showed them how to truly help another person, and they didn’t figure it out on their own either. I don’t think you should necessarily lower your expectations, but find the ones who will reciprocate your level of care, and stick with them. It could be someone you haven’t even met yet, that’s why I said sometimes you need to let go of the old. I’ve met better friends since this whole shitfest started. It kickstarted me into finally releasing ties with people who didn’t fit my world anymore. Not fighting with anyone, just energetic ties. And don’t expect to go back to what once was. Why would you want to? Cancer happened for a reason. You now know what you know, so you can act on it and change what wasn’t working. What could be, I think, is a lot lot better than what once was. Life is chaotic, but there’s always a way to get joy out of it. Just don’t rely on others for it. You’ve seen, people can be so disappointing. And it’s not their fault, they’re just dealing with life with what knowledge they have. Take people on the ride who are ready for it. Choose as you need to. It’s your ride, you make up the rules. Whoever isn’t happy with that can bugger off.Don’t rush to move forward. You will, but think about what is making you feel constrained, and that’s what you need to work on. Whatever makes you feel unhappy tells you a lot about changes that need making. The answers are all there, you just need to be brave enough to see them.
- MicheleRMember@FLClover
And I think you get that its not about wanting attention or drama it is purely that I was in trouble and people were either too busy or didnt want to be uncomfortable. It wasnt about me at all. It was too hard for them. - MicheleRMemberWow @FLClover. Thats quite powerful.
You are right in the sense that Im not doing exactly what I want. Its not a work thing, its more what I spend my time on outside work. Im less able to tolerate people wasting my time too. I suppose Im pursuing health things and mostly I want that its just that sometimes my heart craves just doing my own thing rather than doing things in set times like work, exercise, appointments, collecting children, fitting in seeing family etc. Its somewhat obligations.
Relationships change. I guess my expectation about how I would behave if friends had a lifethreatening illness werent matched by my experience of what happened when I had a life threatening illness. I got flowers but once the immediate drama was gone, people watched my facebook in a voyeristic way but didnt offer help largely (some people) or want to see me. People who I didnt expect were the ones who stepped up. Family were lovely. In fact some friends expected support from me when I was least able to give it and made me feel that i was a problem. I suppose once you know you know and how do you go back to what was before? Covid hasnt helped. People seem to have more opinions held so strongly that they lose themselves and I feel hurt that chasing conspiracies was more important. But im trying to move on. I just dont want to bore the ones left. And i feel its hard when lots of very full on things have happened all over.
There are other things going on of course in my life, too much to explain but I guess Im aware of needing to move forward and feeling constrained feeling like i should get on with it and wondering how and what type of relationship i now want (or dont) with others.
M - FLCloverMemberHi Michele. So sorry to hear you’ve been feeling like this. I guess I’ll put my 2 cents worth in.I was in a slump 2 years before my diagnosis. My sister bought me a gratitude diary, bless her. It was beautiful, but I had trouble filling it in. Not because I was ungrateful, but because there wasn’t much that was making me happy. I resent the fact people expect us to be grateful for what we have, especially us that have been through cancer etc. I am very grateful for my life and my renewed health, more than I can express, and/but I want more. I shouldn’t have to settle. This world has a lot to offer and I want to experience it. I have every right to. So, when someone says just be happy with what you’ve got, my answer is no. I will not ‘just be happy’. I want what I deserve.About the friends, I was already disappointed prior diagnosis. I had moved further from Sydney, and absolutely nobody bothered to come visit me. When I’d go back to Sydney for the weekend, they’d be like ‘why didn’t you tell us, we have to catch up! Come again next weekend!’ Um, excuse me?? Tell you what?? You can’t come up and visit me, only an hour from Sydney, then act like you care?? I’m the one who had to keep travelling with my daughter in tow to see them!! Some of them didn’t even have kids, and still expected me to run around to see them. Plus, I was going through bad panic attacks. Once again, ‘oh, I’m sorry to hear’, then straight away talking about their own problems and expecting me to listen and offer advice. Just taking, never giving. So that was understood then, that my friends were really disappointing. And yes, I was pretty sad and upset about it. It made me feel very lonely. Thing is, I’ve always known people are very unreliable, so I wasn’t sure why it bothered me so much. I know that only one or two friends will ever be ‘true’ friends. And to answer your question, I think that you should be able to talk about your situation as long as you need. There’s no timeframe with real friends. You should never feel awkward discussing it.After my diagnosis and surgery/treatment, I did see a therapist for 6 months. She helped me A LOT. Not in helping me feel grateful and all that nonsense. She helped me understand why I had been in a slump for a while before diagnosis. She helped me understand why I cared that my so-called friends didn’t care, and why I felt so lonely. It was mostly to do with childhood traumas and having them (the traumas) make me feel like I was worthless, and like I didn’t deserve good things, which ate at my self confidence and caused me to lose myself. I became doubtful of everything. Couldn’t make a decision because I kept questioning it and all the possible consequences. Kept thinking it would be for nothing anyway, that I’d still be unhappy and it would be too much effort, so I wouldn’t do it. This also affected my ability to advocate for myself when my first surgeon was being an ass, and also not breaking up with the guy I was dating, who was being a bigger ass. Well, the day I decided to dump both those bozos is the day I started to say enough of this bs. I got my therapist, started going in within myself and understanding why I believed I wasn’t worth more. Dumped as much emotional trauma as I could, released it all, and starting advocating for myself again. It wasn’t easy. It was tiring and confronting, really hard work, but so worth it. I found myself again, my confidence, the me that knows I deserve not just good, but fantastic things. I found the courage to pursue them and make radical changes. Not allowing fear and possible consequences to get in the way. Confidence that even if it didn’t work out, I’d be able to solve it. I could under no circumstances go back to the life I had before, the one I was miserable in. And I stopped caring that none of my ‘close’ friends seemed to care. Truly stopped caring. I realised very clearly that they didn’t care about me because they didn’t know how to care for themselves. Actually didn’t, and still don’t. They’re more lost than I was. You can’t ask for support from people who have no idea how to give it even to themselves. I’m actually a lot happier now than so many of them, and once again not one has said good on you Mon, you seem to be doing so well in spite of everything. I’m happy for you. Not one. Acquaintances have said it, but not friends I considered close. No one wants to know that someone they know beat breast cancer and is doing well for themselves, while they’re still slumping through life. Not many are genuinely happy for you, and I’m quite happy not having to be friends with those kinds of people. As I said, I have myself. I’m very happy in my own company, and have made big changes that I was scared to make before. I’m planning on making even more now.We need change, it’s good, it keeps the energy flow going and fresh, which invites happiness. Don’t get stuck on the old, it taught you what it needed to, it’s probably time to let go and move on now. I still see friends, but I’m not even slightly disappointed or upset if someone doesn’t invite me here or there, or doesn’t want to hear me out. I want to hear me out. I also have my sister and a couple really close friends that always listen, and that’s enough. Everyone else is just a bonus.So my advice: make radical changes, and find yourself again.♥️
- iserbrownMemberI find it's the heightened awareness of self that initially dominated.
In time I settled back into the everyday routine being fully aware of where I had been, how terrific my collection of Specialists have been and still today, keeping me thoroughly checked and grounded.
In our everyday we are evolving and as we turn the calendar and reflect on our experiences.
I do hope in time you feel more settled
Take care
Best wishes - TonyaMMemberI think your feelings are quite normal MicheleR. You’ve put on your game face to get through all the treatment and now the worst is over, you are left thinking what the hell just happened?
From my experience (twice on the bc merry go round) it took me about 2yrs to get some confidence back in my health and myself.You’re a different version of yourself and you are trying to’fit’ into your old life.Hell,clothes and bras are just for starters! Just take your time to recover,nurture yourself and do what brings you abit of joy. I did some art therapy and like you, sewing for myself. You certainly don’t the angst of starting a sewing business (not yet!) FYI I just saw ‘‘Ruby’s Choice’ and that was abit sad too- very good though. - MicheleRMemberThanks all. Im just having a bad day perhaps. Ill go see my psychologist.
Ups and downs... - arpieMemberThinking of you @MicheleR - This bloody disease (and all cancers) just totally suck - and totally mucks with our brain even more than our body. :( xx
Take care - you are not alone xx - AfraserMemberI felt I had a lot of support from friends and work colleagues during treatment but mainly I got that feeling because they just treated me normally. I talked to my medical team about side effects and issues, I wasn’t expecting others to adopt that role, not least of all because it wasn’t their strength. Many people discover that they become the comforters of their friends and relatives! It sounds crazy but knowing someone who has cancer is a vivid reminder that something bad could happen to you too and often people can’t cope with the idea. Being treated as if I hadn’t changed, helped me. It doesn’t work for everyone. I came to grips with changes I wanted to make in my life, slowly, a full year after diagnosis. Having an ‘outsider’, not a friend, to help clarify my thinking and understand my motivations better (about life, but not specifically cancer) helped me make useful decisions post cancer.