Forum Discussion

SuzyS's avatar
SuzyS
Member
2 years ago

Letrazole effects

Hi all, I start Letrazole in a couple of weeks (once I finish my radiotherapy) and been reading through the forums, most seem to be a list of horrid side-effects. I know people who had a much easier time often don't say.
So I'd really love to hear from people who have/had minimal side effects. I'm hoping for a nice easy time with Letrozole...lol
letrozole
side-effects
  • KerryC's avatar
    KerryC
    Member
    2 years ago
    I’ve been on Letrazole since January this year and haven’t noticed any side effects. I will be having a bone scan soon so will be keeping an eye on that. I am also quite active which I feel really helps me physically and mentally. 
  • Christabel03's avatar
    Christabel03
    Member
    2 years ago
    I started Letrazole this week after a terrible run on Tamoxifen and then also Exemestane. So far the only thing I can tell is it has stopped my appetite. It's like someone flicked a switch it was that quick. I am really hopeful this one goes ok as I am petrified of the limited options that I may have if I can't take the tablets moving foward.
  • GE57's avatar
    GE57
    Member
    2 years ago
    I took Letrozole after finishing chemo. Within a short few weeks I had extreme joint pain then a condition called “trigger finger” started. My middle finger would lock up on a 45 degree angle with extreme pain. Lots of tests and physio. After arguing with onco, I finally stopped taking Letrozole after persevering for 9 months. No more trigger finger! 
    Good luck with your treatment. Hopefully it doesn’t give you too much trouble. 
    If you do experience side effects, talk to you doctor and make sure they take you seriously. 
  • SuzyS's avatar
    SuzyS
    Member
    2 years ago
    Sorry to hear that @GE57, I've been on Letrozole now for 8 weeks with no side effects - hopefully that continues.
    I do get 'trigger finger' in the middle finger of my left hand but have always had it & it is no worse than prior to Letrozole.
    Good luck with everything.
  • GE57's avatar
    GE57
    Member
    2 years ago
    @SusyS that’s great that you’re getting on ok with Letrozole. I’d never heard of trigger finger prior to my experience. 
    Good luck with everything too. 
  • arpie's avatar
    arpie
    Member
    2 years ago
    Mine comes & goes @GE57 - even now, 5 years after starting AIs .... I also come from an arthritis background & had it now & then 15 years ago too, way before my BC diagnosis (so much so that surgery was discussed at the time but i resisted ....) but after starting AIs ... it got really worse ... 

    Just now, it is behaving, tho the base of my thumbs both play up more now, than the trigger finger!  grrr