Using 'the oil' for Exemestane side effects
Hi there, I'm curious to hear from people who've been using 'the oil' to treat side effects of hormone therapy. I've noticed people don't say the actual name of it, assuming it gets flagged?! To cut my long story short... Diagnosed in June, mastectomy in July, radiotherapy in August/September, and then started hormone therapy September/October. I'm on Goserelin every 28 days, plus Exemestane daily. I'm told this is the plan for the next 5-10 years. However, my joint, ligament and muscle aches are horrible! I've read similar side effects from others on here - where there's a joint, it aches, particularly overnight - I didn't even know elbows and knuckles could ache! My feet are so painful to walk on any time I get up from sitting/lying down. I'd heard a few people say the oil has helped them with these side effects. I've been taking it for 5 weeks now and am quite disappointed that I feel very little effect. I'm taking Altreleaf C B D 100 ISO - 100mg. I take 0.5ml in the morning, 0.5ml at lunchtime, then 1ml at 8pm. He gave me one containing T H C too (because I asked for it ;-) but I can't really use it as you can't have it in your system at all when you drive. I'm 46 and a mum of two young girls so driving is a pretty essential part of my daily life. I'd love to hear it others have tried the oil and had similar disappointment, or any success. I'd also love to hear from anyone who's been on Exemestane and changed to another drug - because I'm told it's brutal and not many women stay on it. I'm thinking my only option really is to switch to something else but worry it'll be the same! Thanks in advance!
Hormone treatments, tamoxifen and tendonitis
Hi there, I'm very new to this, but wondering if anyone has experience of tamoxifen and tendonitis? I've had two different types of breast cancer, but one side was HER2Positive so since January this year I have been on anastrozole. In late July I got extremely painful tendon damage - a torn and swollen hamstring tendon near my seatbone, so it really hurts to sit, and two other gluteal tendons with tendinopathy as well - no idea what set these problems off, but discovered that anastrozole, in reducing oestrogen, weakens tendons. My Oncologist said suspend it, so I haven't been taking it since early August. She later offered me a script for Tamoxifen instead. As Tamoxifen also is designed to reduce oestrogen I am wondering whether I should switch to it or not? I don't want a breast cancer recurrence, but my life quality at the moment is much affected by the tendon problem which is not healing very quickly at all. It's going to take many many months I think. If I take tamoxifen now will I slow down the healing? What should I do? Anyone out there had any experience with tamoxifen and tendons? Thanks for any experience you can share with me!!!
Breakthrough bleed after first dose???
Hi all, after finishing 15 rounds of radiation therapy, i took my first dose on tamoxifen at 10am this morning, only to develop a breakthrough bleed by 5pm. I am perimenopaul and my last period was in Nov 24. I will be contacting the Doctor tomorrow but has anyone experienced this? Do these bleeds stop on their own? Thank you in advance.
Exemestane & cardiac symptoms
Hi all, Apologies if this has been covered before but I am hitting a brick wall with my oncologist who has denied any knowledge of problems with taking anti hormone treatment such as exemestane and it aggravating pre-existing hypertension & heart palpitations. I stopped taking exemestane and my blood pressure average dropped 20 points and the bad headaches also stopped but my oncologist doesn’t think the drug caused the blood pressure problems. All they want to do is push another drug but I don’t want a repeat as it adversely impacted my ability to work & I didn’t feel safe as I had a hypertensive event whilst exercising. Has anyone else experienced similar problems as I can’t believe I am the only one to have this happen to although my oncologist said she had “ never heard of this before” or know of any current studies or literature I can show my oncologists? I feel like I’m being fobbed off and being labelled as an inconvenience as not wanting to tow the easy treatment line. Being in a regional public health system is also probably not helping with the quality of care & concern. Any suggestions would be welcome. Thanks
Hormone blockers
I have just completed radiotherapy and will start Letrozole in a few weeks. I am petrified having read the side effects experienced. I am in menopause and wonder if the impact will be less or if there are many who don’t have any side effects? Anyone with positive stories about Letrozole?
Letrozole and GERD
Was taking Letrozole for 13 months when I started getting severe pains around my breast bone (like an alien trying to burst out). I thought it was my heart. Medical oncologist felt it was the Letrozole interacting with my diagnosed GERD and told me to stop for a month then try Anastrozole. Over that month the pain slowly left leaving me very relieved to know I wasn't having a heart attack...lol Been on the new med for 10 days and so far so good. No side effects (touch wood). When I started Letrozole I had hot flushes, joint pain, headaches, immediately. They eased off to just very occasional hot flushes but an enormous weight gain (12kgs). Fingers crossed this new medication is much kinder to me.Anastrazole side effects
Moderator moved @Sinko post to own discussion post: Sinko Brisbane Member Posts: 1 ✭ 12:12PM Hello out there I am brand new to this site. I was diagnosed with an Invasive Lobular carcinoma in September 2022 along with cancer in 5 lymph nodes. I was also diagnosed with HER-2 negative which I don't fully understand but the end result has been firstly a lumpectomy then 8 days later it was necessary for me to have a Mastectomy of my right breast. After surgery I started A/C chemotherapy also know as Red Devil x 4 hits of that horrible drug then 9 hits of Paxlitaxel as they had to stop it early due to Neuropathy. I managed to get through that lot then ended up back in hospital 5 days later with an E-coli infection in my bladder which had turned sepsis. The next step was 25 hits of radiation which was a walk in the park compared to chemotherapy. Now I have been on hormone blockers for 8 months so far and I would love to hear if anyone else is taking Anastrazole and hiw they are coping. Are you struggling with bone pain etc. My breast surgeon and oncologist have told me there are no guarantees that my cancer would not come back but this is my best chance. I would really appreciate any comments or advice please. Thank you for reading my very long blog. Kindest regards SinkoHives
Been on Letrozole for 9 months. A few side effects (weight gain, hot flushes, occasional diarhroea). But now I have hives on my Labia Majora. I've been using Aloe Vera which has stopped the actual itching. Any suggestions on dealing with hives? Because it's from medication I don't know if it can be cleared up.
Letrozole / Zoladex Side Effects Hitting Hard
Hi there, I'm day 9 of Letrozole, and week 2 of my second Zoladex injection. The joint pain has hit, but my biggest challenge is fluid retention, especially in my legs. Sitting and standing are really hard, I can't bend my legs more than 90 degrees. I've tried lying with my feet elevated but to no apparent benefit. (both drugs' eviQ notes have edema as a side effect) Given it's Good Friday and everyone in my medical team is uncontactable, any clues on what I can do to alleviate or relieve this? Taking 2 hourly meds for the joint pain (panadol then nurofen) but this has no discernible impact on the swelling. Meant to be flying to Perth tonight to see my father - but worried and thinking I should cancel. Any advice? Kelly
Letrozole for hormone therapy
I have a personal update for anyone on the Letrozole for hormone therapy treatment. I started on the 6th Feb 24, and the last 2 weeks, the side effects have certainly become evident. Bones and muscles aching, hot flashes continuously, constipation, headache, the worst one is the heel pain burning like a red hot poker. 29 pills in I can't stand it. Rang the oncologist and he said to stop them and in a fortnight see how I'm going and prescribe a new drug! Guinea pig trials continue 🙂
