After a break, Letrozole, continued...

Right back at you @DebbieMc! K xox :*

@kmakm  I'm so sorry your ankles started aching again, I did read joint pain is a side effect. Oh and you've got the fatigue too :(  I likened it to chemo fatigue. I find fatigue and sleep two different things, fatigue I just lie there awake or with eyes closed but not sleeping. I wish I had an answer to that, fingers crossed it will abate & the ankles will stop being so painful too. Sending healing thoughts your way. <3

Hi @DebbieMc. I took a one month break from Letrozole in December (after taking it for six months) and when I started back my thumbs and hands were not as sore. My ankles resumed their aching as before though.

I know @kezmusc has had alleviation of symptoms after Tamoxifen breaks. It's interesting anecdotal evidence of something I suppose! I've never read or heard about it anywhere else.

I hear you about the fatigue. The last two days I've been exhausted. No rhyme or reason, just knackered completely out of proportion with my activity and sleep levels. Currently my oncologist is saying five to ten years, so a minimum of four years and two months to go...

I'm late joining in this conversation but I was on Letrozole straight after chemo 5yrs ago & could hardly walk, it was horrible. After another drug didn't work I was on Tamoxifen which was great for me but when the brain tumour appeared last October I was taken off it. Also due to a long plane trip to the UK I had to stop taking it in case of DVT. Recently I was put back on Letrozole & I was so fatigued I'd just lie on the lounge crying all the time so took myself off for a few days rest. Then I went back on it & surprisingly the fatigue didn't come back & the crying is more other things going on in my life than the tablets.
A lady in my cancer support group begged me to stay on it as she said it has given her extra years of life which wasn't expected but she does have fatigue with it. As she's on her fourth year she has only one year left of taking it so it's not worth her stopping it.
I hope that helps others having trouble with it, I have no clue why the fatigue didn't return after the break though.

@Brenda5  great to hear your brain is back,  feels good huh? 
I said the same thing pretty much to my GP this morning when she asked how I was going.  This is not something you get treated for and then just get over.  
All the best lovely. 

@Brenda5 I hope you're able to regain full health. Getting older ain't for sissies that's for sure! And that's before you throw in breast cancer... K xox

I presume my oncologist has no other suggestions of other hormone therapy after I got SVT while on Tamoxifen and Atrial fibrillation while on Letrozole.
His nurse finally rang me back two weeks after I rang for an appointment and said he will move my October appointment up to June. There was no mention of going back on to Letrozole. Perhaps he is waiting to see if the heart settles down and it really was as a result of Letrozole?
I have to have a bone scan just before the June appointment. That will be fun..not!
I have my brain back, and nearly all aches and pains are gone. I am finally living although I still have to take things easy because of the heart thing. Seems everything I do has a consequence. I tried mowing the other day and pulled the muscle in my shoulder. I have come to the realization that breast cancer is not a little fix it and get over it and back to life thing like friends and family think. It seems to me to be life long.

Mine was done through my GP.  My Onc is more interested in my bone density

For some reason, I don't have my cholesterol checked. I could not tell you what my levels are.
I asked my oncologist about this. She told me that I didn't need to have my cholesterol checked. 

No worries!  Personally I have butter over margarine and I prefer full fat to low fat products!  It is about our own taste buds and choices and for me I have always had a good cholesterol reading along with my other levels.  I was unlucky enough that a side effect of Letrozole was a high level of cholesterol.  Now I am not back to the 3 that I was years ago but a 5 which is within the Heart Foundation health guidelines.

When I was diagnosed I found myself having a heightened awareness of my health and all the variables that go with it.  Just this week I have had a multitude of tests including an ECG and I am pleased to know that everything is ticking along as it should.