Forum Discussion
kmakm
7 years agoMember
After a break, Letrozole, continued...
Drug holiday over, today I started taking Letrozole again. At night this time. Don't know that it will make any difference but worth a try.
If/when (she said optimistically) the side effects return, I'll start my curcumin trial.
It's been really really good to be pain (and dandruff) free for a few weeks. I feel it's given me a boost, and more strength to continue.
If the side effects don't settle down my oncologist was quite keen to put me onto Tamoxifen. From what I've read here I'm not so sure. Better the devil you know...?
If/when (she said optimistically) the side effects return, I'll start my curcumin trial.
It's been really really good to be pain (and dandruff) free for a few weeks. I feel it's given me a boost, and more strength to continue.
If the side effects don't settle down my oncologist was quite keen to put me onto Tamoxifen. From what I've read here I'm not so sure. Better the devil you know...?
328 Replies
- Blossom1961MemberThank you @Flaneuse for the sequence of those exercises. I do them frequently but didn’t realise I needed a sequence. I currently do not have any issues with this but would rather not add to my growing list. I will try to keep the sequence thing happening. My morning preparations used to take me half an hour. Oh for those days again. I try to tell myself I am pampering myself but it still feels like an effort. No stretching for me at the moment but the oil massage and the moisturising and the deep breathing relaxation have become part of my daily regime. I have also started on feet care which is proving interesting. I will post up the link if it helps with my feeling of wellness as is the claim.
- FlaneuseMemberIt IS a full time job! The joints, the arthritis, the nether regions exercises, the arm exercises, the all-over exercises, the skin care, the medications, the lymphodoema massage and periodic physio visits for measuring the lymphoedema, the remembering to put on the sleeve in the mornings, the cording massage, the periodic scans for BC-related stuff, for thyroid nodules, 3-monthly melanoma checks for me ('cos I've had five), and strapping my torn and swollen Achilles ... ah fuck it!
- kmakmMemberRight! I think I'll give all that a try before going to see a professional. Another thing to add to the growing list of 'self care'. It's almost a full time job... Thank you womyn. :)
- SisterMemberVaginal dryness can cause the irritation type feeling.
Just be aware with pelvic floor exercises, they used to say to practice by stopping urine mid-flow - this is actually really bad as it can cause problems with emptying the bladder. When I was pregnant, my physio used to say to imagine a string went through your body from your vagina to the top of your head and that it was being pulled. She would also get us to hold up the pelvic floor with our hands between our legs and cough to practice the hold. - Kiwi_AngelMember@kmakm I’m the same - I am a generally bloated and water retaining mess!!
- kezmuscMemberSame same @kmakm, feeling like you have to pee constantly then you go and it's a trickle. Annoying much. Yes they do help with that. Also I found that if I really had to go the closer I got to the loo the harder it was to hang on. Wierd huh? It's improved that as well. Thankfully.
- FlaneuseMember@kmakm I believe the exercises do help with urgency. I think it would be worthwhile to ask your GP for a referral to a pelvic floor physio. Mine (in the public system) has been superb. Each time, she has done an internal examination (they call in another physio as a chaperone, who stays behind the curtain). She can measure all the relevant factors. She said that 50% of women who do exercises don't do them properly. She taught me to do them properly while her fingers were in there, to ensure the correct process. I had been doing it properly, just not in the correct rhythm and frequency.
Twice a day, lying down: keep breathing normally. Nobody should be able to notice that you're doing it.
Hold for 12 seconds, rest for 5 in between. Do that 30 times.
Then hold for 1 sec, rest for 5 in between. Do that 20 times.
I count them off on my fingers. It's actually quite relaxing. I do it when I first wake up (after a loo visit) and set an alarm for 2 pm. - kmakmMemberI haven't done the pelvic floor exercises regularly since I was having babies. It's not a continence issue as such, it's an urge issue. It's as if I've drunk all day is coffee; it's that kind of irritated bladder feeling. Do pelvic floor exercises help that? Either way, I'll build them back into my day. Won't hurt.
I will definitely be discussing it with my GP next time I see her.
The sodium issue is interesting. Not surprising given the summer we're having! Also, I drink a lot in the hours after taking the Letrozole pill to counteract the dry mouth it gives me. My oncologist spoke to me about increasing the salt in my diet given my low bp issues. I might make one of those drinks a Hydralight one.
As @Blossom1961 said earlier, I didn't sign up for all this! It's a minor irritation I know, but geeze, they just keep piling on. I am working on acceptance. This is my life now and it's potentially extending and saving it. I plod on. - iserbrownMemberIt maybe worth a checkup with GP
- FlaneuseMember@kezmusc I'd become slack (yes!) over the years because I'd neglected those exercises - and my sex life wasn't frequent enough in the past couple of decades to provide a regular workout. I said last week - if I'd been doing the exercises diligently all these years, just imagine how much better my pulling power would have been (double entendre intended).