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JessicaV's avatar
JessicaV
Member
11 years ago

Appointment cancelled for biopsy results

Last week, I had my 1 yr ultrasound and mammogram of my right breast after a year of surgery, chemo  and targetted treatment following my left mastectomy for IDC cancer in Jan 2014.

The radiologist identified a nodule 0.7cm in my right breast that had not shown up in my ultrasound last year and recommended a biopsy. .My surgeon sent me for a biopsy, but said that since he is away until 23rd Jan, he would arrange for the results to go to my GP.

Radiology biopsied it on Thursday, and told me the results will be through in 2 working days. I made an appointment with my GP for Tuesday afternoon.

I then did the maths and realised it might be through this afternoon, ie Monday. The radiology clinic confirmed that results would be available by late afternoon, but it might not be rung through until Tuesday morning. So I made an appointment with my GP for Monday at 5.15pm and explained she may have to ring to get the results.

Next I got a phone call cancelling my 5.15 Monday appointment, saying that these results take weeks at the moment so no point in keeping the appointment. I repeated that I had been assured the results would be available by the late afternoon, and that I needed to know because I would like to be able to  sleep tonight, want to know if I am about to start another year of cancer treatment or not.That I also had insurance forms to fill in and if the results were not ready, we could do that in the time so it would not be wasted. She said she'd talk to the doctor and it should be ok.

Then I got another call saying that they definitely did have to cancel my appointment, but agreed that if the results did come through I would be "looked after."

At 4pm, I rang radiology, who gave me the number of the pathology company. I rang them, and they had my results and said they would ring them  through to my GP straight away. I rang the med centre  again and they said they thought the GP had already left, and that I would just have to wait till Tuesday for my results. I said they could not do that to me, that I had to have them today,  from the nurse if the GP was unavailable.  She said she talk to the GP and see what could be done.

At 4.40 I rang back and the receptionist said that the nurse would call me back, but is very busy and has 4 people to see before me.

So now I am waiting, and hoping she will bother to ring, and won't leave me till tomorrow. I don't feel at all confident that they will look after me.

I trusted my GP. Now I don't. I feel really let down by her.

14 Replies

  • Hi Jessica. I would suggest that you send them an email detailing the events and asking for an explanation. That way they will have time to think and compose an answer rather than feeling confronted. I can remember my psychologist telling me that it's not a good idea to imagine what other people are thinking, as it is mostly likely going to be incorrect. Being a Psychologist yourself, You would know better than me how best to handle this situation going forward. I truly hope that you can resolve this with your GP, as you have mentioned to me before, your relationship with your GP is an important one. Let me know how you get on. Take care, Lynne
  • I wonder if half the problem may be that the receptionists think they have to justify cancelling appointments when in fact I totally accept that GPs have to juggle emergencies,  just higher priorities and even the times when her own personal life comes first, and that's fine. All I needed was for her or her staff to set me up to have the nurse ring my results through, good or bad. .It just seem weird that these adults think they have to lie to me instead of just saying sorry but  there has to be this change of plan.

    And the other assumption might be that she is assuming that I would rather wait 24 hours and get the same news from her GP face to face. than be given bad results over the phone by a nurse.

    What I find most confusing is the receptionist insisting that biopsy results take two weeks  and I had already passed on to the receptionist and the doctor that  the provider had assured me that it only takes two days.

  • Hi Manis, thanks for your helpful comments. I have sent my GP a letter telling her of the impact this event has had on me and my family, and asking what  happened here and why. I also told her I had thought I had a wonderful GP but am now feeling confused and disappointed, and asked her if we could talk it over sometime. Now I will wait and hope she contacts me and is willing to sort it out. I would like to reestablish a relationship of trust and trustworthiness. Hope this will bear fruit.

  • Good result. This highlights that i mAke. My breast surgeon appt a few days after my mammagram and ultrsound as one i dont wannt to have to overly wait but also she is so great that i only want her to read report, look at films etc and discuss: she has this trick that she reads the scans before looking at the report and that suits me. I love my gp but would not feel 'held' enough for her to do this. People go on leave etc and im not sure health professionals would try to be cruel and you know you don't know what else is in the waiting room...plus we are all people with our own lives and stressors: it might also be that this maybe usually it does take longer etc with another provider etc i would try to set things up that support you as best u can.  Best wishes

  • The key issue for me is that my doctor lied to me (or the receptionist lied in her name) when she said that results were taking a couple of weeks despite the fact that I had already sent the message to her  that radiology had said my results would definitely be through that day.

    So at best I was told my information was wrong, and fed misinformation by my doctor/her receptionist when they could easily have checked the facts and should have. At worst I was deliberately lied to by my doctor/her receptionist, in order to justify cancelling my appointment.

    And the effect if the misinformation (had I believed it) would have been that I and my family would have had to wait till this appointment at the end of next week that they wanted me to make before getting results that at that point had been completed. Which is a cruel thing to do.

    It is totally dishonest, totally  unethical, and such a breach of trust. How can anyone think it ok to treat a patient in this way?

  • Hi Jessica, That is fantastic news re your biopsy, but what a terrible roller coaster you have been on. I am a nurse in general practice and in my experience, the receptionists are the gatekeepers. Your G.P. may not have been made aware of your anxiety and phone calls that you made to the practice. I don't think people (even in the medical field) understand what we go through, the constant waiting game is relentless and draining. There definitely needs to be education on the frontline in medical and clinical settings, especially in general practice. I hope you meet with your Doctor and explain what has happened, I hope you will be reassured and regain your trust in her. All the best Jessica, Marls
  • Hi Lynne, thanks, yes I finally got a callback from the nurse, just before I had to go out to my meditation class. She told me the lump was benign, and when I asked what it was she said it was a fibroadenoma.So that problem is resolved with a wonderful result. A great relief.

    But now I have another problem to deal with.  I will be writing to my GP saying "We have a problem. I need to be able to trust my doctor to be honest and not to be cruel to me and my family, but it looks like you have broken my trust.

    Today is my daughter's birthday. She gave me most of last year, and was devastated to think that this year may be a rerun of surgery, chemo etc. I wanted the news quickly for her and my husband too, not just me. To try to convince me that we could expect to  have to wait 2 weeks was savage to all of us.

    The fact is that I only spoke to receptionists through this whole mess, never to her, and I suspect the problem may have been receptionists saying untrue things to make space to fit in some emergency patient or other important thing. But that is still totally unacceptable.   I need some answers from her before I will feel I can trust her again.

    The irony is that she has specifically assured me that she will always tell me the truth. She referred psychology clients to me for a time, and then she stopped. So  I asked her if this was because she had had complaints. She assured me that she would have discussed such things with me if they happened, not just stop sending people, but that she had stopped using the referral service involved. So maybe it is not her at all,  it is her staff. I still feel I need an apology and some real answers. Am I over-reacting?

  • Hi Lynne, thanks, yes I finally got a callback from the nurse, just before I had to go out to my meditation class. She told me the lump was benign, and when I asked what it was she said it was a fibroadenoma.So that problem is resolved with a wonderful result. A great relief.

    But now I have another problem to deal with.  I will be writing to my GP saying "We have a problem. I need to be able to trust my doctor to be honest and not to be cruel to me and my family, but it looks like you have broken my trust.

    Today is my daughter's birthday. She gave me most of last year, and was devastated to think that this year may be a rerun of surgery, chemo etc. I wanted the news quickly for her and my husband too, not just me. To try to convince me that we could expect to  have to wait 2 weeks was savage to all of us.

    The fact is that I only spoke to receptionists through this whole mess, never to her, and I suspect the problem may have been receptionists saying untrue things to make space to fit in some emergency patient or other important thing. But that is still totally unacceptable.   I need some answers from her before I will feel I can trust her again.

    The irony is that she has specifically assured me that she will always tell me the truth. She referred psychology clients to me for a time, and then she stopped. So  I asked her if this was because she had had complaints. She assured me that she would have discussed such things with me if they happened, not just stop sending people, but that she had stopped using the referral service involved. So maybe it is not her at all,  it is her staff. I still feel I need an apology and some real answers. Am I over-reacting?

  • Hi Jessica. That is absolutely shocking! I am stunned, after what you had said previously about your GP. Have you managed to get the results yet? My prayers and good wishes are with you, hoping for a good result. Take care, Lynne x
  • Hi Jessica. That is absolutely shocking! I am stunned, after what you had said previously about your GP. Have you managed to get the results yet? My prayers and good wishes are with you, hoping for a good result. Take care, Lynne x