Hello it's been just a long process already and still yet to start treatments. I was diagnosed on the 15th of August. Scan said 2cm mixed duct. Had a lumpectomy on the 5th of Sept and just got my results. The cancer turned out to be 7cm grade 2 and I'm ER/PR + HER2 - my K67 is 30% not in nodes and clear margins. But I have LCIS so they want to do an MRI. I'm am in a confused state at the moment as he wants to check if there's any other cancer in my boobs, but I look clear margins means not spread. Has anyone been diagnosed with LCIS and or a tumour being bigger than scan. Also they haven't told me my stage just my grade. Is that the same thing? Sorry I'm totally in the confused bubble.

Hi @Natwitts and welcome to the forum where you will get heaps of support and where every question and fear is reasonable. There are ladies on here who will give you heaps of info that helps you navigate this whole BC thing. I just walked in a fog for most of it. Lots of virtual hugs for you. What general area do you live in, You don’t need to be specific. If any of the other ladies on here are in the same area they will be able to direct you to wonderful local services. xxx

Welcome to this site @nattwitts I'm sure others will jump on soon and give you more info - you'll soon find that you become familiar with more than you ever wanted to know! Lobular is a sneaky beast so my guess is that your doctor is just trying to be sure that any further treatment plan is based on evidence. It seems to be really common, particularly with this sub-type, that the tumour turns out to be bigger than expected. Mine was scanned at 2cm no nodes - turned out to be 4.5cm with no clear margins and 3 nodes affected. My ki67 was really low but the cancer was pleomorphic which means it was really fast-growing. Basically, lobular is a different animal than ductal and most of what you read will be based on ductal. Stage and grade are different - grade refers to the cancer itself (2 being in the middle) while stage is how far it has gone through your body. I imagine that yours will be Stage 1 or early 2 but I have to say that my medical team don't seem to be too interested in the finer points of staging. Whether it's because, as a measure it has become a bit outdated, or because lobular behaves differently, I don't know.You may want to check out the private group. There's also a good US advocacy site - Lobular Breast Cancer Alliance.

I didn't have lobular but my tumour was twice the size than estimated from the mammogra and ultrasound. Our imaging is good, and improving, but the technology is not perfect by any stretch of the imagination. You'll find the increase in size story quite common.Regarding the stage, like @sister, none of my doctors paid anytime to discussing it. As far as I can tell it's just a short form of describing a patient's diagnosis without detail. Grade and ki67 are more pertinent. Stage describes the size and spread of a cancer. There are many shades in between so it's further divided, eg Stage 2A. The grade refers to the activity of the cancer cells, how fast they're multiplying. 1 is slow, 3 is fast. It's shorthand for how aggressive the cancer is.The breast cancer learning curve is vertical. You'll soon get the hang of it, and emotionally it will get better once you have a treatment plan. One day at a time is the way to get through this. Big hug, K xox

Thankyou. Xx. I'm grade 2 but couldn't see stage, so was alittle worried, but you have explained that well. Mine is clear from nodes and clear margins, but I have LCIS so they want an MRI to see if there's future cancer mayb around. Thankyou again for taking the time to explain. Xx

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Sister
Member
6 years ago
Welcome to this site @nattwitts I'm sure others will jump on soon and give you more info - you'll soon find that you become familiar with more than you ever wanted to know! Lobular is a sneaky beast so my guess is that your doctor is just trying to be sure that any further treatment plan is based on evidence. It seems to be really common, particularly with this sub-type, that the tumour turns out to be bigger than expected. Mine was scanned at 2cm no nodes - turned out to be 4.5cm with no clear margins and 3 nodes affected. My ki67 was really low but the cancer was pleomorphic which means it was really fast-growing. Basically, lobular is a different animal than ductal and most of what you read will be based on ductal. Stage and grade are different - grade refers to the cancer itself (2 being in the middle) while stage is how far it has gone through your body. I imagine that yours will be Stage 1 or early 2 but I have to say that my medical team don't seem to be too interested in the finer points of staging. Whether it's because, as a measure it has become a bit outdated, or because lobular behaves differently, I don't know.

You may want to check out the private group. There's also a good US advocacy site - Lobular Breast Cancer Alliance.
Blossom1961
Member
6 years ago
Hi @Natwitts and welcome to the forum where you will get heaps of support and where every question and fear is reasonable. There are ladies on here who will give you heaps of info that helps you navigate this whole BC thing. I just walked in a fog for most of it. Lots of virtual hugs for you. What general area do you live in, You don’t need to be specific. If any of the other ladies on here are in the same area they will be able to direct you to wonderful local services. xxx

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