Unsure

Welcome to this site @nattwitts  I'm sure others will jump on soon and give you more info - you'll soon find that you become familiar with more than you ever wanted to know!  Lobular is a sneaky beast so my guess is that your doctor is just trying to be sure that any further treatment plan is based on evidence.  It seems to be really common, particularly with this sub-type, that the tumour turns out to be bigger than expected.  Mine was scanned at 2cm no nodes - turned out to be 4.5cm with no clear margins and 3 nodes affected.  My ki67 was really low but the cancer was pleomorphic which means it was really fast-growing.  Basically, lobular is a different animal than ductal and most of what you read will be based on ductal.  Stage and grade are different - grade refers to the cancer itself (2 being in the middle) while stage is how far it has gone through your body.  I imagine that yours will be Stage 1 or early 2 but I have to say that my medical team don't seem to be too interested in the finer points of staging.  Whether it's because, as a measure it has become a bit outdated, or because lobular behaves differently, I don't know.

You may want to check out the private group.  There's also a good US advocacy site - Lobular Breast Cancer Alliance.