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Mez_BCNA's avatar
Mez_BCNA
Community Manager
4 years ago

Newly diagnosed - await treatment plan

Original post created by member @Annette77 in 'When is your birthday' thread, moved to own discussion in 'Newly diagnosed' category:

  • So sorry to see you join the club that no-one wanted to join, @Annette77 xx

    I hope your scans on the 31st went well.  The waiting for results really sucks - as this disease really mucks with your brain as much (if not more so) as your body - I hope that you have a lot of family & friend support & that you are able to keep active & busy until you see your surgeon next, for the results.  Do you have a trusted friend to take with you to your appointments?  A 2nd set of ears can be invaluable as there is a lot to take in at your early appointments.   My sister in law asked more questions than I did!  She was a blessing!

    I would recommend that you also tape the appointments, so you can go over them later on, as it is easy to miss bits in the emotion of the moment.  

    With it being a public holiday weekend, most of the normal 'chat lines' aren't available now til Tues, including BCNA's helpline - If you need to speak with someone regarding any concerns, please call BCNA Helpline 1800 500 258 from 9am Tues) - but Beyond Blue is available right thru xx

    Beyond Blue Call 1300 22 4636   24 hours 7 days a week (All calls and chats are one-on-one with a trained mental health professional, and completely confidential)

    Having Dense Breast Tissue can mean that cancers are 'camouflaged' as both the breast tissue AND the cancer show as 'white' on the Mammograms - and are often 'missed' (as happened with mine. My GP found mine 4 months after a 'clear' mammogram.)  I am on a bit of a mission to get BreastScreen Australia to ADVISE ALL of their clients of their breast density at their first screening - as it is in OUR best interest to know that we really need to have an ultrasound AS WELL as the Mammogram - and possibly more scans/tests - for an accurate diagnosis.  Sadly, having dense breast tissue can also result in finding more advanced cancer - which is the MAIN reason that we should be advised of our breast density.

    Once you see your surgeon & have your 'game plan' - you should feel more comfortable, knowing that things are about to happen soon - tho the final game plan will only occur after your surgery & final pathology. 

    Please jump onto this thread, to see 'other areas' in the blog that may help you navigate the blog ..... we even have 'funny areas' to give us a laugh - or you can show us your gardens or pets ..... anything that you'd like to share.  The tick sheets (down the bottom) can help with formulating questions of your medical team ..... 
    https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest  

    Take care, all the best for your continuing treatment xx
  • Hi @Cath62, thanks for your message. I’m hoping to get my results next week but I don’t have an appointment. I’ve asked the breast care nurse to chase it up for me when she’s back from leave next week. Everything is taking longer because of COVID and holidays. I managed to get an appointment within a psychologist at the hospital but it’s not until late February.
    I found out at my 3 minute consultation with the surgeon that I have dense breasts so I had a contrast mammogram on Friday to check if there are more lumps. Or if it has spread more within the breast. I feel exhausted from the anxiety and have to sleep in the afternoons.
  • Sorry you find yourself here @Annette77. Waiting for results is hard and stressful. Hope you are keeping yourself busy until you find out. Once you have the results your treatment plan can be worked out for you. When are you expecting to get your results?