New here...my story so far
Hello, I’m new the group and haven’t shared my story yet. It’s taken me a little while to be able to read some of your stories and not have ‘freak out’ moments. Thank you to all of you for sharing your stories. It is important to see the full gamut of what is happening and what is to come. In my initial moments I was overwhelmed reading here because I was so scared every time I read and got caught up in thinking if it would happen to me too. So I selfishly took myself away from reading and gave myself time. I was diagnosed with EBC (early breast cancer) in August after a Breastscreen appointment that picked it up. I have a fibroademona that was detected and checked when I was in my 20-30s so I fully expected that would come up in scans. In fact, I had noted a lump in my breast and had managed to convince myself that it was just the fibroadenoma that had grown. It’s amazing how we can easily convince ourselves isn’t it? Not quite delusion, not quite outright denial but I did have a few things going on at the time. I lost my job of over 20 years, Covid shut down the world and just when I was finding balance and working again I fell down some stairs and broke my leg. So for two years, I let other things take priority over having my Breastscreen checkup. I’m one of those cautionary tales and I’ve had to give myself grace and not blame myself too much over it and think on the ‘what ifs’. If I keep on the ‘what if’ I will just go crazy and overwhelmed emotionally and I have to get on with it. Decisions have to be made and now knowing what I know, I can’t wait any longer. Here is where I tell you all that this isn’t my first time with cancer. In 2010 I had surgery and radiation for a liposarcoma in my arm. I was finally cleared and cancer free by 2018/9. So I’ve had a few years of not thinking about it except when I see my scars. To say that I am scared is a huge understatement but I’m a planner and practical person mostly so I cope by finding solutions. I don’t know what the stats are on survival rates for my situation, it’s one of the questions I haven’t asked yet. Partly because I’ve gone into solution mode and partly because I am just that bit too scared I guess. My EBC journey so far has been all about finding a surgeon which I was lucky enough to be able to do from my specialist physiotherapist. I’d been seeing that physiotherapist for my arm and knew she also worked with many women with breast cancer. She referred me to my cancer surgeon. The decision to have surgery was an easy one after the sarcoma I knew it was necessary. Having the choice of breast saving surgery and reconstruction is a blessing. I chose to have my other breast symmetrised at the same time. To my thinking, if I was going for surgery I preferred to do it all at the same time. My surgery was 8 October so I am now 2 weeks post surgery this week and healing amazingly well. I’m grateful that my body heals so well. I am also grateful that I was able to read up on tips on the BCNA site. I chose to go private so that I could choose my surgeons, both of whom are excellent in their fields and have been wonderful. So what are my numbers? My EBC lump was 37mm Grade 3 invasive carcinoma, ER and PR 75% 3+ positive, HER2 negative with clear surgery margins. However, 2 of 3 lymph nodes showed metastasis with largest tumor deposit 22mm. That is the current concern and so I’m due to have a PET body scan this week and consultation with a radiologist and oncologist. My surgeon tells me that she wanted more information before deciding my radiation protocol and further treatment. I know I will also have hormone suppression treatment but am not there yet. I am thankful that the research on breast cancers is so extensive that treatment protocols are updated often. My surgeon tells me that previous protocol for lymph node involvement would have meant instant removal of all lymph nodes. Whilst I am grateful I may not lose all of my lymph nodes and that I may have options, a part of me is also really sad and scared knowing that the reason there is so much improvement in treatment is because there are so many women that have had to go through this before me. That’s me, my story so far. I was brief though wordy. I will continue to read and share where I can, you may have noticed that I struggle with sleeping 😊 Sad to be here, grateful to have your support.
Newly Diagnosed - Intro
Moderator moved @OTISMYCAT post to dedicates post in 'Newly Diagnosed': OTISMYCAT BRISBANE QUEENSLAND June 10 Hi my name is tanya. I was diagnosed last wed with invasive globular carcinoma.i have to have a mastectomy.im 62 yes ols. A mammogram picked up one lesion then an ultra sound found three more.my first visit with my oncologist is June 18rh.my whole world has been turned on its head.
Confused & Overwhelmed
Hi everyone I'm brand new & so overwhelmed. My nurse has passed on theses details & I'm looking to share my story, offer my support & hope my new sisters can help & guide me please. I've got a small 11 x 8mm cancer. Grade 2, invasive ductal, ER 95%, PR 95%, Her negative & I'm booked for surgery 24 October. I've been told to have the Mirena removed & stop all HRT immediately. I'm 57, fit & in good health. I'm in menopause & have been on my HRT for a bit over 12months. I'm currently on Ovestin three x week & Sandrena & Androfeme daily as well as having the Mirena. From all I've read I'm really concerned about stopping the HRT as I feel that the risks I will expose myself will outweigh any benefit. I also wasn't sure about stopping "cold turkey". If anyone can offer any info about this type of cancer & has continued with their HRT etc I would be extremely grateful. Thanks.
Time to process
Hi All, my intro post. Such a roller coaster of emotions and processing suddenly going from perfectly healthy to not! I had a Diagnosis 22/12/23 IDC with 2.9cm tumor and lymphnode involvement from BreastscreenSA. ER and PR +, Her -. (Xmas is harsh to get such news, both in the slow down of services and in telling nearest and dearest) It has taken a while (necessary tests, scans and byopsies), but looking at treatment beginning Wed 28/2/24 with surgery (partial masectomy, axillary node clearance). Then most likely chemo, radio, hormone therapy. Overactive imagination has been a problem, general stress/anxiety, and not sleeping well. It is settling a bit now, as Ive met surgeon and feel comfortable I am in good hands, met with Breast nurse (and now have a bright pink pillow and lovely accessories pouch for fluid tubes). I am participating in a clinic trial that I meet criteria on that I decided yes to assist. I am going ahead on a planned and booked holiday next week (which several family are also going), the surgeon was supportive on proceding with this as mental health positive. Then it is full steam ahead! I am fortunate to have supportive family, and some great friends, some who have had a bc journey themselves. Was concerned about work for a while, but Ive let the h.r. depts know (two jobs) of upcoming medical, and am scaling back for as long as I need (casual events hospitality - high energy, physical and customer facing, they will still be there when I can manage again!) So I think I am in about the best positive I can be for now! Not keen on whats to come, but ok to get on with what needs to be done! Thanks for reading, and thanks to all those sharing posts and info themselves - it has helped.
small steps forward
Hi everyone, just a little hello as I’m joining you on this journey and now feel brave enough to say hello. I was diagnosed June 28th, following a random self check, two weeks before a planned 5 week trip overseas; and since then I have commenced the journey of small steps through appointments and surgery, cancelling (postponing) the holiday, and I’m now 4 weeks post op - lumpectomy and lymph node removal/biopsies, I have a diagnosis of left IDC. no lymph node involvement, but dcis around the tumour found and also removed. It was a shallow tumour so whilst just enough clearance obtained near the skin, not as much as they’d like. So I’m about to start radiotherapy (in two weeks) with a little extra thrown in for good measure to ensure the skin is treated and be certain there’s no spread there. To say I’m anxious about this is an understatement!!! I also met the medical oncologist today too ( I’m 52 and well into perimenopause) and to commence tamoxifen post radiotherapy too. What a whirlwind/rollercoaster! I’m so very grateful it’s been found early and is being treated, sad that’s it’s happened and angry that life changes so quickly. But currently my fears are the radiotherapy side effects, particularly with the ‘extra’, and then the ongoing meds. I know treatment is optional, but I want to reduce risk of recurrence so will definitely go ahead with it, no question in my mind. But words of wisdom re how to do it ‘well’ or just knowing I’m not alone in my thoughts would be welcomed. Progressing with one small step after another, next step is mapping. Wishing you all well x
Waiting for Appointment after Referral Peter Mac
Hello friends, I am newly diagnosed with invasive carcinoma found on a routine mammogram and need a lumpectomy and radiation. I have heard all the advice about not being in a big rush to cut it out asap but I'm curious how long you waited after the referral for Peter Mac? I know it's cat A for surgery (>30 day wait). Trying to keep my anxiety under control but having some idea would help a lot. Hope wherever you are on the treatment path you are feeling good 🙏🏼Newly Diagnosed
Moderator moved discussion for member @manzganz from the activity section to the main forum: manzganz Hi all, I was diagnosed with blood clots in my lungs in January this year and my GP sent me for mammogram and CT on my pelvis to check my malignancy markers to determine how the clots were formed. I was advised that I had a 6cm mass on my ovary and an unusually enlarged uterus and was booked for a full hysterectomy on 16 March. I was then also diagnosed with an ER+, OR+, HER-2 negative invasive lobular carcinoma in my right breast on 9 March. Due to the cancer diagnosis, the gynae advised to continue with the hysterectomy and the pathology was good thankfully. I then had a partial mastectomy and 4 lymph nodes removed on 28 March, 2023. The lymph nodes were all benign too so I am also extremely grateful. My recovery for both surgeries has been long and slow but I am finally feeling more like myself. I start 4 weeks of radiotherapy in 2 weeks time and will then go on oestrogen blocking medication after I am finished which is yet to be determined. I am on blood thinners for my lung clots and after a recent test have been told they are yet to reduce in size but at least they haven't grown. I am 53 years old and before this enjoyed great health and fitness.
