So stressed Triple neg 5cm need positive stories

Good luck with work @"Tripple QLD" 

Hi Nicole, great news about breast MRI. Will keep my fingers crosed for a similar result from your CT and bone scan.
Looking forward to hearing that you have a job and thriving at work,  :)

Take care, 
Lyn

Hi everyone, 
sorry I am slack at replying or even hopping on here as it can be a bit of a mental drain for me. The breast MRI of my right is fine and now I am just waiting for Bone scan and ct for my back niggle pain and they said it would be good to have a nuclear Bone scan as I haven't had on since I started all this nearly 2 years ago.... wow that sounds weird 2years... anyway I'm doing ok just about to finally try returning to work next week and I'm hoping to get the Bone results the week after.  Thank you Flourish, that is inspiring and does give me hope. I'm so happy/humbled you were able to do all that with young children and have been here for them all these years and still going strong. Thank you I have heard of Otis it's just hard to know a time when we could get away as we are now so bad in debt because of all this that we need to work whenever we can with no time off just to pay the massive debs of not being able to work for nearly 2 years, I feel like I'm going to be in box sooner rather than later only a cardboard one out the front on the street instead. I just need next week to go well, my scans and my attempt to find work again and be capable to do my labour intensive construction job I love. I've been going to the cancer clinic Bloomhill Gym 3times a week to try and help prepare but nothing will resemble the challenges I will face in the coming weeks but I am excited to be finally going back to what I love so much if someone gives me a job back. It honestly crossed my mind when I first wrote the very first post on here that I wouldn't be around to type this 2years in so I feel lucky and really hope with all my life I can go in for another 30 and raise a family as that's all I ever wanted. Thank you all so much for being patient and all your support, I comforted a dear old lady in woolies yesterday who had lost her husband and it made me think of all those who comforted me during my time and 99%of them were on here or Facebook support groups as I have no one but my family and hubby. So thank you very much and I WILL update about my last lot of scans to my bones when I can in a few weeks and hopefully I would have worked a bit by then too so my stress levels may be eased a bit too. Hugs back at you all! Ps I found listening to a range of YouTube videos by "The Honest Guys" especially their LOTR middle earth ones so helpful to sleep and for positive thoughts so if I can help another by sharing this then great. Cheers Nicole xx

Hi @Flourish, thanks for sharing your story, it will give so much hope to those who have TNBC.

@"Tripple QLD", how are you going?  I'm hoping ascwe haven't heard back from you, that everything is ok???

Hi - I just joined this forum and am looking for some information for someone else but this is the first post I read. I want to comment to give you hope. I was diagnosed with a 5.5cm tumour in 1999 at age 28 with an 8 month old baby and 2 year old. It was before there was such a lable as 'triple negative', but mine was only just estrogen receptive (i.e., almost negative), was progesterone negative and it was before there was HER2 testing. The tumour had extensive vascular invasion and spread to 4 axillary lymph nodes. It was grade 3 (in terms of aggressiveness) and I think that makes it stage IIIa? Anyway the point is I am still here and healthier than ever after 19 years. I had mastectomy, chemo (different to current regime), radiotherapy, tamoxifen for 5 years (just in case it would help despite being so mildly estrogen receptive), DIEP flap reconstruction. I kept menstruating throughout chemo. If I didn't have children I would have probably done something to preserve eggs but at that time egg or ovarian tissue harvesting was new and I would have had to go to embryos. How are things going for you now?

Best of luck for tomorrow. Please keep us posted xx

@TrippleQLD Oh my heart goes out to you, I can hear the desperation in your writing. I know you know this but try not to let your mind run ahead of you. Don't cross any of these bridges until you come to them. Take some deep breaths and drop your shoulders which are no doubt up round your ears.

If it is another effing cancer, make sure you get on that dastardly Queensland reconstruction list asap.

Do you know about the Otis Foundation? They offer people with BC free holiday houses for up to a week. Here's the link to the Queensland page, could be just the thing for you and your lovely husband.

https://www.otisfoundation.org.au/directory?state=3

Hang in there love. Big bear hug, Kate

@"Tripple QLD" what a horrible, stressful situation for u - thinking of u and sending huge hugs and positive thoughts xoxox

Oh, @"Tripple QLD", I'm sorry this is all still dragging on for you. I'm glad you're having the mammogram & ultrasound. Easier said than done, and probably too late, but try not to google (says she who does it all the time, lol). I'm glad to hear that you've got a supportive partner, it sounds like you have a great relationship, too. Keep on being there for each other, and remember to breath, in & out, one after another. 
Thinking og you, sending big, warm hugs

IRB_03. 
I am getting more worried about my new lump in other breast now as I have mamo and ultrasound on Friday and see the big boss of breasts surgeon also on Friday for his thoughts but I am going to reilliterate to him I want a PET or MRI or something to check me all over so I can just get on with life and stop worrying about these couple of little things but as Friday comes closer I am getting more worried that I have contralateral breast cancer in my other breast now and studies say survival when contralateral is within 2years of original primary. Anger your odds are even less favourable. I just wish they would hurry up as I just can't take all this and I soooooo want it to just be hormone pain but it like the first cancer has a vein going to it that I can see so it's extra worrisome for me. I don't think my husband Could take another blow like this but I'm sure we would make it through just for the sake of making it through as that's been our whole lives, scraping and clawing for life and every dollar just to have some form of existence but always together.  I'm sure the surgeon will say he wants to take the other breast now when they wouldn't take it in the first place and I'm not sure how I feel about having NO breasts?? I just haven't thought about it, even if it lowered the risk, I'm just not thinking that as they told me there wasn't much higher risk by having it??... something I may have to think hard on although if he says it should go then I guess it should go. At least I won't look lop sided without my prosthesis on  lol.