Forum Discussion
Flourish
7 years agoMember
Hi - I just joined this forum and am looking for some information for someone else but this is the first post I read. I want to comment to give you hope. I was diagnosed with a 5.5cm tumour in 1999 at age 28 with an 8 month old baby and 2 year old. It was before there was such a lable as 'triple negative', but mine was only just estrogen receptive (i.e., almost negative), was progesterone negative and it was before there was HER2 testing. The tumour had extensive vascular invasion and spread to 4 axillary lymph nodes. It was grade 3 (in terms of aggressiveness) and I think that makes it stage IIIa? Anyway the point is I am still here and healthier than ever after 19 years. I had mastectomy, chemo (different to current regime), radiotherapy, tamoxifen for 5 years (just in case it would help despite being so mildly estrogen receptive), DIEP flap reconstruction. I kept menstruating throughout chemo. If I didn't have children I would have probably done something to preserve eggs but at that time egg or ovarian tissue harvesting was new and I would have had to go to embryos. How are things going for you now?