So stressed out. Just diagnosed with nearly 5cm triple neg idc at 33yo, no children yet, with very likely node involvement (not enough cells for conclusive but looks very likely in an enlarged node underarm) &nbsp;but all other scans and tests show no other cancer. I need to hear from others with same type and relative size and years beyond to have a positive outlook. Can't sleep, can't eat after seeing surgeon today - mastectomy surgery within next 2 weeks and auxiliary clearance then chemo and radiation. I am just so stressed about weather I bother saving my eggs as I read the outlook isn't that good for large triple neg but all I've ever wanted is children but no point if I won't be around. please I need to hear from others who have positive stories even ones with reoccurrence of large triple neg idc. Thank you.

Hang in there sweetheart.... I'm 5 years on, and was where your head is now. I had DCIS4 ( terminal at one point ) and a triple neg... I fought that war, I punched it fair in the fucking face!! Get angry!! Get really angry with it!!! Cry, scream, swear!!! Then get on with letting the drugs do their thing. Tell it " I AM NOT READY TO DIE! I HAVE TOO MUCH LIVING TO DO! SO FUCK OFF!!!" .... Prepare yourself for anything and everything!! The drugs will make you sicker than you've ever been, and I was sick and tired of being told "be strong, be positive" I was positive, I was positive I had cancer and was going to die!! But I didn't !! AND neither will you my lovely!!! <3

Dear Hopes and Dreamsi don't post much anymore but came on here and saw your post and felt compelled to answer you. I had triple negative multifical,ie 3 small tumours and 3 positive nodes. I am now 2 years post diagnosis. It seems hopeless and incredibly scary at the start but this is treatable!! Big gains in research and lots of worldwide focus on triple negative breast cancer treatment. It helps to read other survivorship stories and there are plenty of them with similar and bigger size tumours than you have. It s hard to find histories on this site and unfortunately a lot of great blogs seem to have disappeared. If you go to breast cancer.org you will find a whole section on triple negative with threads all about women who are thriving up to 10 years and more after a triple negative diagnosis. Another credible site is tnbc foundation. Tnbc foundation site also has discussion forums and up to date research posted on it. There are many other women on here who are doing well several years down the track and I'm sure they will also post. I understand totally how you feel, and it is important to know that not only can you survive but statistically you are likely to survive. Don't buy into all the doom and gloom on the web about tnbc. A lot of it is lazy reporting quoting statements from years ago.You have a treatable disease and you can get through this!I wish you all the very best and take care,Lisa

Hi Tripple Qld,I got my 10 year grade 3/ triple 2cm/ no nodes/ diagnosed on my first mammogram aged 45 survivor badge last September and celebrated in China with a bunch of great dragon boat friends.On my diagnosis, I was older than you and had 2 high school girls and my own business I had to to keep running through chemo and rads when diagnosed which was quite stressful at the time, as self employed people do not get any support but in a way kept me focussed on other things than me. Supportive Hubby, but no rellies around either. As you say you want children and don't know what is ahead of you. You didn't mention if you had a prospective father in mind! Firstly, you should listen to the doctor's prognosis which although isn't great for the first 5 years looks a whole lot rosier than the other types after 10 years. Meanwhile this won't be useful for family planning -as 10 years is leaving it just a little bit late!When you have a better picture of things sit back and look at your life and support system. Many women have unwanted children, many children are neglected. Some women have children who they dearly love and the mother dies suddenly unexpectedly anyway but life goes on. I remember my oncologist giving me survival rates then piping up - that there was a 2 % chance I could die of anything else in the next 10 years anyway! If we all worried that much the population would start rapidly declining. No one really knows what the future holds for us, but if you really want a child and have good support/partner around and are then blessed with conceiving via IVF after all you go through with breast cancer why not follow your heart?Mimsi :)

Hello there, I am a two time triple negative survivor. My first diagnosis was 3cm, aggressive with one 1cm enlarged positive node. I had lumpectomy, chemo, rads. I was 47 at the time. Unfortunatlely 6 months after all treatment completed I had a recurrence another 3cm aggressive tumour, all nodes clear this time. It was about 2 cm away from original tumour. Now the good news is that I am now 54 and got my 5 year all clear form second diagnosis in May last year, so heading for 6 very soon. Yes I had to do more chemo and have a mastectomy, but here I am nearly 6 years on. Hang in there, there are many stories like mine. One day at a time, remember to breathe.Sending you huge hugs.Paula xxxxPS I'd be saving the eggs.

Hi Tripple,sorry you have to join us but welcome.everything seems overwhelming when you first find out. Nodes, grade, stage, size, tumour aggressive,its impossible to entertain all at once. I managed to keep my balance by rationing the time I spent on quality research, once a day for 1/2 an hour (never Dr Google and never in the night before sleep), then moved onto simple pleasures, researching where I'll travel when I'm done with all the chemo and surgeries etc..easier said than done, I know, but it becomes a real discipline you can be proud of..Try not to think too far ahead, just one thing at a time. So far I've passed the mastectomy stage, 2/3rds of the way through chemo, and heading towards a second preventative mastectomy and reconstruction.5 months ago, I couldn't imagine making It to this point without being in a heap but you will get there. Right now, l'm looking at the line you typed .... 'but all other scans and tests show no other cancer' and I'm thinking that this is the positive to hang on to while you slow your mind and take a breath. There are so many great women on here.Jump on when you need them all.Sending you hugs and warrior strength. A. xx

So stressed Triple neg 5cm need positive stories

74 Replies

kmakm
Member
8 years ago
The worst bit is not knowing. Get it checked asap and then one way or another your agony will be relieved. Breathe, and hang in there. K
jennyss
Member
8 years ago

from jennyss
Sandes
Member
8 years ago
I just finishing reading a book called
On Smaller Dogs and Larger Life Questions
by Kate Figes (you can find it in Kindle) about her journey thru Triple negative breast cancer spread thru her bones. She describes all her suffering (in her case the main issue was the physical pain due to the cancer in the bones), but also her willing to fight the disease. She tell us about the chemo treatment but also about all the treatments in parallel, diet and exercises. And she survived: the cancer regressed, the bones healed and she could resume her life, with a new insight and new values regarding what really is worthy in life. The book is quite recent (was published last year) . I hope that helps you. Sandes
lrb_03
Member
8 years ago
How are you, @"Tripple QLD"?
Tripple_QLD
Member
8 years ago
IRB_03.
I am getting more worried about my new lump in other breast now as I have mamo and ultrasound on Friday and see the big boss of breasts surgeon also on Friday for his thoughts but I am going to reilliterate to him I want a PET or MRI or something to check me all over so I can just get on with life and stop worrying about these couple of little things but as Friday comes closer I am getting more worried that I have contralateral breast cancer in my other breast now and studies say survival when contralateral is within 2years of original primary. Anger your odds are even less favourable. I just wish they would hurry up as I just can't take all this and I soooooo want it to just be hormone pain but it like the first cancer has a vein going to it that I can see so it's extra worrisome for me. I don't think my husband Could take another blow like this but I'm sure we would make it through just for the sake of making it through as that's been our whole lives, scraping and clawing for life and every dollar just to have some form of existence but always together. I'm sure the surgeon will say he wants to take the other breast now when they wouldn't take it in the first place and I'm not sure how I feel about having NO breasts?? I just haven't thought about it, even if it lowered the risk, I'm just not thinking that as they told me there wasn't much higher risk by having it??... something I may have to think hard on although if he says it should go then I guess it should go. At least I won't look lop sided without my prosthesis on lol.
lrb_03
Member
8 years ago
Oh, @"Tripple QLD", I'm sorry this is all still dragging on for you. I'm glad you're having the mammogram & ultrasound. Easier said than done, and probably too late, but try not to google (says she who does it all the time, lol). I'm glad to hear that you've got a supportive partner, it sounds like you have a great relationship, too. Keep on being there for each other, and remember to breath, in & out, one after another.
Thinking og you, sending big, warm hugs
Kiwi_Angel
Member
8 years ago
@"Tripple QLD" what a horrible, stressful situation for u - thinking of u and sending huge hugs and positive thoughts xoxox
kmakm
Member
8 years ago
@TrippleQLD Oh my heart goes out to you, I can hear the desperation in your writing. I know you know this but try not to let your mind run ahead of you. Don't cross any of these bridges until you come to them. Take some deep breaths and drop your shoulders which are no doubt up round your ears.

If it is another effing cancer, make sure you get on that dastardly Queensland reconstruction list asap.

Do you know about the Otis Foundation? They offer people with BC free holiday houses for up to a week. Here's the link to the Queensland page, could be just the thing for you and your lovely husband.

https://www.otisfoundation.org.au/directory?state=3

Hang in there love. Big bear hug, Kate
Spiv1803
Member
8 years ago
Best of luck for tomorrow. Please keep us posted xx
Flourish
Member
8 years ago
Hi - I just joined this forum and am looking for some information for someone else but this is the first post I read. I want to comment to give you hope. I was diagnosed with a 5.5cm tumour in 1999 at age 28 with an 8 month old baby and 2 year old. It was before there was such a lable as 'triple negative', but mine was only just estrogen receptive (i.e., almost negative), was progesterone negative and it was before there was HER2 testing. The tumour had extensive vascular invasion and spread to 4 axillary lymph nodes. It was grade 3 (in terms of aggressiveness) and I think that makes it stage IIIa? Anyway the point is I am still here and healthier than ever after 19 years. I had mastectomy, chemo (different to current regime), radiotherapy, tamoxifen for 5 years (just in case it would help despite being so mildly estrogen receptive), DIEP flap reconstruction. I kept menstruating throughout chemo. If I didn't have children I would have probably done something to preserve eggs but at that time egg or ovarian tissue harvesting was new and I would have had to go to embryos. How are things going for you now?

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So stressed Triple neg 5cm need positive stories

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